Thank you all so much for your posts. Lots of useful info and humour. Loved the Dolly Parton story.
I am very grateful to have found people on the same journey as me who 'Get it'
When I fell out of the blue and fractured my hip in August 2022 I thought I would never recover but two surgeries and some complications later I was doing better. Then to be felled this August by a GCA/PMR diagnosis out of the blue I doubted I had the strength to continue despite having had 3 months of PTSD counselling.
The steroids while not at all what I would have chosen do seem to have given me back some sense of myself so even though I am still housebound and on some days very immobile I have felt up to reaching out and finding others with similar experience. It is hard when you are on your own and despite good family, friends, neighbours and carers they dont' really understand why one day I can walk and the next day I can't. I am sure others know what I mean when I say its soul destroying and it also changes how you see yourself and sadly how everyone sees you.
Our exchanges over hair of all things have cheered me immensely. Its not just the condition we have to adapt to its all the drug side effects and I rattle now in the morning and have to keep a chart to remember everything!
Having always had very straight hair I am wondering if I will get curls? I am certainly in to hats and scarves although have never considered a wig at least not yet........
Thank you all
Prednisone and hair loss
Methotrexate Hair Loss
Magic help for hair loss and thinning hair.
Hair changes with PMR.
Hair loss from prednisone?
