I have been left untreated for 3 years with Systemic Vasculitus, I cant take inflammitorys as it makes me bleed, I cant go on steroids my doctor and Rhumatoligist tells me as I am overweight, and Friday I got called to the Doctors only to be told I have Heart Disease and my heart is enlarged and my lungs show congestion (just got over Pneumonia Nov, taken weeks to get rid of it). After two days the shock finally hit me, now I am beginning to wonder if this could be my Vasculitus, I have been feeling ill with it for ages, the sheer lack of energy tirdness, headache and occasional flu like feeling, am wondering if this could be a possibility, my GP doesnt always get it right, can anyone tell me a little about Pulminary Vasculitus, can you live with the damage it does and for how long? does it mimic Heart disease at all? I am just trying to digest all this, its bad enough having Vasculitus, dont need anything else on top of it, I realise I need a specialist but just wondered if anyone has or has had it and can tell me a bit, many thanks!!
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