Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,479 members • 38,442 posts

All posts for January 2024

Flare or Adrenal Crisis

During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in...

During the Christmas period I had a series of very stressful situations , includ...

Belfastman

•5 months ago

10 Replies

I'm in trouble

Sorry to post again, but I am in a very bad way. I am on the 40mg dose of prednisone, and the headaches are getting worse. The pain in my jaws is so bad, I...

Sorry to post again, but I am in a very bad way. I am on the 40mg dose of predni...

Harrisonboy

•5 months ago

43 Replies

Phased return

Started my phased return this week morning's only and at home has still been very challenging finding it hard to remember processes and I have to meet with an...

Started my phased return this week morning's only and at home has still been ver...

Helliwelli12

•5 months ago

28 Replies

Want to take advantage of all our features? Just log in!

Big shout out to Tango Charlie - Patient Participation Event

You might all remember TangoCharlie asking for ideas for her talk to a large group of Health Care professionals last week. I was there today and have to say...

You might all remember TangoCharlie asking for ideas for her talk to a large gro...

Coffeebeans

•5 months ago

14 Replies

Advice required

Hello, This is my first post but i have been an avid reader every day and have learned so much. I was diagnosed having PMR in September 2023 by my GP who...

Hello, This is my first post but i have been an avid reader every day and have l...

Cooper02

•5 months ago

54 Replies

Exeter Support Group?

I was diagnosed with GCA in October and have received good care from my local GP surgery here in Moretonhampstead, but I would like to meet fellow sufferers to...

I was diagnosed with GCA in October and have received good care from my local GP...

Tanpopo

•5 months ago

20 Replies

Another day of conflicting advice

Having reduced slowly to 3.25, I had the horrid flu virus with a possible GCA flare with headache similar to the pre diagnosis ones, unbelievable fatigue and...

Having reduced slowly to 3.25, I had the horrid flu virus with a possible GCA fl...

Temoral

•5 months ago

2 Replies

PMR flare, how much pain?

First, happy new year to the community Have not posted in a while, but wondering what a PMR flare feels like, how much pain should you expect vs something...

First, happy new year to the community Have not posted in a while, but wonderi...

Gilmor

•5 months ago

18 Replies

carbs on Prednisolone?

Hi Just been diagnosed with GCA Been prescribed Prednisolone 50 mg for 6 weeks by GP and referred to a Specialist I saw a brief comment about avoiding carbs...

Hi Just been diagnosed with GCA Been prescribed Prednisolone 50 mg for 6 weeks ...

Gca629

•5 months ago

9 Replies

I’m sure I’ve now got GCA

I was suspected of having GCA 16 months ago when I was diagnosed with PMR ,but the biopsy I had after being on 100 mg of pred for two weeks proved negative. I...

I was suspected of having GCA 16 months ago when I was diagnosed with PMR ,but ...

Shaza123

•5 months ago

13 Replies

Prednisolone

Just been prescribed prednisolone started taking yesterday, could anyone tell me how long it takes to feel less pain? Thanks

Just been prescribed prednisolone started taking yesterday, could anyone tell me...

Mistyfied

•5 months ago

98 Replies

Elbow

Has anyone had an operation on the elbow that has rheumatoid arthritis? If so has it helped or not?

Has anyone had an operation on the elbow that has rheumatoid arthritis? If so h...

65_women

•5 months ago

1 Reply

Extreme fatigue

I have been taking Prednisone since October of 2020- 80 mg for GCA. I am now down to 10 1/5 mg.In between I was diagnosed with PMR. It has been a very hard...

I have been taking Prednisone since October of 2020- 80 mg for GCA. I am now dow...

Miacaro45

•5 months ago

15 Replies

mixing coated and uncoated pred

I have now been issued with EC 5mg pred. I have many 1mg uncoated. I’m midway through a taper from 10mg to 9mg. I’ve been told that it is ok mix the 2 types....

I have now been issued with EC 5mg pred. I have many 1mg uncoated. I’m midway th...

Lclmlbls

•5 months ago

5 Replies

High inflammation

I’ve been caring for my husband for months with things becoming progressively difficult. Fortunately he now has personal medical care. Since Christmas my...

I’ve been caring for my husband for months with things becoming progressively di...

Nippersmum

•5 months ago

10 Replies

Pneumonia Vaccine

I was talking to a very friendly Doctors wife yesterday who works on his admin and we talked about the amount of people suffering and in some cases...

I was talking to a very friendly Doctors wife yesterday who works on his admin a...

Ridge

•5 months ago

5 Replies

Flare or not.

I've read all the advice about flares on the FAQ but just wondered if by increasing the dose by 5mg and it doesn't work do I assume it is some other problem.

