My child , who is now 14 , has from birth , been diagnosed with every symptom of B12 deficiency and pernicious anemia which includes : Low birth weight , failure to thrive , head circumference on a lower centile than height and weight , cognitive imparement , delayed development , dyspraxia , proximal more than distal muscle weakness , headaches , anxiety , vision impairment , hearing impairment , myopathies and myelination in blood tests , anemia , pneumonia , lethargy , glandular fever type symptoms ( monospot negative ) , she has had falls where she has hurt herself ( she says that she feels wobbly ), swollen tongue , pins and needles , balance problems , swollen fibres on a slide when a muscle biopsy was done ( the doctor said it was a possible artefact ) , swallowing difficulties ,mallocclusion and skeletal descrepancy of jaw , starring into space and unresponsive to her name , extreme wobbling and innability to hop , sudden extreme weight loss and lack of appetite
Apart from the diagnosed problems , lots of other symptoms have conveniently been ignored which include : Inability to eat wheat , gluten fats including all dairy products , egg and vinegar , swollen feeling around her spleen which she says is sometimes sore to touch , yellowing skin , tilting sensation , missed periods , spiking and thudding sensations around her heart , itching scalp , dizziness , tingling and burning sensation in the extremities , feeling cold , extreme lethargy , innability to taste food , waking up choking on vomit after eating bread , breathlessness , heartburn , black stool , constipation
She went through several unusual and traumatic proceedures which traumatised her while she felt very ill . Not one doctor tested her circulating iron , transferrins or saturation level in 13 years . They only tested her ferritin and never did an iron study . She has felt ill her whole life .
When she went to a swallowing clinic for the first time she was given a piece of digestive buscuit and a spoonful of yoghurt to assess swallowing . She had a drooping bottom lip and had constant drooling . I was advised to give her a reward chart for lip closure and swallowing .
Through all her suffering , she was asked to do two half hours of vigorous exercise per day which made her ill . When I rand the phisiotherapist , she said I must carry on with the exrcise regime . She had avised trampolining and my child came to a grinding halt on the trampoline and it took three adults to get her down safely as she could not bend her legs .
When I took her to the children`s hospital in Liverpool , the doctor tapped himself on the head and told me her symptoms were probably psychosematic and said that he would " put it all back with the phisios " . My child was very ill and when we left the hospital she broke down in tears .
In 2013 , I was told that she had an "iron deficiency" . The doctor told me to give her ferrous fumerate and a daily multi vitamin. A few months later , another doctor diagnosed anemia and told me to give her ferrous fumerate for at least another 6 months . After a year of a daily multi vitamin which included 100% of her daily B12 need , we went to another hospital to have an ECG and blood tests . The doctor told us that it was too late to do an ECG (4pm) . The blood tests were taken which included B12 , folate , iron study coag and some others . A few days later the doctor rang to say that there was not enough blood for some of the tests ( just so happened to be B12 and folate ) . We had to go back and give more blood . She felt very sick afterwards and every time blood tests are done she looks awful . I am stunned at how much blood had been taken from her circulatory system . When the result came back , her level was 331 ( this was after a year of a daily multi vitamin with 100% B12 daily need )
Doctors were so mean to my child at appointments that I made a formal complaint and asked the executive to include an externel child protection agency . They failed to do so . Instead the team of doctors who had been "looking after her " , got together and raised a phony inquiry about me . My child was then abused by social workers sent from Legal Gatekeeping Services . They threatened and bullied a sick child . She had nightmares about being operated on and being attacked by dogs for complaining about the way doctors treated her . We had to go to court where an interim care order was put on her . She started to feel suicidal and when I told the social worker about the effect she was having she just looked striaght ahead , rolled up the window of her car and rolled away .
We are both in a state of shock . I am very concerned because it seems , according to Sally M Pacholok`s book , " Could it be B12 ? " , symptoms can include inappropriate sexual conduct . There seems to be several clinics at Alder Hey Children`s Hospital who seem to be interested in this subject .The chief executive of Liverpool , Mr Ged Fitzgerald was in charge at Rotherham and says that he knew nothing of what was happening there . I am concerned that the decision not to test B12 deficiencies properly could be seen as sexual grooming of children . Our GP`s reception manager has told me that intrinsic factor and pareital cell tests are not on the system and so there would have to be a low B12 seum level before they would be allowed to test . Who made the decision to not include these tests ? Is this maladministration ?