📊Help SRUK Help You: Take Part in ou... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

11,131 members•5,646 posts

📊Help SRUK Help You: Take Part in our Patient Registry Survey

SRUKadmin profile image
SRUKadminPartner
•1 Reply

SRUK have launched a Patient Registry Survey, which asks for your feedback on how you might feel about sharing health information.

A patient registry would:

📋 Help us advocate for improved care

📋 Improve access to treatments

📋 Improve patient outcomes

But before we can do it, we need to know what you think.

Let us know your thoughts here:

surveymonkey.co.uk/r/8NH8Z9N

Written by
SRUKadmin profile image
SRUKadmin
Partner
To view profiles and participate in discussions please or .
1 Reply
•
Kilncadzow profile image
Kilncadzow

Happy to take part although I was treated for scleroderma from 1976-1986. Still have Raynaud’s and slightly deformed right hand as a result of scleroderma.

Not what you're looking for?

You may also like...

SRUK Patient Survey

Hi All, If you wouldn't mind taking 10 minutes to fill in our Patient Survey for anyone with...
SRUKadmin profile image
Partner•

Please sign our petition to help patients in Wales access expert medical care in England

I hope it’s OK to post this here. Please find details of my petition following. I have included...
Wendy39 profile image
•

Do you have Iloprost treatment?

If so, we'd love to hear about your experience. In particular we are interested to hear if...
RSA_Hannah profile image
•

Raynaud's Awareness Month

February is Raynaud's Awareness Month! If you can help to spread awareness by putting up some...
SRUKadmin profile image
Partner•

I want to apologize if I have offeded anyone by posting anything "faith" related. I don't wish to push that, it wasn't my intention.

Please let me know if I have offended you, as I would like to hear your comments. I thought this...
MARCY profile image
•

Moderation team

See all
JillWillSRUK profile image
JillWillSRUKAdministrator
AnnabelSRUK profile image
AnnabelSRUKAdministrator
Chicunique27 profile image
Chicunique27Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.