Does anyone with raynauds suffer with... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Does anyone with raynauds suffer with problems with earwax ?

bookworm profile image
8 Replies

Had to have my ears syringed a few times, and suctioned out once. Plus recently the dr said my ears were that blocked she couldn't see my ear drums and have to have them syringed again in a couple of weeks.

Also tried hoppi ear candles.

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bookworm profile image
bookworm
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8 Replies

I've got Raynaud's and also have to have my ears syringed regularly but I was unaware of any link between the two.

Serendipity16 profile image
Serendipity16

I do seem to have a lot of wax and have pain when flying but have never seen a doctor or needed them syringed.

suzierwp330 profile image
suzierwp330

yes i have Raynauds and my ears blocked very often need to be syringed quit often .Last time had to go back twice ,as the shin had formed a small sack and wax was inside got it out with tweasers in the end .Thought is was really strange

GillB46 profile image
GillB46

I've an appointment to see ENT consultant in a couple of weeks because of wax in one ear but constant ringing and hissing in both - driving me MAD. Have been told that it could possibly be linked to Raynauds and Scleroderma. It's interesting to hear(?!) that other people on here have similar problems and I shall certainly mention it. GP wouldn't syringe - apparently it's not done too often these days! Recommended warm olive oil daily for 20 minutes but it hasn't helped at all. Anyone got any remedies that work?

MInerva profile image
MInerva

I also have my ears syringed frequently: olive oil only softens the wax but doesn't remove it.

I hadn't realised that it might be linked to Raynaud's.

Susl profile image
Susl

I have had problems for 6 years. I have autoimmune inner ear disease also. Off balance all the time. Just went to the ent, thinking I have wax, not. They could not see an eardrum. My ent said it is related.

Stacey13 profile image
Stacey13

I've got Raynauds and have the same! - although I've not had my ears syringed I have been to the doctor with a problem with wax and ears just feeling blocked as well as a lot of pain (to the point of being put off of flying). However, the doctor said I should try simple Hayfever relief decongestant nasal spray. For flying it works - take a little more than it says (before flying) and you get no pain. I was using the nasal spray once a day for 3 months (on and off) - and I've not had to use it since. It has certainly helped. Perhaps it will help you or someone else too.

granny51539 profile image
granny51539

I'm new to this site. I have Raynaud's pretty much have the blue cold sore toes thingy in control. I'm 75 and had my first blue toe thing about 3-4 yrs ago. I keep warm. I have a hearing loss wear hearing aids. Have tons of wax. Last year I had a rash on my hands, took benadryl and Triamcinolone Acetonide I got from the dermatoligist. I'm having another bought with it right now. I want to spit nails. That cream doesn't do a thing. I never connected the rash and pain with Raynaud's. Does anyone have attacks like that. It's not a big rash you can't see it but can feel it. I think I ran this by the wrong Doctor. I'm leaving on a trip Tuesday, great.

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