Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,920 members • 39,408 posts

All posts for August 2024

Update on Rheumatologist and Right Hand pain

I had my third face to face consultation with Rheumatologist this week and 2 things were decided which might be of interest to others with the same problem....

I had my third face to face consultation with Rheumatologist this week and 2 thi...

Golf-1

•21 days ago

2 Replies

Adrenal fatigue- Great informative video

Below is a link to a great video. It explains in simple terms everything to do with adrenal fatigue. Signs, symptoms, tests & helpful remidies. Hope you...

Below is a link to a great video. It explains in simple terms everything to do ...

Naim1

•21 days ago

39 Replies

Flare protocol and how to manage it.

Flare protocol and how to manage it.I was doing so well on 5mg prednisolone when in the 6th week, a horrid flare hit me affecting my mobility like never...

Flare protocol and how to manage it.I was doing so well on 5mg prednisolone when...

waltztherapy

•21 days ago

9 Replies

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Diabetes, pre-diabetes and a low carb diet

We bang on about cutting carbs when on pred and I thought you might be interested in this article about extremely low carb diets and reversing diabetes and...

We bang on about cutting carbs when on pred and I thought you might be intereste...

PMRpro

Ambassador•21 days ago

17 Replies

Nitrofurantoin - good or bad?

Not sure that this is posted in the best place, but I don't seem to be able to access any other links atm. I have been prescribed this antibiotic for traces...

Not sure that this is posted in the best place, but I don't seem to be able to a...

gillsky8

•21 days ago

12 Replies

increasing my prednisone

hello, I have reduced to 2mg from 12.5 october23 I have been ok, up until the last two weeks, my back pain has returned, and it’s getting worse, doctor gave me...

hello, I have reduced to 2mg from 12.5 october23 I have been ok, up until the la...

Startrek123

•21 days ago

6 Replies

Private Rheumatology Appointment

HiI have been suffering from what I believe may be a type of Vasculitis but having no luck getting a diagnosis on the NHS. My DR referred me to Rheumatology...

HiI have been suffering from what I believe may be a type of Vasculitis but havi...

Hidden

•21 days ago

3 Replies

ESR and CPR results

Good morning all I am currently on 12.5mg pred, I have just had some blood tests done at my surgery to take to my next review appt with Rod Hughes, advised by...

Good morning all I am currently on 12.5mg pred, I have just had some blood test...

Mumdadlove

•21 days ago

6 Replies

Rheumatology visit and prednisone reduction

Before I went to the doctor this morning, I knew how much better I felt. That was even though I sat up for two hours in the middle of last night listening to a...

Before I went to the doctor this morning, I knew how much better I felt. That wa...

Grammy80

•22 days ago

9 Replies

Sore mouth and tongue with GCA

Quick question....anybody else experience a sore tongue and roof of mouth and gums with GCA? Along with mild numbness on lip and cheek area and the usual...

Quick question....anybody else experience a sore tongue and roof of mouth and gu...

Bummed24

•22 days ago

9 Replies

60mgs to 40 mgs of Pred after 10 days, what to expect?

Hi All, AS a newbie wondered if I should expect anything nasty from a reduction from 60 to 40 after being on 60 for 10 days? Prior to that was coming down...

Hi All, AS a newbie wondered if I should expect anything nasty from a reduction...

Fatsiajaponica

•22 days ago

4 Replies

Olympic inspiration for resting!

Interesting article in The Globe and Mail this week about Canadian swimmer Summer McIntosh, who has won two medals (so far!) this week in Paris. The article...

Interesting article in The Globe and Mail this week about Canadian swimmer Summe...

Bunchberry

•22 days ago

6 Replies

i seemed to have lost the ability to remember how to use the site

I’m extremely stressed out and I’m not coping very well my tribunal is Monday and I can’t focus on anything :-( I am looking for the post of information on...

I’m extremely stressed out and I’m not coping very well my tribunal is Monday an...

Pol53

•22 days ago

18 Replies

Has infection caused flare?

I have Depomedrone injections for PMR every four weeks because I cannot take oral Pred..I had just tapered down to 40mg from 60 (I started on 120 and tapering...

I have Depomedrone injections for PMR every four weeks because I cannot take ora...

Countrykitten

•22 days ago

20 Replies

Suttonsea

Developed PMR after being mis diagnosed for about 2weeks(phone triage) back end of May this year. Eventually prescribed Prednisolone and put on the NICE...

Developed PMR after being mis diagnosed for about 2weeks(phone triage) back end ...

Suttonsea

•22 days ago

26 Replies

Incidentals on CT, Rheumatologist problem

Good morning, I was looking over the report on my PET/CT scan recently that I had in 11/22. On it, it says about the PMR. It also says that I had a soft...

Good morning, I was looking over the report on my PET/CT scan recently that I h...

Bramble2000

•22 days ago

14 Replies

Feeling pathetic...

Sitting at the hospital in the midst of a synacthen test and feeling sorry for myself. So I thought I'd vent on here to a group of lovely folk who understand...

Sitting at the hospital in the midst of a synacthen test and feeling sorry for m...

