Thinning hair

[Mirv]

Hi just wondering if anyone has experience of thinning hair? Was diagnosed about 4 years ago with scleroderma and secondary raynauds. I take hydroxychloroquine and painkillers for sore joints. Have always had fine hair but over the last couple of years it has become worse. I dye it a lighter colour as it makes the sparseness less obvious but just now I haven't been using dye and I look really baldy! Did try a cheap wig just to see what it was like but was too warm. Anyone got any suggestions that might help?

[Verily]

Are you on any medication for your condition as this could be playing part in your hair loss

[Mirv in reply to Verily]

Hi thanks for replying. Apart from Seven Seas joint care with Tumeric and vitamin D, its really only hydroxychloroquine. I have ibuprofen and occasional cocodamol but have cut back on those when I can. I am wondering if it is linked to hormone changes (55) and the fact I have always had fine hair. It's just that there is less of it than baby hair! It feels like grabbing a handful of nothing!

[Verily in reply to Mirv]

You could try alpecin caffeine shampoo a friend of mine losted lumps of hair and had a bald patch after a road accident and she used this and her hair is back to it's usual thickeness 🌈

[Jen3131]

I have thinning hair - when I look at old pictures, I must have less than half of what I had before. It’s sometimes difficult to know the cause - meds (Methotrexate and then mycophenolate) or age. I have limited scleroderma and Raynauds and was diagnosed more or less the same time as you. It definitely is looking worse since the colour has faded - I can see my scalp 😩

[Dargomom]

I also have very fine hair but I used to have a lot of it. I have Diffuse Scleroderma overlapping into Limited Scleroderma. I have severe Raynaud's. My first sign of Scleroderma was my hands turning blue in 2010. I am not on any Scleroderma medications. About 2 years later, a hairdresser commented that my hair was thinning at my crown. I would say that I have about half the hair I had and you can definitely see my scalp. The thing that works the best is a good quality, human hair "topper." No one can tell that it's not my hair.

[Lucinda227loz]

Hi I wear wigs no one said anything so now I’ve got longer hair and keeps my head warm when it’s cold very good

[Meg42]

I suggest trying hair regrowth shampoos or hair densifying shampoos. That's where I'm at right now. I'm still researching, so I can't recommend any unfortunately,but a google search turned up a few, and I definitely read customer reviews (best & worst). One trick I use to conceal areas where my scalp is showing, I dab a matching eye shadow right onto my scalp with the makeup applicator and it looks very natural. I only do this if I'm going out for the day, as I feel it's healthier to let my scalp breathe.