Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,311 members • 38,047 posts

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Mild Adrenal response?

On Saturday I was feeling cold, I mean seriously cold, shivering, feet freezing, walking around with fur slippers and thick cardigan. It was a coldish day,...

On Saturday I was feeling cold, I mean seriously cold, shivering, feet freezing,...

Sophiestree

•3 hours ago

7 Replies

Hi, just wanted to introduce myself and say hello

Hi, having been diagnosed with PMR in March and joining this fantastic forum around the same time, I’ve finally got round to completing my profile! I am an...

Hi, having been diagnosed with PMR in March and joining this fantastic forum aro...

GRB8

•4 hours ago

10 Replies

Resuming tapering after a sick day week

Hello, and thank you for your advice. I am nearly at the end of a week on antibiotics for cellulitis during which I increased pred from 3mg to 8. The PMR has...

Hello, and thank you for your advice. I am nearly at the end of a week on antib...

calibriel

•5 hours ago

2 Replies

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Trip to the Er/ED

A day or 2 ago, I wrote in about experiencing vertigo. I tried the Epley Maneuver on myself, and have not had any more episodes of such extreme, dramatic...

A day or 2 ago, I wrote in about experiencing vertigo. I tried the Epley Maneuve...

Lenore58

•7 hours ago

1 Reply

Had a blood test this morning - email results this evening!

I ask my Dr last week for a blood test to see what my CRP is. I have been struggling overt the last 2 weeks. Pain and fatigue on many days. My CRP...

I ask my Dr last week for a blood test to see what my CRP is. I have been strug...

IdasMum

•18 hours ago

6 Replies

1978? - 2023?

If you're having a bad day, just thought this might cheer you up a bit. I think we can all relate to a couple of these! 😄

If you're having a bad day, just thought this might cheer you up a bit. I think ...

Kendrew

•20 hours ago

21 Replies

Incidence of Large Vessel Vasculitis in late diagnosis of PMR

When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for them but I have to admit to feeling a degree of envy. My diagnosis arrived...

When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for t...

123-go

•20 hours ago

25 Replies

Possible new treatments for PMR and GCA?

Thanks for the info on your blog. I’ve just rejoined as CANUKUS. I’ve had GCA and PMR for about 11 years now. All I’m taking that’s directly related to...

Thanks for the info on your blog. I’ve just rejoined as CANUKUS. I’ve had GCA...

Canuk

•23 hours ago

2 Replies

Osteopenia treatment

I had had a DEXA scan recently . My last scan was 2 years ago. The scan has shown significant osteopenia with a T-score of -2.4 in the femoral neck. The...

I had had a DEXA scan recently . My last scan was 2 years ago. The scan has sho...

Belfastman

•1 day ago

11 Replies

NEED for SURGERY

presently on daily 12mg preds for PMR; osteoporosis; severe lumbar scoliosis and bone on bone diagnosis that cannot be treated with facet joint injections. Has...

presently on daily 12mg preds for PMR; osteoporosis; severe lumbar scoliosis and...

Bennijax

•1 day ago

7 Replies

GCA, tinnitus etc

has anyone been diagnosed with pulsatile tinnitus, to do with GCA. I have buzzing in one ear 24/7 which comes & goes with vibrations in head. I have now...

has anyone been diagnosed with pulsatile tinnitus, to do with GCA. I have buzz...

CavalierKC3

•1 day ago

28 Replies

Steroid tapering

Hi , can l just ask the collective wisdom of this forum about tapering please? When l was put on Pred 15mgs Gp said l was to take that dose for 4 weeks then...

Hi , can l just ask the collective wisdom of this forum about tapering please? ...

bde987

•1 day ago

4 Replies

Vaccinations and tapering

Hello everyone, hoping for advice from you knowledgeable, lovely people. I’m on 15 mgs of Prednisolone, 20mgs am and 5mgs pm, tapering by 1mg every 2 weeks if...

Hello everyone, hoping for advice from you knowledgeable, lovely people. I’m on ...

Tribie

•1 day ago

11 Replies

What time should I take my Pred before hospital procedure with anaesthetic

Good morning everyone I am having surgery on my leg with anaesthetic tomorrow morning & will be admitted at 7am with no food to be taken after 2am only sips of...

Good morning everyone I am having surgery on my leg with anaesthetic tomorrow mo...

JEMOK

•1 day ago

8 Replies

GCA? or something else?

Yesterday was an even more stressful day than most others. I had worked, as I usually do, for about 4 hours online, when I got a twinge of a headache in my...

Yesterday was an even more stressful day than most others. I had worked, as I u...

agingfeminist

•2 days ago

40 Replies

tear in my meniscus cartilage

What a difference two weeks can make. Two weeks ago I you asked if I should attempt a taper to try to force my adrenals to wake up. The circumstances were...

