Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,489 members • 38,458 posts

All posts for September 2023

Travel

Morning all, hope you can help me , I'm travelling to Kenya in November I've just seen on the government website that if your taking steroids ie prednisolone...

Morning all, hope you can help me , I'm travelling to Kenya in November I've jus...

Kazm04

•8 months ago

9 Replies

Tooth extraction and tocilizumab

Hi I am going to have to have a tooth extraction....dentist says chance of jaw necrosis from tocilizumab and I wonder if anyone has had this ....I know from...

Hi I am going to have to have a tooth extraction....dentist says chance of jaw n...

WaltzG

•8 months ago

4 Replies

What to do for the stiffness.

Coming up on 4 years since I was diagnosed with PMR and GCA. I have tapered to 2 mg of Prednisone daily. Labs are all good. The stiffness is not going away....

Coming up on 4 years since I was diagnosed with PMR and GCA. I have tapered to 2...

Cgt1151

•8 months ago

21 Replies

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Anyone for ginger? Role suggested in autimmune disorders

"New research reveals that ginger supplements may offer a promising approach to managing inflammation in individuals with autoimmune conditions. As a natural...

"New research reveals that ginger supplements may offer a promising approach to ...

PMRpro

Ambassador•8 months ago

49 Replies

Polymyalgia and Norovirus

Hi Over the last few days I have had a very unpleasant dose of Novovirus. Though the worst of it has been over for a day or two I still have a energy sapping...

Hi Over the last few days I have had a very unpleasant dose of Novovirus. Thoug...

townlands

•8 months ago

10 Replies

Covid infection initiating PMR flareup

I have tested positive for Covid.. it has initiated a PMR flare-up. Gp suggested increasing prednisolone for 3 or 4 days to 13mg, I had reduced to 9mg. Then...

I have tested positive for Covid.. it has initiated a PMR flare-up. Gp suggested...

attempttocycycle

•8 months ago

15 Replies

Omeprazole as we taper pred....?

I started on 40mg pred 2 years ago for GCA.Now on the DSNS taper and have currently reached 3.75 going to 3.5. Can I now start to reduce omeprazole, or replace...

I started on 40mg pred 2 years ago for GCA.Now on the DSNS taper and have curren...

Temoral

•8 months ago

23 Replies

VERTEBROPLASTY OP WENT FINE - SO FAR, SO GOOD

I did not have the luxury of asking anesthesiologist about Pred dose as there wasn't one present. I was awake for the entire procedure and op nurse...

I did not have the luxury of asking anesthesiologist about Pred dose as there wa...

Missus835

•8 months ago

14 Replies

Daily posts have stopped

Hi all, I've not had a post from healthunlocked for last 2 days.

vangelis8

•8 months ago

12 Replies

Flying with Tocilizumab

Talk about last minute....looking for reassurance that airline won't confiscate meds at security. European flight. Got the cool bag but quick look in FAQ and...

Talk about last minute....looking for reassurance that airline won't confiscate ...

tweety_pie

•8 months ago

27 Replies

Steroid dependency and Prediabetes

so - - saw my GP about a raised HBA1c which means I am pre-diabetic and her advice about diet is useless as I TRULY could not reduce/exclude anything more, so...

so - - saw my GP about a raised HBA1c which means I am pre-diabetic and her advi...

MDT1

•8 months ago

70 Replies

Stopped taking prednisolone

My PMR journey started December 2019. As covid started soon afterwards and there was no support from the local surgery, Health Unlocked was an absolute...

My PMR journey started December 2019. As covid started soon afterwards and there...

Dorsetgirl17

•8 months ago

15 Replies

Latest Study Re Long Covid

Given the recent posts about the the next Covid vaccination boosters, I thought people might find thi interesting. BBC News - Long Covid: MRI scans reveal new...

Given the recent posts about the the next Covid vaccination boosters, I thought...

Bcol

•8 months ago

1 Reply

A vaccine for PMR?

This sounds almost too good to be true. But if it works for these other diseases, it might work for PMR, too....

This sounds almost too good to be true. But if it works for these other diseases...

papadapadoo

•8 months ago

8 Replies

email gone awol?

Just wondering why I haven’t received my daily read/fix from the forum. Have searched through junk mail but to no avail 🙁

Just wondering why I haven’t received my daily read/fix from the forum. Have sea...

Ana-16

•8 months ago

16 Replies

Surgery and Pred?

I am due to have a knee replacement fairly soon - I met someone else with PMR yesterday and she asked me whether I intended to increase my dose of Pred prior...

I am due to have a knee replacement fairly soon - I met someone else with PMR ye...

Miserere

•8 months ago

45 Replies

Update on Methotrexate side effects

Two weeks ago I posted - My Sister has just called me to say she is in such a bad way - she was diagnosed with PMR last year and has been taking Methotrexate...

