Has your Folate level been tested? Folate and B12 work together to repair neurological (i.e. demyelination) damage (i.e. the tingling and numbness). Iron (Ferritin) is important for the anaemia (i.e hemoglobin) but not for the neurological symptoms.
No good B12 does not automatically mean good folate supply, and if loads of B12 but not enough folate you will not benefit from the B12. All B vits need each other, having loads of one and not enough of the other is not going to be useful for your body.
Have a read in this topic, it will explain a bit more see:
Yes I have now understood that and am frustrated they didn't check it, though the gp wasn't sure what whatever was on the screen meant. I'll ask the endo when I see him.
I've a referral to a rheumatologist to investigate things further. I've never been like this before, weak and weak muscles, yes, fatigue, yes, brain fog, yes, but not the extent of pain and sensory issues. A colleague has AS and I've started to wonder about that, or I'm simply very hypermobile so easily affected by low vitamins and hornones. It's definately all spine, Si joint, neck, shoulders and rib cage related.
I used to do a lot of martial arts, swimming and yoga.
Should all be good for you, the swimming and Yoga, could not have caused joint damage I would think..sorry to read this though, sounds like you have some big inflammation going on, hope they find what's causing it, and then good treatment for it to go. I have several friends coming out in weird autoimmune conditions, swelling of joints , and other horrid stuff, all autoimmune reactions. One on steroids and rest, other one on chemo drug to get it to go in remission. Seems to much stress, not good for a body. Modern day life is not good for health, to much cramming in in a short time, just to much of every thing it seems.
Thanks Marre. I meant that I used to do those things, now seem to be an invalid.
I'm now thinking ferritin in the final part of the jigsaw, save whatever rheum has to say. And may have been an issue in the past too. Probably got a lot worse post baby too.
I just can't believe how I'll ive been. And that it might be "just" iron. Except I guess long term low thyroid which resulted in major muscle loss meant that a lot of extra iron might be needed.
I just can't believe how I'll ive been. And that it might be "just" iron. Except I guess long term low thyroid which resulted in major muscle loss meant that a lot of extra iron might be needed.
It might not just be iron, inflammation, Ra who knows, do you have raised markers of inflammation such as raised ESR's, CRP? Still no point in speculating now, see what come from your appointment.
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