Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2023

Doctor reinstated infusions every 4 weeks instead of 8

I recently commented that my rheumatologist said I’m in remission. After 6 weeks of my last infusion. I started to get dull headaches and ear pain. I waited...

I recently commented that my rheumatologist said I’m in remission. After 6 weeks...

nallufl24

•6 months ago

21 Replies

Should I take daily prednisone dose before CRP test?

I seem to be having a PMR flare. I am getting a CRP and Sed Rate test today and wondered if I should withhold my prednisone dose until after I have the test?...

I seem to be having a PMR flare. I am getting a CRP and Sed Rate test today and ...

Donna5658

•6 months ago

22 Replies

Ampoule opener

I am trying to buy a 2ml ampoule opener. Can someone out there help me please.I have a 1ml one only, Thank you

I am trying to buy a 2ml ampoule opener. Can someone out there help me please.I ...

Chocolate41

•6 months ago

4 Replies

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Glandular Fever virus and PMR?

Hello everyone, Does anyone know if the Glandular Fever virus could be linked with PMR? I contracted GF and Hepatitis B of the Liver in 2005, it took me 3...

Hello everyone, Does anyone know if the Glandular Fever virus could be linked w...

MalloryMoss

•6 months ago

14 Replies

Swollen painful hand

I've had PMR for 2 years. Was started on 40 mg of prednisone. I have slowly gotten down to 13 mg. Recently I tapered to 12 mg but have not felt very well &...

I've had PMR for 2 years. Was started on 40 mg of prednisone. I have slowly gott...

noslak

•6 months ago

15 Replies

PMR Leading to Fibromyalgia???

I was diagnosed with PMR in Dec 22 and have been on a rollercoaster of Prednisolone doses From 20mg-0mg in the first 6 months, which I feel are part of my...

I was diagnosed with PMR in Dec 22 and have been on a rollercoaster of Prednisol...

Schrodie

•6 months ago

80 Replies

not getting communications

help not getting any communications since update my email is marthamarinelli@yahoo.com

help not getting any communications since update my email is marthamarinelli@yah...

M1222

•6 months ago

9 Replies

Omeprazole and Gastroscopy

I have been having digestive issues since May, lots of indigestion, acid reflux, belching etc. It comes and goes, sometimes good, sometime not, I would say I...

I have been having digestive issues since May, lots of indigestion, acid reflux,...

Basilpie

•6 months ago

13 Replies

Update on split dose

Thanks for the numerous replies to my last post. Picked up a lot of useful information and tried the split dose which improved things a lot. After a week on...

Thanks for the numerous replies to my last post. Picked up a lot of useful infor...

Richard170356

•6 months ago

2 Replies

Newbie

I started having neck stiffness which then went to shoulders and then stiffness all over. Im 61, but used to be very flexible. I went to docs who did blood...

I started having neck stiffness which then went to shoulders and then stiffness ...

pastamaid

•6 months ago

28 Replies

Post viral stuff!!

I'm just sat here wondering......because I don't have the energy to do anything else!!!!....whether or not I have a post viral flare! Is that even a thing? My...

I'm just sat here wondering......because I don't have the energy to do anything ...

altywhite

•6 months ago

8 Replies

Omeprazole ...side effects...

Update of last post...all now settled thank you.Regarding omeprazole...spoke to GP this morning for steroid script, and asked if I still needed to take...

Update of last post...all now settled thank you.Regarding omeprazole...spoke to ...

Temoral

•6 months ago

8 Replies

Sick day rules,or not

This question has been asked lots of time but can't find any answers, may have COVID if positive do I do sick day rules or wait and see, thanks HW x

This question has been asked lots of time but can't find any answers, may have C...

Harrywogan

•7 months ago

3 Replies

Where PMR affects

Just in case it helps anyone. On a recent visit to my rheumatologist I asked exactly how PMR creates pain and stiffness and does it affect the joints, muscles...

Just in case it helps anyone. On a recent visit to my rheumatologist I asked exa...

marionofnorwich

•7 months ago

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accidentally took too little pred

as the title says- yesterday I took too small a dose. I’m on 10 again coming down from a flare. Yesterday morning I thought I’d taken 2 x 5mg tablets but today...

as the title says- yesterday I took too small a dose. I’m on 10 again coming dow...

CarnationLily

•7 months ago

5 Replies

Got back lots of lab results from rheumy visit today. CRP dropped from 100 in Feb to 6.8

Doing very well too, feel good. I feel I am over PMR or on the downhill side of this. Still at zero prednisone for more than a week.

Doing very well too, feel good. I feel I am over PMR or on the downhill side of ...

sdowney717

•7 months ago

8 Replies

Where should I go from here? Reduced by doc from 6 Pred to 2 and now suffering

Having been told by 3 doctors to try to get off Prednisolone so I could be assessed by specialist at hospital (as no doctor felt able to confirm I really had...

