Four months after finishing pred and despite TCZ, I can now hardly move. Pain can only be expressed with the rudest possible words, as you all know, and sleep is difficult, . I've never got rid of the deathly fatigue. GP is writing to consultant to try to bring forward the next appointment and has given me morphine patches. I doubt they will do much.
He says he would put me back on steroids, but could not do so without the consultant's say-so.
However, tomorrow evening I am playing in a concert and I really want to do it. I also have a few pred 5s, 2.5s and 1s left. So the big temptation is to take some off my own bat in the hope of saving the concert.
Do you think this would be reasonable, and if so, how much?
Also, if PMR is making itself felt again, does this mean automatically that the GCA and LVV are probably cooking up as well?
Thanks for any opinions.🙂