Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for February 2012

Vasculitis in the brain

Hi All,Im new here. My 19 year old daughter is currently in hospital under a neurologist,i was told yesterday that she has vasculitis which has attacked the...

Hi All,Im new here. My 19 year old daughter is currently in hospital under a ne...

•12 years ago

The Lauren Curry Twilight Foundation Seminar

The Scottish Vasculitis Support charity (The Lauren Curry Twilight Foundation) are holding their third webinar on the 15th February. To register to listen to...

The Scottish Vasculitis Support charity (The Lauren Curry Twilight Foundation) a...

Volunteer•12 years ago

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Can we use rituximab to prevent the return of ANCA vasculitis | Arthritis Research UK

http://www.arthritisresearchuk.org/research/grant-tracker-items/2011/can-we-use-rituximab-to-prevent-the-return-of-anca-vasculitis.aspx

http://www.arthritisresearchuk.org/research/grant-tracker-items/2011/can-we-use-...

Volunteer•12 years ago

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Latest findings on Manuka Honey might be worth a try

I dont know if this will be any help to anyone here, but I am going to try and get my hands on a couple of jars of Rowse Manuka Honey, as they claim it has...

I dont know if this will be any help to anyone here, but I am going to try and g...

•12 years ago

The importance of Support

Ok, not a marathon training blog, but thought I'd highlight another side of WG and illnesses that are just as debilitating. When diagnosed with WG, it is...

Ok, not a marathon training blog, but thought I'd highlight another side of WG a...

•12 years ago

Heart bypass surgery with WG

My husband has WG, diagnosed June time last year but some years before has had Varicose veins removed and problems with arteries in his legs. He is now going...

My husband has WG, diagnosed June time last year but some years before has had V...

•12 years ago

Hello - can someone please tell me when the next support group in Essex is and where? Many thanks

•12 years ago

Unstable for long travel!

My cousin is getting married in Thailand and I emailed the specialist nurse last week for advice re travelling. She rang me today to say that they had had a...

My cousin is getting married in Thailand and I emailed the specialist nurse last...

•12 years ago

Vasculitis-UK are looking for new blood especially young blood to join the board of trustees.

Vasculitis UK are looking for new blood especially young blood to join the Trustees. To be a trustee you must be a full member and must attend at least two...

Vasculitis UK are looking for new blood especially young blood to join the Trust...

Volunteer•12 years ago

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In pain and know one is taking any notice what can I do??

hi I have been diagnosed with WG in December it effected my sinuses and my lungs, I have been on retuximab and finished my treatment two weeks ago. The problem...

hi I have been diagnosed with WG in December it effected my sinuses and my lungs...

•12 years ago

Vuk is desperately in need of a PR/Media person Is there anyone in the community who might be able to help or who can help us find someone?

Vuk is desperately in need of a PR/Media person with experience and or contact in dealing with press, radio and TV. If anyone fits the bill or knows someone...

Vuk is desperately in need of a PR/Media person with experience and or contact i...

Volunteer•12 years ago

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Could my newly diagnosed enlarged heart really be Vasculitus, as I have been left untreated for 3 years by my GP and local Hospital,

I have been left untreated for 3 years with Systemic Vasculitus, I cant take inflammitorys as it makes me bleed, I cant go on steroids my doctor and...

I have been left untreated for 3 years with Systemic Vasculitus, I cant take inf...

•12 years ago

Another personal tale of WG

My illness started in the 2010/11 winter with what was firstly diagnosed as a sinus infection. Courses of various antibiotics failed to clear this up and my...

My illness started in the 2010/11 winter with what was firstly diagnosed as a si...

•12 years ago

RUNNING TO THE BEAT OF THE DRUM! Follow Jimdrum's training blog He is running in 2 Marathons in Rome and Berlin. Jimdrum (Jamie) has WG.

Jamie has Wegeners Granulomatosis. Please read Jamie's story on his Just Giving page... http://www.justgiving.com/Jamie-flanagan Follow Jamie's...

Jamie has Wegeners Granulomatosis. Please read Jamie's story on his Just Giving...

Volunteer•12 years ago

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Marathon Training blog for Vasculitis UK

My name is Jamie Flanagan. This year I'm going to be running in the Rome and Berlin Marathons raising money for Vasculitis UK. I am a Wegeners...

My name is Jamie Flanagan. This year I'm going to be running in the Rome and Be...

•12 years ago

just joined! i have a23yr old son with CSSi tried to get some help from dwp,filled all the forms via c.a.b. got turned down...help!

•12 years ago

HiCan anyone help, I have WG and wondered if I can claim any benifits, I have no idea about this ?

•12 years ago

Holly is expecting her first baby in May 2012.

Please read Holly's story in this weeks "Pick Me Up" magazine. Holly was diagnosed with WG in 2009. Married 2010 and is expecting her first baby in May.

Please read Holly's story in this weeks "Pick Me Up" magazine. Holly was diagnos...

Volunteer•12 years ago

CHARITY GOLF DAY

CHARITY GOLF DAY @ BENTON HALL IN AID OF INCURABLE AUTOIMMUNE DISEASES AT ADDENBROOKES HOSPITAL Friday 18th May 2012 £55 p/p (Teams of 4 or...

CHARITY GOLF DAY @ BENTON HALL IN AID OF INCURABLE AUTOIMMUNE DISEASES AT...

Volunteer•12 years ago

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