Pred increase

[Clucket]

Having increased my dose as you advised for another 5 days, I wonder what I should do if I still feel like I did before, when I go back to the lower dose. Is it normal to feel the lack of pred for a few days as it gets back to normal or should the extra 5mg of pred have stopped that from happening. I still don't feel brilliant, and I can feel I am still stressed. I am not sure what to do if the lack of pred feelings get worse when go back down as I have always felt better previously after the extra 5 mg. Do I stick it out for 5 days to see and if so, what then if no better? Hope you can advise me.

[DorsetLady PMRGCAuk volunteer]

So have you been at higher dose for 10 days now?.. and how do feel now? if nor still as well as you think you should be - as said before you can stay at that dose for UP TO 14 days in total.. so maybe try that.

As for how you will feel when you drop back down I don't think anyone can tell you that.. but you have a better chance id you drop down in two steps.... with a week at the interim dose..

[Clucket in reply to DorsetLady]

So I could spent 14 days at +5 then another 7 days with plus 2.5? Would that mean I could still drop down with no probs after that? It isn't too long at a higher dose?

[DorsetLady PMRGCAuk volunteer in reply to Clucket]

No that should be okay…. We often recommend a ‘staging post’ approach to getting back down - especially in a case like yours. Not all flares are the same…and it’s a softer way of reducing ..then stay put at lower dose and hope things settle.

[PMRpro Ambassador]

Bear in mind too that the former dose might not be enough - go back to a lightly higher one anyway.

[Clucket]

Thanks ladies. I will carry on as you have suggested with the extra 5 for a few days more. I think things are improving a bit now, but not there yet. Thanks as always for your help, it is most appreciated.