Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

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Flare after Moderna Spikevax jab

I would like some help from you kind folks please. Successfully tapered down to 6gm of pred. With not too much trouble with all your advice on this forum. On...

I would like some help from you kind folks please. Successfully tapered down to ...

Pebblegod

•4 hours ago

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Stomach problems and steroids - where next

I was diagnosed with polymyalgia in 2021. By summer 2023, I had reduced to 4.5mg. But the death of a close friend, for whom I am executor, resulted in a big...

I was diagnosed with polymyalgia in 2021. By summer 2023, I had reduced to 4.5mg...

Hidcote

•14 hours ago

11 Replies

Glasgow support group

Our next meeting is on Monday 13 May at 2pm. We meet in the offices of Health Alliance Scotland located in the Venlaw Building at 349 Bath Street, Glasgow, G2...

Our next meeting is on Monday 13 May at 2pm. We meet in the offices of Health Al...

RichardC

•17 hours ago

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Reaction to Denosumab injection

I had my first 6 monthly injection a couple of weeks ago. 2 nights later I was up every half hour to pee and/or poo all night! Since then I've had a lot of...

I had my first 6 monthly injection a couple of weeks ago. 2 nights later I was u...

Japsquar

•19 hours ago

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Welcome to our new members - May 2024

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to ...

Fran_Benson

Partner•19 hours ago

2 Replies

Unrelated PMR question, but asking for a desperate friend in need …

A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from...

A friend of mine is bewildered about what is going on with his wife’s health. H...

LemonZest11

•21 hours ago

8 Replies

Is it a flare or something else?

I've had PMR/GCA for seven years and finally down to 4.5mg for many months. Yesterday I went down to 4.25 and have been in awful pain since, as bad as when I...

I've had PMR/GCA for seven years and finally down to 4.5mg for many months. Yes...

crafty_grannie

•22 hours ago

6 Replies

After 2 days Prednisone feeling good already.

I have taken the Pret. for 10 days than 15mg for a week and now 10mg for a week and than 5 mg for a week. Reading some literature from the Royal College of...

I have taken the Pret. for 10 days than 15mg for a week and now 10mg for a week ...

HIITlover

•23 hours ago

5 Replies

Moderna Vaccination

Had my vaccination last Monday never had a bad reaction before.This time I was rough until Thursday all the suspects headaches chills aches pains nausea....

Had my vaccination last Monday never had a bad reaction before.This time I was ...

Rene20

•1 day ago

10 Replies

where do I begin

I haven’t posted on here for quite a long time, however I read the posts every day. I was diagnosed with PMR and RA in April 2023. I have just been allocated...

I haven’t posted on here for quite a long time, however I read the posts every d...

Wonderfullifeandmore

•1 day ago

7 Replies

Info re another Auto Immune malady. Parkinson's

This info from the Michael J. Fox institute might be of interest to other followers of this site. The topic is dealing with the pain associated with...

This info from the Michael J. Fox institute might be of interest to other follow...

Canuk

•2 days ago

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Trigger finger (and toes)

i have for a long time had a tendency for my toes to cramp and ‘lock up’ and also very occasionally my fingers too. However recently, since my PMR diagnosis,...

i have for a long time had a tendency for my toes to cramp and ‘lock up’ and als...

Sally_Bones43

•2 days ago

14 Replies

Turmeric and a Flare and Drama + Thoughts

Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some success (I think - quite strongly) with varying Turmeric shots and soluble lozenges...

Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some succe...

discoballs

•2 days ago

31 Replies

Still suffering

Still on 6.5mg of pred just over 6 weeks now I’ve added in the occasional day of 6.25 to start a dead slow reduction again. The anxiety is still severe...

Still on 6.5mg of pred just over 6 weeks now I’ve added in the occasional day of...

Oscarsnan

•2 days ago

4 Replies

Skin problems at low dose

I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though attempts to get below this are so far not working but I am being patient. However...

I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though at...

Waves2

•2 days ago

44 Replies

Pmr , Rs3pe

My dad is 78 yrs old was fit and healthy he started having symptoms of limited shoulder movement, pain at the back of his thighs , swollen hands that he...

My dad is 78 yrs old was fit and healthy he started having symptoms of limited s...

bmwm135i

•2 days ago

6 Replies

Stopping Alendronic Acid

I've been taking Alendronic Acid along with pred (on the insistence of GPs and rheumy) for 2 years. At last I've managed to get a Dexa scan and they told me...

