First the tests:
My mother has pernicious anemia and has regular b12 injections.
I had a Homocystene blood test earlier in the year to investigate heart disease risk factors. It was 16.7.
From that I mentioned my mother's diagnosis and had a b12 test. It came back as 219 (not sure of the units 148 was the bottom of the normal range). The blood test had a comment stating that if deficiency was suspected active b12 could be measured.
I had a sleep study which showed nothing unusual.
White matter lesions on brain mri (attributed to headaches).
Now some symptoms:
I have been fatigued. At worst I have begun to collapse when falling asleep standing up and have fallen asleep while driving.
In a recent physio session I have been referred back to my doctor for drugs to deal with neuropathic pain.
There are other things going on that could be anything. Headaches, unfulfilled yawning (especially when exercising), strange sensations, joint pain (which has been tentatively labelled as inflammatory arthritis).
I am 44 and live in Australia.
I have been diagnosed on the autism spectrum and have dealt with ongoing depression and anxiety.
Diagnosed with irritable bowel syndrome. Gluten seems to be a problem for me.
I straight out asked my doctor about b12 and she said that I am not anemic. (Blood tests regularly show mild neutropenia and high billirubin but nothing else). She became angry that I was questioning her and stated that she is a GP and cannot be expected to answer these questions. She can only work from the test results which showed that I am fine.
I do not know if I am being irrationally concerned about b12? What to do next? Frankly the fatigue and nervous system problems that the physio is telling me to get medical help for are extremely concerning.
Any advice is welcomed. Thank you.