What a difference two weeks can make. Two weeks ago I you asked if I should att...

jinoadby

•2 days ago

9 Replies

Been while since posting, I am completely perfect now, no PMR at all.

I take no meds for PMR and I have no PMR pains at all. Last time I went to Rheumatologist was in like Feb, and since I was fine, I told them I no longer...

I take no meds for PMR and I have no PMR pains at all. Last time I went to Rheu...

sdowney717

•2 days ago

6 Replies

giant Cell

I’m off Prednisone and on Actemra only now. I inject it once a week. Lately been feeling a little light headed and woozy. My blood pressure is fine!

I’m off Prednisone and on Actemra only now. I inject it once a week. Lately bee...

LRevell

•2 days ago

3 Replies

Ozempic?

Has anyone used, or discussed with thier doctor, taking Ozempic to help with the weight gain from predizone?

Has anyone used, or discussed with thier doctor, taking Ozempic to help with the...

fairtree

•2 days ago

35 Replies

1st Isle of Wight support group meeting 8th May

Hi everyone, if you're based on the Isle of Wight, our new support group there has set up its first meeting for 7.30pm on Weds 8th May at Newport...

Hi everyone, if you're based on the Isle of Wight, our new support group there h...

Fran_Benson

Partner•2 days ago

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Steroid reduction

Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood test last week and was told normal . Don't know what normal is as the past few...

Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood ...

kathyrob

•2 days ago

22 Replies

Severe mental reaction to prednisolone

As you can see if you read my profile I have spent almost the whole of the last 4 months struggling with a long list of frightening mood changes which have and...

As you can see if you read my profile I have spent almost the whole of the last ...

tinlid

•2 days ago

38 Replies

Is this why MTX works for some and not for others?

Another interesting article from my inbox today! I'm sure you are all aware of the excitement about the gut microbiome and also that some people get a good...

Another interesting article from my inbox today! I'm sure you are all aware of t...

PMRpro

Ambassador•2 days ago

9 Replies

Breathless

HelloHas anyone noticed more breathlessness when on higher dose Predisilone?

Teddy23

•2 days ago

5 Replies

Here is a new idea: "The Patient Knows Best ..."

There are doctors, rheumatologists even, who have confirmed something we often suspect: The patient may well know what they need better than their doctor. And...

There are doctors, rheumatologists even, who have confirmed something we often ...

PMRpro

Ambassador•2 days ago

29 Replies

throbbing ribs

Hi I have been completely off steroids since September 2023 for GCA. However I have developed throbbing joints especially in the evenings mainly in my ribs but...

Hi I have been completely off steroids since September 2023 for GCA. However I h...

Marley12b

•2 days ago

4 Replies

Another pred cautionary tale

After yesterday's discussion, I heard from my friend last night that her friend who's had pmr for just over a year, had just come off her pred. She'd started...

After yesterday's discussion, I heard from my friend last night that her friend ...

diana1998

•2 days ago

4 Replies

Tapering Guidelines

Currently on 25mg Pred. Where can the best 'official' tapering guidelines be found. Seeing GP in a weeks time and would like to be prepared.

Currently on 25mg Pred. Where can the best 'official' tapering guidelines be fou...

tonyevans48

•2 days ago

6 Replies

Adrenal fatigue?

I have been suffering the most dreadful fatigue and breathlessness recently with gentle exercise such as walking. I can go to work OK, I'm a plumber and...

I have been suffering the most dreadful fatigue and breathlessness recently with...

Trainy

•3 days ago

34 Replies

lower dose prednisone

Update Took a call from respiratory nurse an hour ago. My respiratory consultant and rheumatologist have had a discussion and decided to keep me on 10 mg of...

Update Took a call from respiratory nurse an hour ago. My respiratory consultan...

Numptybrain

•3 days ago

5 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Mild Adrenal response?

Hi, just wanted to introduce myself and say hello

Resuming tapering after a sick day week

Trip to the Er/ED

Had a blood test this morning - email results this evening!

1978? - 2023?

Incidence of Large Vessel Vasculitis in late diagnosis of PMR

Possible new treatments for PMR and GCA?

Osteopenia treatment

NEED for SURGERY

GCA, tinnitus etc

Steroid tapering

Vaccinations and tapering

What time should I take my Pred before hospital procedure with anaesthetic

GCA? or something else?

tear in my meniscus cartilage

Been while since posting, I am completely perfect now, no PMR at all.

giant Cell

Ozempic?

1st Isle of Wight support group meeting 8th May

Steroid reduction

Severe mental reaction to prednisolone

Is this why MTX works for some and not for others?

Breathless

Here is a new idea: "The Patient Knows Best ..."

throbbing ribs

Another pred cautionary tale

Tapering Guidelines

Adrenal fatigue?

lower dose prednisone

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