CygnusX1

•22 days ago

13 Replies

denosumab (Prolia/Pred

Hi allI went for my bone scan last week and unfortunately osteoporosis has been diagnosed. My GP has suggested the injection denosumab (Prolia,) injection...

Hi allI went for my bone scan last week and unfortunately osteoporosis has been ...

Den73

•22 days ago

31 Replies

change of mind from GP on blood in urine and possible UTI.

Messaged via e consult to GP and she has had change of mind prescribing Fosfomycin one sachet for UTI. However then had another message to say that she had...

Messaged via e consult to GP and she has had change of mind prescribing Fosfomyc...

gillsky8

•23 days ago

11 Replies

Feeling tired and low

Having been diagnosed with PMR a few years ago and starting on 15mg I was pleased the report to my rheumatologist that I had reduced to 2mg a day and she wrote...

Having been diagnosed with PMR a few years ago and starting on 15mg I was please...

Pinkcuffs

•23 days ago

8 Replies

Welcome to our new members - Aug 2024

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to ...

Fran_Benson

Partner•23 days ago

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How long is it safe to increase pred by 5 mgs then drop back to 4 mgs

well Im not repeating story, Im sure all are getting tired of moans and groans, but as Im having MRI done on both hips this Sat, and couldnt tolerate pain last...

well Im not repeating story, Im sure all are getting tired of moans and groans, ...

arvine

•23 days ago

8 Replies

To be or not to be Immuno-suppressed? That is the Question!

Since the covid vaccination program began, I've very deliberately had every single booster offered....7 in total. I've always felt that protecting myself from...

Since the covid vaccination program began, I've very deliberately had every sing...

Kendrew

•23 days ago

37 Replies

Feeling a bit down and lonely today so logged on here to connect with 'my (PMR) tribe'even though I should be doing other things

UPDATE thank you so much everybody who's responded for all your kind words of encouragement and support and practical tips. I'm trying to answer everyone...

UPDATE thank you so much everybody who's responded for all your kind words of en...

tangocharlie

•23 days ago

201 Replies

new here, looking for advice

Hi, I’m new to this group but was pointed here by someone in the Thyroid group. I’m looking for some advice please. so I’m a 48 year old female that was...

Hi, I’m new to this group but was pointed here by someone in the Thyroid group. ...

Margiepargie

•23 days ago

43 Replies

Prednisolone cured the initial pain in my legs and thighs but deep ache in my thighs & calves persists after 8 months. What can I expect ?

I am a reasonably healthy 72 year old, a retired Physicist/Engineer and before the PMR used to cycle and swim daily. I live with my wife in a house built in...

I am a reasonably healthy 72 year old, a retired Physicist/Engineer and before ...

byebyebicycle

•23 days ago

13 Replies

What to Tell People

Quite recently there was a thread giving ideas of how to explain PMR to other people easily. I cannot find it and would be grateful if someone could remind me...

Quite recently there was a thread giving ideas of how to explain PMR to other pe...

FleetRose

•23 days ago

7 Replies

"Intetesting conversation with Endocrinologist!"

Got a phone call just now from endocrinology, my cortisol test at GP' surgery was 1 56, she said that's good, it shows things are working....I am on...

Got a phone call just now from endocrinology, my cortisol test at GP' surgery w...

Longtimer

•23 days ago

62 Replies

How much is too much exercise?

This is probably an impossible question to answer but I'm curious to know how to judge how much exercise to take, having just read a reply to someones query...

This is probably an impossible question to answer but I'm curious to know how to...

syashaw

•23 days ago

10 Replies

Well, I just took 60 mg of prednisone~Wednesday night in the States~

After five years, on June 27, I got to zero pred, though I am continuing Actemra. It was July 26 when I started having a headache, which over the next few days...

After five years, on June 27, I got to zero pred, though I am continuing Actemra...

Grammy80

•24 days ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2024

Update on Rheumatologist and Right Hand pain

Adrenal fatigue- Great informative video

Flare protocol and how to manage it.

Diabetes, pre-diabetes and a low carb diet

Nitrofurantoin - good or bad?

increasing my prednisone

Private Rheumatology Appointment

ESR and CPR results

Rheumatology visit and prednisone reduction

Sore mouth and tongue with GCA

60mgs to 40 mgs of Pred after 10 days, what to expect?

Olympic inspiration for resting!

i seemed to have lost the ability to remember how to use the site

Has infection caused flare?

Suttonsea

Incidentals on CT, Rheumatologist problem

Feeling pathetic...

denosumab (Prolia/Pred

change of mind from GP on blood in urine and possible UTI.

Feeling tired and low

Welcome to our new members - Aug 2024

How long is it safe to increase pred by 5 mgs then drop back to 4 mgs

To be or not to be Immuno-suppressed? That is the Question!

Feeling a bit down and lonely today so logged on here to connect with 'my (PMR) tribe'even though I should be doing other things

new here, looking for advice

Prednisolone cured the initial pain in my legs and thighs but deep ache in my thighs & calves persists after 8 months. What can I expect ?

What to Tell People

"Intetesting conversation with Endocrinologist!"

How much is too much exercise?

Well, I just took 60 mg of prednisone~Wednesday night in the States~

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