Having been told by 3 doctors to try to get off Prednisolone so I could be asses...

CupcakeGalore

•7 months ago

2 Replies

getting desperate

I was diagnosed with PMR two months ago and advised to take 20mg. This dose increased my BP and doc reduced to 5mg. I had a really bad day last week and...

I was diagnosed with PMR two months ago and advised to take 20mg. This dose inc...

834527

•7 months ago

29 Replies

% of patients getting off steroids in 2 years?

I’m due a medication review so can someone please remind me of the percentages for 2, 3 and 4 years for getting off Pred? Young GPs in training are told...

I’m due a medication review so can someone please remind me of the percentages f...

Exflex

•7 months ago

17 Replies

adrenals

please help , I am feeling really unwell ,dizzy , feel sick ,mentally very low,upset stomach,lost weight ,waking up after 4 hours sleep ,anxiety of the...

please help , I am feeling really unwell ,dizzy , feel sick ,mentally very low,u...

Amilee

•7 months ago

13 Replies

Flare up

Over the last year I was in hospital for 6 months Arterial leg ulcer treated with angio to clear artery, then maggots and dressing. Ulcer still there with...

Over the last year I was in hospital for 6 months Arterial leg ulcer treated wi...

Jocelyn344

•7 months ago

3 Replies

Advice on taking Naproxine with Pred

As I flagged up last week - was diagnosed with Bursitis on the right hip. X-ray was done and no fractures found which was such a relief. Prescribed Naproxine...

As I flagged up last week - was diagnosed with Bursitis on the right hip. X-ra...

Motida

•7 months ago

6 Replies

Lanzaprozole and magnesium deficiency

Hi all, I was diagnosed with GCA in 2018. With the help and support of this group I came through some tough times, and will always be grateful for that. After...

Hi all, I was diagnosed with GCA in 2018. With the help and support of this grou...

Dontwannabesick

•7 months ago

2 Replies

Adrenals

Morning everyone. This is my first post on here. I was diagnosed with GCA in August 2022 and have been tapering down the Prednisolone to 5mg. I also take...

Morning everyone. This is my first post on here. I was diagnosed with GCA in Aug...

Noni71

•7 months ago

7 Replies

sick day rules.

So I asked for advice recently as I thought the PMR had flared when I got to 5.25mg Pred. I had played around with upping my dose but then on advice here I...

So I asked for advice recently as I thought the PMR had flared when I got to 5.2...

Slosh

•7 months ago

14 Replies

Intermittent pain in left temple while tapering

I am using DL’s tapering schedule and am down to 4.5 mg. Recently I have started having some dull pain in my left temple that comes and goes. It is never...

I am using DL’s tapering schedule and am down to 4.5 mg. Recently I have started...

Donna5658

•7 months ago

8 Replies

Adrenal Crisis or a Flare?

Evening all, I've been a casual observer for many months now - my PMR was 'gone' (ie in remission/on holiday/not troubling me) and I had adjusted to Adrenal...

Evening all, I've been a casual observer for many months now - my PMR was 'gone...

Cyclo5

•7 months ago

22 Replies

Woke up feeling sore!

I’ve been diagnosed nearly 1 year next month and have been tapering from 15mgs with not much success, however I’ve managed to get to 9mgs using the flow...

I’ve been diagnosed nearly 1 year next month and have been tapering from 15mgs w...

Mercat

•7 months ago

18 Replies

PET scat

thank you all for your replies. It’s been very helpful.

NormaB

•7 months ago

Be the first to reply

GCA speaicalists in Malaga Region

We are looking for proper care for my Mother who has GCA living near Torrox and Nerja Malaga Region, would anyone have a good contact for good specialists /...

We are looking for proper care for my Mother who has GCA living near Torrox and ...

DianaAdshead

•7 months ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2023

Doctor reinstated infusions every 4 weeks instead of 8

Should I take daily prednisone dose before CRP test?

Ampoule opener

Glandular Fever virus and PMR?

Swollen painful hand

PMR Leading to Fibromyalgia???

not getting communications

Omeprazole and Gastroscopy

Update on split dose

Newbie

Post viral stuff!!

Omeprazole ...side effects...

Sick day rules,or not

Where PMR affects

accidentally took too little pred

Got back lots of lab results from rheumy visit today. CRP dropped from 100 in Feb to 6.8

Where should I go from here? Reduced by doc from 6 Pred to 2 and now suffering

getting desperate

% of patients getting off steroids in 2 years?

adrenals

Flare up

Advice on taking Naproxine with Pred

Lanzaprozole and magnesium deficiency

Adrenals

sick day rules.

Intermittent pain in left temple while tapering

Adrenal Crisis or a Flare?

Woke up feeling sore!

PET scat

GCA speaicalists in Malaga Region

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