B12 query : After refusing to reduce... - Pernicious Anaemi...

Pernicious Anaemia Society

31,947 members23,085 posts

B12 query

Pinkpeony profile image
13 Replies

After refusing to reduce the time from 3 months , my doc has had a change of heart and contacted a haemotologist who suggested a six month trial of two monthly jabs. How long should you be without supplementation to get a reasonably accurate reading .

My last figure was 2000 .

TIA

Written by
Pinkpeony profile image
Pinkpeony
To view profiles and participate in discussions please or .
Read more about...
13 Replies
Galixie profile image
Galixie

It really varies by person. There is no way to know for sure how long it will take for your levels to drop.

Do you need to have your levels tested and be 'low' before you can get the trial of 2 monthly injections? If testing is not required, I would not bother to stop supplementing. You might need to make your doctor aware that serum B12 levels are virtually useless once a patient has starting receiving injections. The portion of inactive B12 in a serum sample can skew the results toward normal even when a deficiency still exists.

Pinkpeony profile image
Pinkpeony in reply to Galixie

Galixie thanks for your reply .

It's really for myself because I am puzzled that my bloods always come back high . I am to have the two monthly injections anyway . It's just when the G.P sees bloods over a thousand she seems to think they're not needed . Fortunately she sought the advice of a consultant . Pp

Lisahelen profile image
Lisahelen in reply to Pinkpeony

Frank should be the one to answer you here. He regularly has results that are way over upper limit into the 2000 if i remember rightly.

fbirder profile image
fbirder in reply to Lisahelen

The last two serum B12 readings I had were over 5999 (which is as high as their assay can go). But I still need weekly jabs.

I'm sure that some medics think it's just a placebo effect. but I sometimes have friends asking if I've missed a dose because I don't seem 'right'. That's one hell of a placebo effect.

Pinkpeony profile image
Pinkpeony in reply to fbirder

I know , I'm sure my G.P thinks I'm like one of these luvvies who takes it for the boost!

I WISH !!!

clivealive profile image
clivealiveForum Support

Hi Pinkpeony do you know what your Folate level is as this is needed to process the B12.

Well done on getting more frequent injections but as others have said test results are pretty meaningless once they are started - unless they come out very low.

(I think I've seen you in our garden... :D )

Pinkpeony profile image
Pinkpeony in reply to clivealive

Thanks Clive for the reply. My ferritin 2months ago was 43 (13 -150 )

I'm glad you've seen me in your garden because I haven't flowered in mine this year 😥

clivealive profile image
clivealiveForum Support in reply to Pinkpeony

Did you mean Folate?

Pinkpeony profile image
Pinkpeony in reply to clivealive

Sorry brain fog. Folate was 15.2 (4.6 - 18.7 ).

It did say sample was slightly haemolysed and interpret with caution ?

clivealive profile image
clivealiveForum Support in reply to Pinkpeony

I'm not a medically qualified person Pinkpeony so haven't a clue what "slightly haemolysed" means. Perhaps fbirder can help please?

Pinkpeony profile image
Pinkpeony in reply to clivealive

Clive I think it must have been dried up in some way in which case I would have thought Blue Horizon would have suggested a repeat.

Thank you for your replies . Pp

fbirder profile image
fbirder in reply to clivealive

Haemolysed blood has had the red blood cells burst, releasing their content. It's not unusual with blood samples.

It's nowt to worry about as it almost always happens in the sample tube.

Pinkpeony profile image
Pinkpeony in reply to fbirder

Thank you . BH seemed to say take results with a pinch of salt sort of thing . No worries fbirder thanks again .

You may also like...

Functional B12 diagnosis query

diagnose either. Nobody I’ve spoken to seems to know who should be advising on it! Thanks

B12 loading doses query

b12 injections one day after the other for two days for two weeks? She uses a small needle, I’d...

Query about B12 and Folate blood test result

Can anyone explain to me what this B12/Folate reading means? Does it mean they couldn't do the tests

Query on B12 infusion

last weekend. We did have a little debate about how much MethylB12 to put in the infusion: his...

Query b12 amount & frequency