Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,920 members • 39,408 posts

All posts for August 2024

Low dose Naltrexone

Has anyone tried this to help get off PREDNISONE?

Darcy2000

•3 days ago

8 Replies

Fighting for every 1/4 mg drop I get.

Been on pred since 2015. Never was on high doses except one time for pulmonary issues, after the flu shot, when high prednisone doses 40,30,20,10 lasted...

Been on pred since 2015. Never was on high doses except one time for pulmonary i...

Karenjaninaz

•3 days ago

10 Replies

Ro actemera to Tyenne

Hi I’ve done my first Tyenne tocilizumab today . Has anyone else on here been changed over to this??

Hi I’ve done my first Tyenne tocilizumab today . Has anyone else on here been ch...

Devoid

•3 days ago

3 Replies

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Just wondering how many have had negative temporal artery biopsy?

Hello, I just got my results from temporal artery biopsy for suspected GCA and it says that it was negative. I will still be going to the Cleveland Clinic...

Hello, I just got my results from temporal artery biopsy for suspected GCA an...

RiviS7

•3 days ago

20 Replies

Shingles Vaccine

I’m in that inbetween age ie 67 in February 2024 hence now have to wait for the new vaccine while younger people get it before me. I wondered if we would be...

I’m in that inbetween age ie 67 in February 2024 hence now have to wait for the ...

NuttyR

•3 days ago

41 Replies

Broke My Clavicle

Hi Everyone, I went on a bike ride yesterday. My front wheel hit something and I fell. Scrapes, and broken clavicle. Bad timing, as I am planning my...

Hi Everyone, I went on a bike ride yesterday. My front wheel hit something and ...

Lenore58

•3 days ago

5 Replies

Does anyone have s3vere hip and leg pain?

I was diagnosed with PMR in March of this year. The Prednisone is worse than the affliction.

I was diagnosed with PMR in March of this year. The Prednisone is worse than the...

Beetoven

•3 days ago

1 Reply

Genuine Energy Boost

I would be interested to know if anyone has found a genuine energy boost? be it food or drink. Having been pretty fit, healthy and taking part...

I would be interested to know if anyone has found a genuine energy boost? be it...

Golf-1

•3 days ago

38 Replies

Statins and gluteal muscle pain

following a discussion here about statins and muscle pain I’ve had a gp appointment. She agrees the pain could be either PMR, spinal issues ( I had lumbar...

following a discussion here about statins and muscle pain I’ve had a gp appointm...

HelenDaisy

•3 days ago

12 Replies

Blurry Eyes

Anyone tapering down from high doses of prednisone have a little trouble with blurry vision? I will be seeing my eye doc as I’m not sure if the pred changed...

Anyone tapering down from high doses of prednisone have a little trouble with bl...

lizg0017

•3 days ago

29 Replies

Tooth extraction

I am having a tooth out at the dentist at midday and haven't been looking forward to it. I am on 3mg Pred and reading the post about the broken tail bone -...

I am having a tooth out at the dentist at midday and haven't been looking forwar...

Pippah45

•3 days ago

21 Replies

Thought This was an Interesting Read Re Long Covid and Low Cortisol

https://www.msn.com/en-gb/health/other/long-covid-symptoms-may-stem-from-low-cortisol-and-altered-brain-immune-response/ar-AA1p4e4A?ocid=socialshare&PC=EMMX101...

https://www.msn.com/en-gb/health/other/long-covid-symptoms-may-stem-from-low-cor...

Bcol

•3 days ago

4 Replies

weight loss

I was on 2.5 mg of prednisone for 2 years. I have now tapered successfully to zero. Is it normal to drop weight when off,?

I was on 2.5 mg of prednisone for 2 years. I have now tapered successfully to z...

GinnyMa

•4 days ago

4 Replies

pain in hands and wrists

I recently developed very sore and very stiff fingers and wrists, particularly bad in the morning. The pain is debilitating and tends to ease off during the...

I recently developed very sore and very stiff fingers and wrists, particularly b...

bBarnabus

•4 days ago

8 Replies

Down to 25 mg Prednisone from 30, Feel Terrible

Hello, I tapered my prednisone from 30 mg to 25 mg on August 11. I felt great on Thursday and Friday last week. Since then, not so great… I am experiencing...

Hello, I tapered my prednisone from 30 mg to 25 mg on August 11. I felt great o...

Moaningxcat

•4 days ago

6 Replies

Kevzara (Sarilumab) article in todays Daily Mail about woman with PMR

For anyone interested there’s a full page article in todays Daily Mail about a woman’s experience with PMR/GCA (See above). Sarilumab (Kevzara) is mentioned...

For anyone interested there’s a full page article in todays Daily Mail about a w...

Tiggy70

•4 days ago

7 Replies

Flares

Could someone clarify for me what a flare is exactly. I’ve been on this forum for a couple of years and value all your help . Am now on 1.5 mgs reducing very...