Two weeks ago I posted - My Sister has just called me to say she is in such a b...

jules1955

•8 months ago

18 Replies

Hayfever or PMR?

My eyes have been red, sore and slightly swollen for the past few days. It's Spring here in Tasmania and we've had some windy days (which would blow pollen) ....

My eyes have been red, sore and slightly swollen for the past few days. It's Sp...

Louisa1840

•8 months ago

20 Replies

No Daily Digest this morning?

For the first time ever, my Daily Digest hasn't arrived. What am I going to read with my cornflakes?

For the first time ever, my Daily Digest hasn't arrived. What am I going to read...

Broseley

•8 months ago

26 Replies

Turmeric as antacid - as good as omeprazole maybe?

https://www.medicalnewstoday.com/articles/turmeric-may-effectively-reduce-stomach-acid-treat-indigestion?utm_source=Sailthru%20Email&utm_medium=Email&utm_campai

https://www.medicalnewstoday.com/articles/turmeric-may-effectively-reduce-stomac...

PMRpro

Ambassador•8 months ago

13 Replies

Vaccinations and GSA

Flu jab today but turned down covid vaccination, I just do not trust it. I have been so I'll these past 3 years, a friend has vivid for the eighth time, my...

Flu jab today but turned down covid vaccination, I just do not trust it. I have ...

Doublef

•8 months ago

12 Replies

Tapering well so far.

Down to 8 mgs methylpred. No probs so far. Going down to 6 tomorrow. I realize that this is more of a drop than recommended. I can raise and use both...

Down to 8 mgs methylpred. No probs so far. Going down to 6 tomorrow. I rea...

Merryfield

•8 months ago

9 Replies

Good article on GCA

Very easy to read...

winfong

•8 months ago

8 Replies

First biosimilar to tocilizumab approved in Europe

No idea if this also applies in the UK but the start of cheaper GCA medication is here! And European - it is a Swiss company. The patent for tocilizumab ran...

No idea if this also applies in the UK but the start of cheaper GCA medication i...

PMRpro

Ambassador•9 months ago

8 Replies

TCZ information please

Hi everyone! I have now been given the go ahead, for one year, to take TCZ. However I do have a few questions which the consultant couldn’t answer as ‘papers’...

Hi everyone! I have now been given the go ahead, for one year, to take TCZ. How...

PuttyPenguin

•9 months ago

44 Replies

Bedwell

has anyone used licorice to help adrenals when tapering? I am now on 3 fir 2 days. The 2 fir one day . Am absolutely exhausted .. been on 3 for over a month...

has anyone used licorice to help adrenals when tapering? I am now on 3 fir 2 day...

Bedwell

•9 months ago

23 Replies

Effect of a bad cold?

I was comfortably working my way down via DSNS from 8.5 to 8 when I caught a nasty cold (negative for covid). The morning pain in my shoulders became very...

I was comfortably working my way down via DSNS from 8.5 to 8 when I caught a nas...

papadapadoo

•9 months ago

6 Replies

A newbie question about vitamin D3

Before discovering compression fractures due to osteoporosis, I was taking various vitamin supplements. ( this is going to sound like I’m a hypochondriac, but...

Before discovering compression fractures due to osteoporosis, I was taking vario...

Indigo2417

•9 months ago

62 Replies

walking may be vascular problem

I thought I would update on my condition. I have managed to taper down to from 10 to 6mg pred this year having been set back by two cataract, covid and...

I thought I would update on my condition. I have managed to taper down to from ...

Pommygranny

•9 months ago

7 Replies

update, suspected kidney stones

diagnosed Tuesday by doctor and then consultant as ‘Muscle Spasms’ - treated with Diazapam, relief within a few hours and so far so good 🤞

diagnosed Tuesday by doctor and then consultant as ‘Muscle Spasms’ - treated wit...

Thiago1396

•9 months ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2023

Travel

Tooth extraction and tocilizumab

What to do for the stiffness.

Anyone for ginger? Role suggested in autimmune disorders

Polymyalgia and Norovirus

Covid infection initiating PMR flareup

Omeprazole as we taper pred....?

VERTEBROPLASTY OP WENT FINE - SO FAR, SO GOOD

Daily posts have stopped

Flying with Tocilizumab

Steroid dependency and Prediabetes

Stopped taking prednisolone

Latest Study Re Long Covid

A vaccine for PMR?

email gone awol?

Surgery and Pred?

Update on Methotrexate side effects

Hayfever or PMR?

No Daily Digest this morning?

Turmeric as antacid - as good as omeprazole maybe?

Vaccinations and GSA

Tapering well so far.

Good article on GCA

First biosimilar to tocilizumab approved in Europe

TCZ information please

Bedwell

Effect of a bad cold?

A newbie question about vitamin D3

walking may be vascular problem

update, suspected kidney stones

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