I've read all the advice about flares on the FAQ but just wondered if by increas...

daisylazy

•5 months ago

3 Replies

Strange nightime happenings

This only happened a couple of times when I was particularly stressed and since I stopped Prednisolone completely three months ago. I found I could not settle...

This only happened a couple of times when I was particularly stressed and since ...

TheMoaningViolet

•5 months ago

10 Replies

Recovery from GCA -regaining stamina, diminishing fatigue

The title of this post is a hope. Has anyone out there recovered from GCA and regained their stamina? Are you living your life through what your head wants to...

The title of this post is a hope. Has anyone out there recovered from GCA and re...

Bluey-1

•5 months ago

15 Replies

Advice Required

hello I’m looking after my elderly uncle. His wife passed on and shortly after that event he was diagnosed with PMR. He’s had it 3 & half years now. He’s...

hello I’m looking after my elderly uncle. His wife passed on and shortly after...

Daisypeta1

•5 months ago

17 Replies

Full adrenal function at 3 mg?

I am pretty sure that I am getting some adrenal function at 3 mg prednisone. I am more energetic than I was at 7 mg when my adrenals were presumably largely...

I am pretty sure that I am getting some adrenal function at 3 mg prednisone. I a...

soreoldbiker

•5 months ago

7 Replies

Research into GCA and its effects on patients: The EULAR/ACR Response Criteria for GCA

Hi everyone, there is an international team (including Dr Sarah Mackie, Prof Bhaskar Dasgupta to name just two) working on a project looking at patients’...

Hi everyone, there is an international team (including Dr Sarah Mackie, Prof Bha...

Fran_Benson

Partner•5 months ago

28 Replies

imurel

hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off steroids. The pains in my head have mostly gone and I am...

hi I was started on imurel in November alongside 10mgs prednisol. with a view t...

NormaB

•5 months ago

8 Replies

Appointment with Rheumatologist

Hello, I had an appointment with my rheumatologist yesterday. It was by phone at my request. He gave me TWO MINUTES!! During those two minutes he said,...

Hello, I had an appointment with my rheumatologist yesterday. It was by phone a...

Bramble2000

•5 months ago

19 Replies

diarrhoea, sickness and stomach pain

This is not something I normally suffer with so wondering if adrenals waking up might cause this? If not then the pate I had on Friday night was the culprit.

This is not something I normally suffer with so wondering if adrenals waking up ...

Golf-1

•5 months ago

19 Replies

Actemra and diverticulitis- a link?

First, thank you all for being there, and being so knowledgeable and helpful. I’ve been on Actemra for about 6 months, am still on 17.5 prednisolone and have...

First, thank you all for being there, and being so knowledgeable and helpful. ...

Japsquar

•5 months ago

10 Replies

Dexa Scan

Just looking for a bit of advice. I have been on Pred since Oct 21 and have tapered down to 5mg. One of the reasons I have not tried to reduce further is...

Just looking for a bit of advice. I have been on Pred since Oct 21 and have tape...

Booklover21

•5 months ago

7 Replies

Urgent dental appointment for pain may need molar extraction should I increase steroids

I have reduced to 1mg prednisolone since October did take extra 1mg for a number of days over Christmas period as had to deal with a stressful situation and do...

I have reduced to 1mg prednisolone since October did take extra 1mg for a number...

carport

•5 months ago

11 Replies

DRENCHING NIGHT SWEATS

Hi all. It's 3 AM here in Nova Scotia and I'm having yet another night sweat. Everything drenched. Even pillow. This is ongoing for about 2 weeks. Awakens me....

Hi all. It's 3 AM here in Nova Scotia and I'm having yet another night sweat. Ev...

Missus835

•5 months ago

27 Replies

Basal Cortisol Test Result

I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results...

I have recently had a basal cortisol test and my serum cortisol level is 296 nmo...

Floridafan

•5 months ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2024

Flare or Adrenal Crisis

I'm in trouble

Phased return

Big shout out to Tango Charlie - Patient Participation Event

Advice required

Exeter Support Group?

Another day of conflicting advice

PMR flare, how much pain?

carbs on Prednisolone?

I’m sure I’ve now got GCA

Prednisolone

Elbow

Extreme fatigue

mixing coated and uncoated pred

High inflammation

Pneumonia Vaccine

Flare or not.

Strange nightime happenings

Recovery from GCA -regaining stamina, diminishing fatigue

Advice Required

Full adrenal function at 3 mg?

Research into GCA and its effects on patients: The EULAR/ACR Response Criteria for GCA

imurel

Appointment with Rheumatologist

diarrhoea, sickness and stomach pain

Actemra and diverticulitis- a link?

Dexa Scan

Urgent dental appointment for pain may need molar extraction should I increase steroids

DRENCHING NIGHT SWEATS

Basal Cortisol Test Result

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive