Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2023

After double up pred. Forgot taper guidance

Soda law again .OH been in hospital twice in one week .stroke and then viral infection high temp .trying to deal with it whilst I got covod.i forgot whether...

Soda law again .OH been in hospital twice in one week .stroke and then viral in...

Livlife1972

•8 months ago

5 Replies

Support Groups in Cumbria

Hi All I am aware with growing membership of the group that for some people getting to meetings in Kendal area is not feasable for a variety of reasons. (...

Hi All I am aware with growing membership of the group that for some people ge...

Estellemac

•8 months ago

7 Replies

rheumatologist

please give me the name of the best or most trusted rheumatologist. Thanks. M

Massey35

•8 months ago

11 Replies

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Anyone on Hydroxychloraquine (HCQ) for PMR?

I've been taking Hydroxychloraquine (HCQ) for about 10-12 months I think, maybe a bit longer. At the beginning of the year I was on 22.5-25 mg Pred and had...

I've been taking Hydroxychloraquine (HCQ) for about 10-12 months I think, maybe ...

tangocharlie

•8 months ago

30 Replies

Tapering

I was diagnosed with PMR in April 2023 by my GP. He put me on 15mg of pred reducing to 10 mg after 3 weeks. I had instant relief once I started to take pred....

I was diagnosed with PMR in April 2023 by my GP. He put me on 15mg of pred reduc...

Glassbox

•8 months ago

10 Replies

experience with Tocilizumab

I have Gca and have now been prescribed weekly injections of Tocilizumab (self administered). Lately I have found that should I be exposed to sunlight I have...

I have Gca and have now been prescribed weekly injections of Tocilizumab (self a...

Mgpa

•8 months ago

9 Replies

Plantar fasciitis

I might have yet another inflammatory condition: sudden agonising heel and sole of foot pain. I think I've been ignoring it, but boy is it in the fore front of...

I might have yet another inflammatory condition: sudden agonising heel and sole ...

HelenDaisy

•8 months ago

48 Replies

Tapering, when will PMR resurface

I am tapering and wondering how long it usually takes for PMR to pop back up if it is going to. In other words, if I have been on a reduced dose for 4 weeks,...

I am tapering and wondering how long it usually takes for PMR to pop back up if ...

emmamom

•8 months ago

5 Replies

Reducing methotrexate

I am due to see my rheumatologist next week and thought I would see what the wonderful, knowledgeable people on this forum think first. My last appointment...

I am due to see my rheumatologist next week and thought I would see what the won...

Bluesew

•8 months ago

7 Replies

Methotrexate-induced lung disease

Towards the end of last year I was hospitalised for about a week with a dry cough/breathlessness that turned out to be Methotrexate-induced Interstitial Lung...

Towards the end of last year I was hospitalised for about a week with a dry coug...

JanetRosslyn

•8 months ago

12 Replies

Reevaluation for Diagnosis

Went to rheumatologist on Friday, dragged myself in with so much pain and lethargy. I was reduced from 20 mg to 0 in six days after being on prednisone for...

Went to rheumatologist on Friday, dragged myself in with so much pain and lethar...

3dogsheidi

•8 months ago

9 Replies

prednisolone withdrawal.

I posted earlier but not sure if it’s been seen. I went down from 7.5mg yesterday to 7mg ( every four weeks) by pm i developed tenderness on head. I have been...

I posted earlier but not sure if it’s been seen. I went down from 7.5mg yesterda...

lennysmummy

•8 months ago

4 Replies

Relapse plus UTI

I took my 'last' quarter mg of prednisone in April this year, after four years of PMR. In the months since then have been plagued with constant colds etc...

I took my 'last' quarter mg of prednisone in April this year, after four years o...

Tiredcat

•8 months ago

10 Replies

prednisolone withdrawal

Hi I dropped from 7.5mg to 7 yesterday and by late afternoon tender area on scalp started. I know that it’s been said before that if this happens straight away...

Hi I dropped from 7.5mg to 7 yesterday and by late afternoon tender area on scal...

lennysmummy

•8 months ago

13 Replies

Next Pred reduction

I reduce to 17.5 Pred tomorrow for ,2 weeks and then my GP takes the prescription over and now organised. Eye appointment on Wednesday I think the catheract...

I reduce to 17.5 Pred tomorrow for ,2 weeks and then my GP takes the prescriptio...

Doublef

•8 months ago

8 Replies

Please explain abbreviations!

Can someone tell me what BC and DF mean? Is there somewhere on this site to explain abbreviations to someone new? I started my first taper, down from 10 mg...

Can someone tell me what BC and DF mean? Is there somewhere on this site to exp...

Paulagcl

•8 months ago

14 Replies

Covid and steroid increase

I’m sure this has been answered before so apologies. I have Covid and on 2.75mg of steroids. Should I increase for few days or should I see how it goes?...

I’m sure this has been answered before so apologies. I have Covid and on 2.75mg...

Rosina1871

•8 months ago

9 Replies

Colouring Hair

has anyone lost hair when taking Prednisolone. When it was growing back did you have it coloured. If yes, did the colour take ok & was hair damaged at all by...

has anyone lost hair when taking Prednisolone. When it was growing back did you...

CavalierKC3

•8 months ago

63 Replies

Zero pred retreating into the unreachable future?

You know how when you are approaching something very large in the distance it seems you'll never reach it because the brain has perceived it as being much...

You know how when you are approaching something very large in the distance it se...

HeronNS

•8 months ago

64 Replies

Prednisone to Hydrocortisone

My last visit to my rheumatologist she recommended I see an endocrinologist because my most recent Dexa scan (2022) hadn’t improved from my last one (2020)....

My last visit to my rheumatologist she recommended I see an endocrinologist beca...

1951grumpa

•8 months ago

13 Replies

Sack of tatties

Hi,on holiday just now in Portugal for a month of winter sun, and yes I can here you say lucky me, don't to 2 and half mg pred and feeling ok, but will we ever...

Hi,on holiday just now in Portugal for a month of winter sun, and yes I can here...

Harrywogan

•8 months ago

35 Replies

sarge 45

suffering from pred withdrawal symptoms How long does it take for my body to return to normal Am off of pred but probably came off too quickly

suffering from pred withdrawal symptoms How long does it take for my body to r...

sarge45

•8 months ago

12 Replies

Advice needed

On my final week of slow taper 1mg to 1/2mg then I am going to do another 5weeks to get me from half to zero.Last Tuesday I woke up fine but by mid morning I...

On my final week of slow taper 1mg to 1/2mg then I am going to do another 5weeks...

Deneez99

•8 months ago

5 Replies

On slow drop but having back pain again. Pred withdrawal or DOMS.

Started on prednisolone in March 2019 and pmr was managed well, apart from needing to go up a little after vaccinations. The bi valent covid booster in Oct '22...

Started on prednisolone in March 2019 and pmr was managed well, apart from needi...

Ebiker

•8 months ago

18 Replies

Adrenals

I'm at 9.5mg of pred at the moment. A pituitary tumour resulted in damage to it in that my adrenals were affected to produce cortisol, hence PMR developed 3.5...

I'm at 9.5mg of pred at the moment. A pituitary tumour resulted in damage to it ...

choirsinger1986

•8 months ago

11 Replies

Vaccinations

After all I have been through in the last few weeks the thought of subjecting myself to potentially more trauma with going to the appointment for the Covid and...

After all I have been through in the last few weeks the thought of subjecting my...

EdithWales

•8 months ago

21 Replies

RITUXIMAB

HI I HAVE PMR AND MY ANTIBODIES ARE THROUGH THE ROOF. IT HAS CAUSED MY KIDNEY READING TO DROP TO 11% FUNCTION. THE KIDNEY CONSULTANT HAS DECIDED THAT MY...

HI I HAVE PMR AND MY ANTIBODIES ARE THROUGH THE ROOF. IT HAS CAUSED MY KIDNEY ...

eyeBRing

•8 months ago

7 Replies

Eat beans and scratch your back

Good morning everyone, I hope it’s ok to post this. It’s not directly related to PMR but is a lovely article on how to age well both inside and out. The...

Good morning everyone, I hope it’s ok to post this. It’s not directly related...

Pangolin43

•8 months ago

11 Replies

Does anyone take pantoprazole with MtX?

During this weekend I have had a bad pain in my esophagus. I get that from time to time, probably due reflux caused by the prednisolone and PMR, as it is...

During this weekend I have had a bad pain in my esophagus. I get that from time ...

krillemy

•8 months ago

3 Replies

Gum Sensitivity on Prednisone

I am on 40 mg of prednisone for GCA. Does Prednisone cause gum sensitivty and brittle nails? My gums now bleed easily. They never did before CGA. Always had...

I am on 40 mg of prednisone for GCA. Does Prednisone cause gum sensitivty and br...

Groda

•8 months ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2023

After double up pred. Forgot taper guidance

Support Groups in Cumbria

rheumatologist

Anyone on Hydroxychloraquine (HCQ) for PMR?

Tapering

experience with Tocilizumab

Plantar fasciitis

Tapering, when will PMR resurface

Reducing methotrexate

Methotrexate-induced lung disease

Reevaluation for Diagnosis

prednisolone withdrawal.

Relapse plus UTI

prednisolone withdrawal

Next Pred reduction

Please explain abbreviations!

Covid and steroid increase

Colouring Hair

Zero pred retreating into the unreachable future?

Prednisone to Hydrocortisone

Sack of tatties

sarge 45

Advice needed

On slow drop but having back pain again. Pred withdrawal or DOMS.

Adrenals

Vaccinations

RITUXIMAB

Eat beans and scratch your back

Does anyone take pantoprazole with MtX?

Gum Sensitivity on Prednisone

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