Could someone clarify for me what a flare is exactly. I’ve been on this forum fo...

Bedwell

•4 days ago

15 Replies

New problem

I slipped on wet steps last Monday and broke my tailbone. I saw the orthopedic PA, and she advised me to stop prednisone for a few weeks. She said it could...

I slipped on wet steps last Monday and broke my tailbone. I saw the orthopedic P...

Aqua47

•4 days ago

51 Replies

Good news?

A full page article in the Mail today re PMR & a possible new treatment…trials being done by Dr. Dasgupta. Sorry I can’t post a link but have attached a photo...

A full page article in the Mail today re PMR & a possible new treatment…trials b...

Lyndaki

•4 days ago

11 Replies

PMR, Statins, something else - what is causing my muscle pain and weakness?

Given the discussion Statins and PMR that is ongoing on the forum...

PMRpro

Ambassador•4 days ago

1 Reply

prednisolone

hi I am currently taking 10 mg per day due soon to taper to 9mg. For some reason I have run out of 5mg and only have supplies of 1mg. I have a prescription on...

hi I am currently taking 10 mg per day due soon to taper to 9mg. For some reason...

Jakey67

•4 days ago

10 Replies

Update on Dr visit..

Hi all....went to Dr's to discuss my blood results.....White cell high, neutrophils high and platelets high....he said quite honestly he has no idea why they...

Hi all....went to Dr's to discuss my blood results.....White cell high, neutroph...

Tescohednesford

•4 days ago

3 Replies

Consultation with Prof Rod Hughes

I had a private face to face consultation with Rod Hughes yesterday as I’ve been struggling recently with my PMR. I said I would report back to the forum on...

I had a private face to face consultation with Rod Hughes yesterday as I’ve been...

Tiggy70

•4 days ago

16 Replies

Article in today's paper about PMR

Someone called Jo Waters (doesn't say she is a Dr) has put a full page article in the Good Health section of the Daily Mail today, with input from Professor...

Someone called Jo Waters (doesn't say she is a Dr) has put a full page article i...

Purplegloss

•4 days ago

23 Replies

Emails

Good Morning Sorry to be a pain , I keep getting emails from Health Unlocked telling me I need to change my password Sorry I don't know if I have missed...

Good Morning Sorry to be a pain , I keep getting emails from Health Unlocked tel...

Vide

•4 days ago

9 Replies

Steroid injection in foot

I wonder if anyone else has had this experience? I have had PMR for 4 years and struggling to get below 5 mg. I have had a few minor flares just this year so...

I wonder if anyone else has had this experience? I have had PMR for 4 years and...

LMali

•4 days ago

8 Replies

Not sure if increased pain is due to dosage or timing…

I wrote recently about tapering on a split dose and received excellent advice re how to taper and also changing the timing of my second dose as I was...

I wrote recently about tapering on a split dose and received excellent advice re...

Tribie

•4 days ago

13 Replies

Drop down in pred

Hi all Sorry to bother you again, last week I posted about having to up my pred as thought maybe a flare, had been on 12 and half for about 6 weeks, went up...

Hi all Sorry to bother you again, last week I posted about having to up my pred...

Mumdadlove

•5 days ago

4 Replies

DXA scan results

After having Polymyalgia for over 11 years and happy to stay around on 5mg Prednisolone a day. My Doctor concerned, asked for a DXA scan. I was told your...

After having Polymyalgia for over 11 years and happy to stay around on 5mg Predn...

DavidMF

•5 days ago

13 Replies

PMR.. Osteoarthritis...

I went to a rheumatologist... first let me say I have been on prednisone for nearly 8 years. and have been under 5 for much of it. I was at 2mg. went down, and...

I went to a rheumatologist... first let me say I have been on prednisone for nea...

yogabonnie

•5 days ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2024

Low dose Naltrexone

Fighting for every 1/4 mg drop I get.

Ro actemera to Tyenne

Just wondering how many have had negative temporal artery biopsy?

Shingles Vaccine

Broke My Clavicle

Does anyone have s3vere hip and leg pain?

Genuine Energy Boost

Statins and gluteal muscle pain

Blurry Eyes

Tooth extraction

Thought This was an Interesting Read Re Long Covid and Low Cortisol

weight loss

pain in hands and wrists

Down to 25 mg Prednisone from 30, Feel Terrible

Kevzara (Sarilumab) article in todays Daily Mail about woman with PMR

Flares

New problem

Good news?

PMR, Statins, something else - what is causing my muscle pain and weakness?

prednisolone

Update on Dr visit..

Consultation with Prof Rod Hughes

Article in today's paper about PMR

Emails

Steroid injection in foot

Not sure if increased pain is due to dosage or timing…

Drop down in pred

DXA scan results

PMR.. Osteoarthritis...

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