I've been taking Alendronic Acid along with pred (on the insistence of GPs and r...

Sammo47

•2 days ago

11 Replies

Is this a flare ?

Hi all. I don't post on here often but I read lots of other posts so know you all know so much more about this than me. I have had PMR for about 4 years and...

Hi all. I don't post on here often but I read lots of other posts so know you al...

lindtbunnynut

•2 days ago

22 Replies

No Cominarty Vaccine!!

I've had the call for my Spring covid booster, but unfortunately I can't have Spikevax (Moderna) as last time I was given it I spent the next 6mths sorting out...

I've had the call for my Spring covid booster, but unfortunately I can't have Sp...

Kendrew

•3 days ago

23 Replies

Can you help regarding symptoms?

Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't...

Full disclosure here. My ability to determine my health status is lacking. I eit...

FreeWolf

•3 days ago

10 Replies

Change of treatment

Hi all. Been on prednisone since 2017, trying to come of them several times, last time after seeing Rhemy last Sept who didnt feel I had PMR and was keen for...

Hi all. Been on prednisone since 2017, trying to come of them several times, la...

SRIXON

•3 days ago

12 Replies

Holiday at last!

Well, finally made it to Isle of Wight, despite delaying one day owing to apprehension. Drove camper-van for first time in 6 months. So glad I went. Change of...

Well, finally made it to Isle of Wight, despite delaying one day owing to appreh...

random901

•3 days ago

26 Replies

Back @ work full time and slowly recovering

I haven’t posted in a couple of months and wanted to share how my recovery has been going. Aged 52, I was diagnosed with PMR in Aug-23. I was put on 15mg of...

I haven’t posted in a couple of months and wanted to share how my recovery has b...

SpaghettiWestern99

•3 days ago

13 Replies

update

Seen rheumatologist yesterday, he doesn’t believe it’s GCA but had bloods taken and arranged an urgent MRI brain just for reassurance due to previous bleed in...

Seen rheumatologist yesterday, he doesn’t believe it’s GCA but had bloods taken ...

Numptybrain

•3 days ago

6 Replies

First rheumatologist vist

Hi not been on for a while first got advised by a dr in early 2023 i had pmr also i have fm i fought like mad not to take meds purely selfish...

Hi not been on for a while first got advised by a dr in early 2023 i had pm...

loukh

•3 days ago

16 Replies

Tapering experience

Hi All, I haven’t posted for a couple of months but have been reading the site everyday and gaining valuable information while trying to come to terms with...

Hi All, I haven’t posted for a couple of months but have been reading the site ...

Specialised

•3 days ago

19 Replies

how to handle a flare

I am doing great no pain..I’m down to 7-1/2mg from 20mg with slow taper. 1/2 mg a month over 8 mths but this week my doctor says drop to 6mg from 7-1/2...

I am doing great no pain..I’m down to 7-1/2mg from 20mg with slow taper. ...

Januzzi

•3 days ago

7 Replies

Cough, chest pressure, GCA

I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment...

I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of...

Moaningxcat

•4 days ago

15 Replies

Flare management

Having been down to 0.5mg of pred for 2 months I’m now experiencing what I assume is my first flare (after nearly 4 years of PMR). This is probably due to a...

Having been down to 0.5mg of pred for 2 months I’m now experiencing what I assum...

Dorothy61

•4 days ago

7 Replies

Advice please

I posted lately of shoulder pain but the pain seems to be in upper arms more than joints.Lowerback sore, across shoulders thumbs and wrists Had upped pred to...

I posted lately of shoulder pain but the pain seems to be in upper arms more th...

daisylazy

•4 days ago

13 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Flare after Moderna Spikevax jab

Stomach problems and steroids - where next

Glasgow support group

Reaction to Denosumab injection

Welcome to our new members - May 2024

Unrelated PMR question, but asking for a desperate friend in need …

Is it a flare or something else?

After 2 days Prednisone feeling good already.

Moderna Vaccination

where do I begin

Info re another Auto Immune malady. Parkinson's

Trigger finger (and toes)

Turmeric and a Flare and Drama + Thoughts

Still suffering

Skin problems at low dose

Pmr , Rs3pe

Stopping Alendronic Acid

Is this a flare ?

No Cominarty Vaccine!!

Can you help regarding symptoms?

Change of treatment

Holiday at last!

Back @ work full time and slowly recovering

update

First rheumatologist vist

Tapering experience

how to handle a flare

Cough, chest pressure, GCA

Flare management

Advice please

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