Interesting Podcast series: Scleroderma Education Podcast - FREE

[Nw6London]

Hi all,

I stumbled upon this series and thought I'd share. A Podcast series discussing scleroderma(!) between medics and patients. Each episode focuses on a different topic - so far: sclerodactyly, raynauds, surgery, ILD and GI. Was really informative and great to hear from the people themselves, their lived experience; how they're affected, things to consider etc. The episodes are less than an hour each and because of their conversational format, it's very easy to follow and understand. Definitely recommend having a listen! Enjoy.

You can listen to each episode here for free:

sclerodermaeducationpodcast...

Or search "scleroderma education podcast" and it should come up!

[Eden1234]

Hi 😊

Thank you so much for passing this on, much appreciated. Will look forward to listening to the podcasts. Best wishes 😊

[Bee2023]

Thank you so much for sharing. I found these very useful. 😊

[Bkart]

Hi Nw6London,

Thanks for posting will take a look, is this from the American ‘Scleroderma Education Project’. If so I have found their written information also very good but without being too unnerving.

[Nw6London in reply to Bkart]

Yes, I believe so! Ah, will have a look at their pieces. I'm recently diagnosed and have found this very informative; with good pointers to ask questions to the consultants.

[KathleenMary]

Thank you for this. Very interesting hope all trainee doctors listen to it.I find it depressing how little is known about scleroderma by non rheumatology medical practitioners