I was diagnosed as probably having PA by a haematologist 4 years ago who said I should be treated with injections for life. (There is a family history, even though the IF tests and parietal cell tests didn't definitively show PA, and though I have gastric problems, they haven't been able to show that any is causing the B12 deficiency).
Initially I was given 3 monthly jabs by my old GP but eventually she agreed to 6 weekly jabs because I suffered from brain fog, fatigue, extreme anxiety and low mood in the last 6 weeks or so before the jab. This worked very well for me until I had to change practice and I had 3 years or so of stable health and anxiety was much better.
Unfortunately I had to change practice in Sept 2015, and, since then, have only had jabs every 9-10 weeks (they did a blood test when I arrived and said levels were good so I didn't need them more often...) In the last few weeks I have been feeling dreadful- really down and anxious and exhausted.
I have also had numbness down one side of my body - have been referred for MRI and to neurosurgeon, plus to a physio, and none of them found anything wrong. I wonder whether this can be linked to the B12 deficiency given that it's only down one side?
Anyway, my new GP eventually agreed to a jab yesterday (7 weeks from the last) and I do seem to be feeling a bit better so far, but she has said they don't generally give anyone jabs more then every 3 months. My latest blood test showed B12 was at 460 which she said was fine (I tried to tell her that the blood tests are not to be relied upon and also that it had dropped from 900, which was the result when I was feeling well, but she didn't seem to be listening). She suggests I go and see her "in 2 months" to discuss the way forward. Obviously, I don't want to leave it 2 months because (if she then does another blood test and waits for the result) it will then be 3 months in between jabs in any event.
What do people think- should I resign myself to 3 monthly jabs and take lozenges? Or should I try and see another GP at the practice soon (which runs the risk of putting their backs up because she said I should go and see her)? If I saw another GP I could perhaps try and have a jab 6 weeks in which I hope would mean I wouldn't need oral B12. The difficulty is that, if I start taking it, that may mean they'll never give me more frequent jabs..
Thanks very much!