Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,440 members • 23,719 posts

All posts for July 2016

Should I tell my GP about this community?!!!!!

Just curious if anyone here suggests their GP looks at or even joins this community to see what their patients are saying in the real world? I'm tempted to...

Just curious if anyone here suggests their GP looks at or even joins this commun...

Sallybones

•8 years ago

18 Replies

Caesarean section

Hi all Has there ever been a link with women who have had an emergency Caesarean section and going on to develop (undiagnosed B12 deficiency) this as been...

Hi all Has there ever been a link with women who have had an emergency Caesarean...

networker

•8 years ago

9 Replies

Odd test results

Hi everyone, I am writing in for my step sister in Texas. Her doc checked her B12 levels and they cam back at 1000. I find this strange as she's in her 60's....

Hi everyone, I am writing in for my step sister in Texas. Her doc checked her B1...

ndodge

•8 years ago

21 Replies

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PA with Neuro

So update on my saga with PA with Neuro . I've been PA since 2002 with 3 monthly injections. GP would not give b12 on a more frequent schedule so that's how...

So update on my saga with PA with Neuro . I've been PA since 2002 with 3 monthly...

Kapat1

•8 years ago

6 Replies

Endoscopy/colonoscopy

So had both and it wasn't as bad as I thought! Doctor says show classic signs of chronic gastric atrophy .. Seems to link directly with having PA, They took...

So had both and it wasn't as bad as I thought! Doctor says show classic signs of...

Robson957

•8 years ago

11 Replies

Has anyone in London had a sympathetic GP or can reccomend a private GP for a proper diagnosis ? ☆♡☆

Hello all again . I had a disastrous appointment with the GP yesterday . My own GP is away til September and the GP yesterdaywas rude , boorish , refused to...

Hello all again . I had a disastrous appointment with the GP yesterday . My own...

Kittycaite

•8 years ago

13 Replies

Well well well

Well well well I went to doctor last night with throat infection and he was looking through my notes as I'd not been to see him before, he casually said why...

Well well well I went to doctor last night with throat infection and he was look...

catherinejordan

•8 years ago

9 Replies

B12 frequency-a small victory?

I wrote a rant back in may entitled B12 frequency .I moaned and groaned about my daughter who get 12 week B12 when she has presented with neurological problems...

I wrote a rant back in may entitled B12 frequency .I moaned and groaned about my...

beew

•8 years ago

6 Replies

Where can I get Methyl?

My doctor is no longer able to obtain Methylcobalamin. I was totally symptom free for 4.5 years injecting Methyl every other day, but now with only being able...

My doctor is no longer able to obtain Methylcobalamin. I was totally symptom fre...

Marthathecat

•8 years ago

8 Replies

How long before your improvement from b12 shots plateaued?

Greetings: I know I have read that damage from b12 deficiency can be permanent if not treated within 6 months. My question relates to a slightly different...

Greetings: I know I have read that damage from b12 deficiency can be permanent i...

addie18

•8 years ago

22 Replies

High cortisol ?

Hi all does anyone have very high cortisol resulting in Cushings disease ?would be very grateful for any info !are there any links to P.A and Thyroid problems...

Hi all does anyone have very high cortisol resulting in Cushings disease ?would...

03081963

•8 years ago

8 Replies

Petition to make Hydroxo Available OTC in the UK

Hey everyone. I came across a petition online to make hydroxocobalamin available over the counter in the UK. Something that would make all of our lives a lot...

Hey everyone. I came across a petition online to make hydroxocobalamin availabl...

Cynosure

•8 years ago

8 Replies

'Chronic Fatigue Syndrome' / Depression ?

A few months ago I wrote on here to share how my Dr had said he could no longer help me and gave me the label above saying its just something I would have to...

A few months ago I wrote on here to share how my Dr had said he could no longer ...

JaksR

•8 years ago

10 Replies

up to date with gp

I have been to see the most senior gp after the trouble I have had with my gp. The fight is over more frequent b12 - she said you can overdose (told her you...

I have been to see the most senior gp after the trouble I have had with my gp. ...

jillc39

•8 years ago

12 Replies

PA and alcohol

After having 2 glasses of wine at the weekend I feel I need a b12 jab but I only had one on Friday. Does anyone have information on alcohol and PA

After having 2 glasses of wine at the weekend I feel I need a b12 jab but I only...

Kapat1

•8 years ago

16 Replies

high levels vit..b12. ..any suggestions

I have high b12 .3,700..normal white/red blood count..my dr sent me to hematology..I still don't have answer what is causing it..I'm female 45...

I have high b12 .3,700..normal white/red blood count..my dr sent me to hematolog...

saramacias7

•8 years ago

9 Replies

Side effect of b12? Or bug?

Morning!! So it's been 9 days since my last loading dose. For the past 6 days I've been incapacitated with the worlds worst tummy bug. No vomiting/nausea/fever...

Morning!! So it's been 9 days since my last loading dose. For the past 6 days I'...

Dianebee

•8 years ago

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Glaucoma Link re b 12 and possibly help the b12 gives

Hoping this works via my PC rather than my windows phones whicxh is limited... This site it takes you to has lots about vision so type search if you have any...

