Methylcobalamin: For 7 years I was... - Pernicious Anaemi...

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Methylcobalamin

Joycekay profile image
17 Replies

For 7

years I was experiencing off and on, hands and feet tingling, burning, pain, difficulty walking, extreme fatigue and depression. Countless visits to the ER and Dr. Office,checking for everything but B12. It then started where I had extreme difficulty getting dressed, had trouble feeding myself, could not write or hold a pen. Bending my neck sent electric shocks thru my body. Went to the hospital for MS testing. MRI, spinal tap,Lyme,brain scan. After more testing, one Dr. checked my B12 level, it was 80. I spent 10 days in the u and 10 days in rehab. They were not sure if I would recover. U untreated, B12 deficiency can cause permanent brain damage. I was lucky, everything reversed. Maybe if B12 methylcobalamin supplements were given early on, we might be able to prevent MS and other brain and nerve related diseases.

If that one Dr. didn't check my B12 level,I would have been diagnosed with MS, because the symptoms are the same.

B12 is vital for our health. It helps make DNA & RNA, your red blood cells.

Helps with Depression,Dementia,Sleep Disorders.

Protects &a rebuilds the Myelin sheath covering your nerve fibers.

Slows brain shrinkage up to 80%.

Lowers Homocysteine levels associated with heart disease.

If low levels are left unchecked, brain damage will occur and can become permanent.

Helps with age related macular degeneration.

By supplementing with sublingual Methylcobalmin B12 around 40 or 50 years of age, we could help prevent problems before they start.

Everyone should supplement and maintain blood levels of B12 in the range from 600 to 2000 pg/ml in order to avoid and, if this is the case, help recover from the wide range of problems that result from B12 deficiency or insufficiency. Health care practitioners: this is the first thing you should check for every patient that comes in, independently of their age or condition

Methylcobalamin: This is the neurologically active form of B12. It is technically a `coenzyme` of vitamin B12 and it is almost never prescribed by doctors despite being effective, readily available and inexpensive. It is also available in an injectable form. Degenerative neurological conditions are where methylcobalamin shows its greatest benefits over other cobalamin preparations. Brilliant news for MS’ers! Not only has Methylcobalamin been shown to work in neurologic diseases, it also helps with the elimination of toxic substances in

the body.

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Joycekay profile image
Joycekay
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17 Replies
Joycekay profile image
Joycekay

I am taking 5000 mcg of sublingual Methylcobalamin b12 daily.

Cynosure profile image
Cynosure

Great to hear you fully recovered! did you just use sublingual methyl or the injectable form?

Joycekay profile image
Joycekay in reply to Cynosure

I am taking sublingual Methylcobalamin not injections.

Joycekay profile image
Joycekay in reply to Cynosure

I am taking 5000 mcg. of sublingual Methylcobalamin. Sublingual is as good and in some cases better than injections.

fbirder profile image
fbirder in reply to Joycekay

I'm not sure how it can be better than injections. With an injection all of the stuff you administer gets into the body and it gets slowly released into the bloodstream.

With buccal/sublingual administration, a portion of the dose (an unknown, varying portion) gets swallowed where, in a person with absorption problems, it's wasted.

And everything absorbed gets straight into the bloodstream. Rather than a smooth release you get a huge spike. And the way the kidney handles B12 means that anything in the blood above a certain level gets eliminated in the urine.

The only advantage over an injection that I can think of is that it's not ouchy.

Joycekay profile image
Joycekay in reply to fbirder

Sublingual Methylcobalamin can be just as good in many cases as it is in mine. And still is.

deniseinmilden profile image
deniseinmilden

If you would like more information on sourcing supplies you could look up my profile by double clicking on my name and see my post "My Experiences".

Good luck!

clivealive profile image
clivealiveForum Support

Hi Joycekay Thanks for telling us your experience, it just highlights the need for this pernicious "Silent Killer" to be brought to the forefront of the attention of the current day medical profession.

There are too many horror stories of wrong or missed diagnosis out there.

I wish you well for the future

fbirder profile image
fbirder

Methylcobalamin is an active form of B12 (it's not a 'coenzyme of B12' it's a coenzyme of 5-methyltetrahydrofolate-homocysteine methyltransferase).

The vast majority of humans and other animals can easily convert hydroxocobalamin into the active forms of B12. Which is handy, because that is the format that is found in food. It's quite possibly also the form of B12 found in your injections that have 'methylcobalamin' written on the ampoule, because methylcobalamin converts into hydroxocobalamin in water (especially when exposed to light).

Joycekay profile image
Joycekay in reply to fbirder

I am taking sublingual Methylcobalamin not injections.

Joycekay profile image
Joycekay

Sublingual Methylcobalamin can work as well if not better in many cases.

ritario profile image
ritario

Hi Joycekay,

thank you for your very informative posting but you neglected the time frame information and did you start on 5000 mcg a day and keep to it through out.. You stated that you suffered the symptoms for 7 years but I am sure many people would be interested in how long it took to notice improvement and the symptoms of improvement or how long it took for you to be able to walk comfortably.

I am getting the occasional short pain and "twitches" but worry that they are signs of further damage rather than signs of regeneration. I have read many, many postings on different forums but everyone neglects such information.

Here's hoping you can rectify this situation and I wish you well for the future.

Joycekay profile image
Joycekay in reply to ritario

Ritario

I was receiving Cyanocobalamin injections in the hospital and rehab hospital everyday for 15 days. I showed some improvement. They were not sure if permanent damage was done to the brain and nervous system. I was sent home and told to take 500 mcg. of Cyanocobalamin daily. After one month no improvement until,through my own research switched to 5000 mcg. of Sublingual Methylcobalamin B12. Sublingual Methylcobalamin bypasses the stomach and goes directly to the brain and nervous system. That is when things started to reverse. This all took place about 2 years ago.

ritario profile image
ritario in reply to Joycekay

Thank you JoyceKay. I think my problem lies in the fact that I want to run before I can walk (literally). I have never been big on patience but I do feel more hopeful - thanks again. Keep smiling. x

Joycekay profile image
Joycekay

As we age and due to other factors, our body's ability to absorb B12 lessons. Sublingual Methylcobalamin bypasses the stomach and goes directly to the brain and nervous system. Research is finding out that Sublingual Methylcobalamin works as well if not better than injections. Most Doctors are unaware of the benefits of Methylcobalamin let alone how well sublingual works. They will prescribe Cyanocobalamin which the body must convert to Methylcobalamin what is left is insignificant.

Karenz profile image
Karenz

Hi! I recently had my b12 levels checked and they came back at 211 low end of the scale. I have had two shots but do not like getting them as they make me itch. Is 1000 mcg daily supplement ok to get my levels up instead of the shots? My Dr says no but I’m not really trusting Drs too much these days.

fbirder profile image
fbirder in reply to Karenz

Your doctor is probably correct.

Despite what some people might say, it is impossible to absorb more from a tablet than from an injection.

Has your doctor decided why you are deficienct in B12? It's most likely to be an absorption problem, which means you do not absorb B12 properly, otherwise you'd get enough in your food (assuming you're not vegan).

Some people can get enough B12 from tablets, many cannot.

Personally, I find a bit of itchiness infinitely preferable to my deficiency symptoms and tablets, sprays, patches and lozenges do nothing for me.

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