Hi. I have been lucky in the US to get every injections of cyanocobalamine, 1000 mcg, after my PA dignosis and a bit of struggle with the doctors. This has been a satisfactory regimine for years. However, I am now older (retired from work) and have been having a recurrence of symptoms for the past 4 months, such as sore, swollen tongue with fissures, additional neuropathy and tingling (especially in feet, as always), nerve twitches around mouth, stabbing pains, blurred vision, balance issues, all kinds of sensitivities. I get a brief respite after B12 injection, but only a couple days and not even that with any physical exertion needed on my part.
So....what to do. I ordered methylcobalamine sublingual and folic acid from Amazon to begin self supplementing. ( Thank you to this forun for so many detailed posts about what toorder and dosages!) But is there a danger that the nerve issues I am experiencing could be from some other neurological issue/disease? Should I see a neurologist before self supplementing? I am so impatient to start feeling better, because, of course, the biggest issue is the overwhelming fatigue one feels. And the brain fog that leads to trouble making decisions. So sorry if I have rambled or been unclear.