Hoping this works via my PC rather than my windows phones whicxh is limited... T...

scorpiojo

•8 years ago

11 Replies

Reaction to hydroxocobalamin self injection

My GP agreed that I could self inject my monthly B12 rather than coming to the surgery for the nurse to do it. He gave me a prescription for 5 ampoules (5...

My GP agreed that I could self inject my monthly B12 rather than coming to the s...

JanD236

•8 years ago

14 Replies

Hi, GUIDANCE REALLY APPRECIATED - my first post to the group is to ask for interpretation of my blood tests and the symptoms i experience

HELLO & THANKS FOR YOUR TIME... hi, i would greatly appreciate any insight & guidance - Due to the absolute confusion that is my previously diagnosed blood...

HELLO & THANKS FOR YOUR TIME... hi, i would greatly appreciate any insight & gui...

Hidden

•8 years ago

3 Replies

Tiredness

Hi I am a 45 year old female who runs her own business which can be very stressful at times.. I am feeling constantly tired and have been for some time now,...

Hi I am a 45 year old female who runs her own business which can be very stressf...

colette1

•8 years ago

9 Replies

Another update from myself,really fed up now,no job as such but am on a training course through job centre plus.It's been too long now.

Morning all,it's been a long time,I had three interviews earlier this week,one asked me to come back after my appeal, another one never got back,the last one...

Morning all,it's been a long time,I had three interviews earlier this week,one a...

Nicky-Richards

•8 years ago

5 Replies

After loading dose

Hi guys my daughter has had her 2 weeks of loading injections her folate levels are within the normal range but a week after she is still not feeling any...

Hi guys my daughter has had her 2 weeks of loading injections her folate levels ...

Gaily1770

•8 years ago

6 Replies

Advice re pernicious anemia please. Xxx

Hello all. I only discovered this forum a couple of days ago so please bare with me as all of this information is brand new to me . I have been feeling...

Hello all. I only discovered this forum a couple of days ago so please bare with...

Kittycaite

•8 years ago

18 Replies

Has anyone had a barium follow through examination?

I have low B12 and was tested multiple times for pernicious anemia, all came back negative. I have a very good diet and had an endoscopy for Coeliac disease...

I have low B12 and was tested multiple times for pernicious anemia, all came bac...

Ctb567

•8 years ago

8 Replies

Methylcobalamin

I have tried taking methyl cobalamin for the past 4 days and I feel awful. Depressed ,sleepy & can't function. The funny thing is the tingling in my hands and...

I have tried taking methyl cobalamin for the past 4 days and I feel awful. Depre...

Justified

•8 years ago

10 Replies

Thinking cyano isn't for me

I've recent realized my dr uses methyl for injecting into my veins (infusion) I notice when he doesn't use it and only uses magnesium. For several times I...

I've recent realized my dr uses methyl for injecting into my veins (infusion) I ...

Ladyawkward

•8 years ago

24 Replies

Genetic Testing - Where?

Hi all, I was wondering if you could help me Im trying to determine if/where I hve faults on the methylation cycle i.e. MTHFR, MTR, or MTRR etc. My exact...

Hi all, I was wondering if you could help me Im trying to determine if/where I h...

branagh

•8 years ago

9 Replies

3 month wait

Does anyone know why they won't retest for b12 until 3 months have passed. My dad's waited and thought it was 3 months, so had teat at docs they sent to lab he...

Does anyone know why they won't retest for b12 until 3 months have passed. My da...

miccy5

•8 years ago

2 Replies

Itching

Hail to the all knowing Can anyone tell me if a b12 deficiency can cause severe itching. My mum has suffered from itchy skin that sometimes drives her insane....

Hail to the all knowing Can anyone tell me if a b12 deficiency can cause severe ...

Pixielula

•8 years ago

27 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2016

Should I tell my GP about this community?!!!!!

Caesarean section

Odd test results

PA with Neuro

Endoscopy/colonoscopy

Has anyone in London had a sympathetic GP or can reccomend a private GP for a proper diagnosis ? ☆♡☆

Well well well

B12 frequency-a small victory?

Where can I get Methyl?

How long before your improvement from b12 shots plateaued?

High cortisol ?

Petition to make Hydroxo Available OTC in the UK

'Chronic Fatigue Syndrome' / Depression ?

up to date with gp

PA and alcohol

high levels vit..b12. ..any suggestions

Side effect of b12? Or bug?

Glaucoma Link re b 12 and possibly help the b12 gives

Reaction to hydroxocobalamin self injection

Hi, GUIDANCE REALLY APPRECIATED - my first post to the group is to ask for interpretation of my blood tests and the symptoms i experience

Tiredness

Another update from myself,really fed up now,no job as such but am on a training course through job centre plus.It's been too long now.

After loading dose

Advice re pernicious anemia please. Xxx

Has anyone had a barium follow through examination?

Methylcobalamin

Thinking cyano isn't for me

Genetic Testing - Where?

3 month wait

Itching

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