Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,441 members • 23,719 posts

All posts for July 2016

Neurological symptoms worsening despite injections every 2-3 days

My GP has prescribed B12 injections on an ongoing basis for me to inject myself at home three times a week, which I've been doing for several months, and I am...

My GP has prescribed B12 injections on an ongoing basis for me to inject myself ...

oozlumbird

•8 years ago

11 Replies

Paresthesia after eating

Hi, I'm very much hoping that someone here will be able to help me. Just before Christmas I started having tingling feelings in my feet and hands. These spread...

Hi, I'm very much hoping that someone here will be able to help me. Just before ...

Misspuppy

•8 years ago

7 Replies

New B12 test - Martyn's Blog

There's a new test for blood levels of B12 - that runs on a mobile phone with a drop of blood http://martynhooper.com/2016/07/15/new-b12-test/...

There's a new test for blood levels of B12 - that runs on a mobile phone with a ...

fbirder

•8 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Won't reduce b12 to every six weeks

I had my 12 weekly injection today.....thank god. Although, it is a mixed blessing as the injection always makes me vomit. After my loading dose it took 5-6...

I had my 12 weekly injection today.....thank god. Although, it is a mixed blessi...

Marissa01

•8 years ago

5 Replies

Methylcobalamin

For 7 years I was experiencing off and on, hands and feet tingling, burning, pain, difficulty walking, extreme fatigue and depression. Countless visits to the...

For 7 years I was experiencing off and on, hands and feet tingling, burning, pa...

Joycekay

•8 years ago

17 Replies

Just out of interest-what are ranges for B12 in your area?

Just a generalised question of current interest-looking to challenge then possible change doctors after I was told my private reading of B12 was 157, then the...

Just a generalised question of current interest-looking to challenge then possib...

autoimmunekate

•8 years ago

17 Replies

B12 query

After refusing to reduce the time from 3 months , my doc has had a change of heart and contacted a haemotologist who suggested a six month trial of two monthly...

After refusing to reduce the time from 3 months , my doc has had a change of hea...

Pinkpeony

•8 years ago

13 Replies

Pain in the ASS

i am amused at this so thought i would share I went to the doctor after suffering from a pain in the buttock for about 6 months, id spent so much time fighting...

i am amused at this so thought i would share I went to the doctor after sufferin...

br74649

•8 years ago

7 Replies

one more question

I have PA and every day my tummy gets bigger and bigger. Really, today I look rather pregnant. happening quite quickly really.... any idea why?

I have PA and every day my tummy gets bigger and bigger. Really, today I look r...

jillc39

•8 years ago

6 Replies

Advice please

Just wondered if anyone could give me some advise? I was recently diagnosed with anaemia and prescribed iron tablets. I requested some further investigation as...

Just wondered if anyone could give me some advise? I was recently diagnosed with...

SMunn

•8 years ago

5 Replies

Help - recently discovered B12 deficiency

Hello everyone, new to all this and not sure where to start and what line to take next. I've suffered with anxiety, heart palpitations and panic attacks for...

Hello everyone, new to all this and not sure where to start and what line to tak...

Cheryl2407

•8 years ago

10 Replies

I need a rant- B12 ranges In same area!!Please help

So I'm seen as deficient on private test 157.4 (191-663), did GP test (at 4pm 4 days late- didn't realise about fasting!) and got result 180 which is fine...

So I'm seen as deficient on private test 157.4 (191-663), did GP test (at 4pm 4...

autoimmunekate

•8 years ago

4 Replies

Wrong b12 😞

I ordered 100 1mil ampoules of the C b12 not the H b12... What's going to be the issue with this? I had the Hydro at the GPs and I had bought 10 from mycare...

I ordered 100 1mil ampoules of the C b12 not the H b12... What's going to be the...

scorpiojo

•8 years ago

22 Replies

Intrinsic Factor

Since my first test results were lost I had another sample taken seven weeks after my loading doses doses.Would this have affected the results?

Since my first test results were lost I had another sample taken seven weeks aft...

Justified

•8 years ago

2 Replies

B12 at 907 pg/ml....do you think it's recovery?

Hi everybody...I have literally read through every thread listed here but wasn't able to find what I was looking for. Any help would be immensely appreciated....

Hi everybody...I have literally read through every thread listed here but wasn't...

Dlonelyguy

•8 years ago

7 Replies

Update on my daughter

Hi everyone just wanted to post a quick update on my daughter. She has had heavy periods since she started at age 11 she's 17 now and after various trips to...

Hi everyone just wanted to post a quick update on my daughter. She has had heav...

Spiritwings

•8 years ago

11 Replies

Do I dare..

I have an appointment to see the senior doctor at my practice and I intend to make a complaint about the doctor who has overall care (ha!) of my PA. Some of...

I have an appointment to see the senior doctor at my practice and I intend to ma...

jillc39

•8 years ago

8 Replies

b12-am I deficient?

