Hair loss

[Whiteflower97]

Hi guys, I have diffuse cutaneous scleroderma- I've noticed a lot of hair loss on my scalp - is that due to scleroderma? Is there anything I can do to prevent it? Thank you all

[Jen3131]

Looking forward to seeing responses as I have the same problem 🤔

[Elidi in reply to Jen3131]

Me too I have same. Despite folic acid and biotin it continues to thin. 🙄

[Who48]

Hi are you taking any medication for scleroderma?

[Whiteflower97 in reply to Who48]

No am just taking nifedipine for raynauds and omeprazole for the gastro side effects

[KatieAnna]

Hi, I have it too and think it's related to loss of blood and nerve supply to the scalp, but I'm not sure if that's right. Nothing I've heard of helps. It's a pain. Mine progressed quite quickly at first and has been more slowly over recent years.

[Jen3131 in reply to KatieAnna]

Sounds possible although I took methotrexate for about 15months then switched to Mycophenolate. So it could be meds or a combination perhaps. X

[KatieAnna in reply to Jen3131]

I hope that the medics find something useful to treat it whatever the cause! It's a bit of a pain. X