I have coeliac disease and Hypothyrodism (hasimoto disease), I recently paid for a medicheck test and was found to have score of 157.4 (191.000-663.000)...

I have coeliac disease and Hypothyrodism (hasimoto disease), I recently paid for...

autoimmunekate

•8 years ago

7 Replies

High dose sublingual B12 supplementation and the Intrinsic Factor Antibodies test.

Diagnosed with a b12 defiency just over a month ago. Went vegan end of January and I think doc just assumes thats the reason as he doesn't really seem...

Diagnosed with a b12 defiency just over a month ago. Went vegan end of January a...

longdistanceclaraDXB

•8 years ago

2 Replies

Should I take B12 lozenges in between 3 monthly injections?

Hi I was diagnosed as probably having PA by a haematologist 4 years ago who said I should be treated with injections for life. (There is a family history,...

Hi I was diagnosed as probably having PA by a haematologist 4 years ago who sai...

ClaraJ

•8 years ago

18 Replies

Feeling rubbish

Morning. So I had my last loading jab on Friday. Saturday I felt fantastic!! But yesterday back to square one, spent all day in bed :( today I'm dragging...

Morning. So I had my last loading jab on Friday. Saturday I felt fantastic!! But...

Dianebee

•8 years ago

6 Replies

Apathy and personality changes

I went two years with PA before diagnosis. Fatigue, depression, despair, parkinson like tremors, and wanted to die... I've had treatment for two...

I went two years with PA before diagnosis. Fatigue, depression, despair, parkins...

ljmulledy

•8 years ago

19 Replies

Complex PTSD

Hi IV been forced to accept I have got chronic anxiety I asked my councillor does she diagnose me but she just keeps saying she doesn't know .I do feel IV...

Hi IV been forced to accept I have got chronic anxiety I asked my councillor doe...

Leigh6873

•8 years ago

13 Replies

Magnesium stearate & Magnesium citrate

Hi,, i take magnesium citrate tablets and have just received my methylcobalamin which states that it includes magnesium stearate. Should I stop my magnesium...

Hi,, i take magnesium citrate tablets and have just received my methylcobalamin ...

Justified

•8 years ago

10 Replies

Some advice on blood results please, B12, folate, ferritin

Hi my son is 5 his problems started at 4 months old suffering non epileptic episodes of shaking. As he got older this led to episodes of wobbly walking,...

Hi my son is 5 his problems started at 4 months old suffering non epileptic epis...

Klp23

•8 years ago

12 Replies

Can't stop bleeding

Morning everyone, as usually weather is awful and the garden needs doing. 😡Firstly sorry all you men on here but I've a woman's question to ask. A couple of...

Morning everyone, as usually weather is awful and the garden needs doing. 😡Firs...

Bentleyboo

•8 years ago

11 Replies

Methylcobalamin Sources

Hey everyone. This is my first post here and I'll try and keep this short and sweet as to not bore anyone lol. If you're not interested or don't wanna read my...

Hey everyone. This is my first post here and I'll try and keep this short and s...

Cynosure

•8 years ago

59 Replies

Rapid heartbeat and out of breath.

Hey guys. Lady again! I've been having a bad day today. Since I woke up my heart has been racing and hasn't stopped. I'm out of breath too. I kind of just want...

Hey guys. Lady again! I've been having a bad day today. Since I woke up my heart...

Ladyawkward

•8 years ago

21 Replies

Questions and a Little Life History

Hi Everyone, So good to ask folks on here who know without trawling around the internet! A couple of questions I hope you can help me with. Since starting a...

Hi Everyone, So good to ask folks on here who know without trawling around the ...

Catsgalour

•8 years ago

2 Replies

I'm new to pas

I was diagnosed appx 5 weeks ago. Have had my loading injections and seem to be picking up, with the odd wobbly day. I spoke to Martyn who suggested B12 boost...

I was diagnosed appx 5 weeks ago. Have had my loading injections and seem to be ...

Bevsusan

•8 years ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2016

Neurological symptoms worsening despite injections every 2-3 days

Paresthesia after eating

New B12 test - Martyn's Blog

Won't reduce b12 to every six weeks

Methylcobalamin

Just out of interest-what are ranges for B12 in your area?

B12 query

Pain in the ASS

one more question

Advice please

Help - recently discovered B12 deficiency

I need a rant- B12 ranges In same area!!Please help

Wrong b12 😞

Intrinsic Factor

B12 at 907 pg/ml....do you think it's recovery?

Update on my daughter

Do I dare..

b12-am I deficient?

High dose sublingual B12 supplementation and the Intrinsic Factor Antibodies test.

Should I take B12 lozenges in between 3 monthly injections?

Feeling rubbish

Apathy and personality changes

Complex PTSD

Magnesium stearate & Magnesium citrate

Some advice on blood results please, B12, folate, ferritin

Can't stop bleeding

Methylcobalamin Sources

Rapid heartbeat and out of breath.

Questions and a Little Life History

I'm new to pas

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive