Finally off Pred

[Suffererc]

Have not taken any Pred for 2 weeks. I feel good but very tired all the time. No pain related to PMR just a constant back ache for which I am to see a consultant 1 September. Paracetamol keeps under control.

Hopefully I have cracked it.

Thank you all for your help especially PMRpro and Dorset Lady and all for advice given. Will stay on the forum for a good while I expect.

Thank you all

[DorsetLady PMRGCAuk volunteer]

Good to hear, long may it continue -would say adrenals are still struggling so just make sure you continue to carry your steroid card -and few tablets on you in case you find yourself in a stressful situation and can take a dose if you need.

You need to remember your adrenals are not fully functioning so may not dash to your aid as normal.

Hopefully you won’t find yourself in that situation-but best to be prepared.

[Suffererc in reply to DorsetLady]

Thank you 😊

[PMRpro Ambassador]

Good - and hopefully it stays that way! Your adrenals will catch up properly sooner or later.

[Suffererc in reply to PMRpro]

Thank you 😊

[Wouldlovetorun]

That's wonderful news 😀 Congratulations!

🤗

x

[Suffererc in reply to Wouldlovetorun]

Thank you 😊

[Blearyeyed]

Well done for reaching Club Zero , it is one of those milestones.It's not surprising that you still feel tired , you may be off the medication but you are still in the recovery phase and it can a year to feel Completely like yourself again.

It's even more important while you are building back your strength to pace your activity , reduce stress. and gradually build up physical exercises to prevent the chance of triggering any pain issues , not just PMR/ GCA.

Good luck and take care , Bee

[Suffererc in reply to Blearyeyed]

Thank you 😊

[Rottsuzi]

That’s great , how long did it take for you to get off them ?

[Suffererc in reply to Rottsuzi]

Thankyou. 5.5 years. Could have perhaps been a bit soon, but had surgery and consultant said to stay on them. He put me on a high dose after op and I think that did it. Hopefully wiped out the PMR. GP wouldn’t let me go to a higher dose after a flare. So now all good 🤞🤞🤞😊

[PMRpro Ambassador in reply to Suffererc]

"Hopefully wiped out the PMR"

Unfortunately all the pred does is mop up the inflammation - it has no effect on the actual disease process at all as far as is known. That is an underlying autoimmune disorder where the immune system cannot recognise body as self so it attacks various body tissues as of they are foreign invaders. It does usually eventually burn out though.

[Rottsuzi in reply to Suffererc]

I’m 4 years in so hopefully it will burn out and we feel normal again 🤞

[TheMoaningViolet]

Good to hear that; I wish you continued good health. Do keep posting how you are feeling going forward. I am hoping to join you soon.

[Suffererc in reply to TheMoaningViolet]

Good luck. Feels good not to take pills. Thank you 😊

[Gossiplady]

Many congratulations ! But stay with us!

[Suffererc in reply to Gossiplady]

Thank you. Yes I intend to stay. Hopefully I won’t need your advice again but …….. 😊

[PMRCanada]

Your post gives me hope as I am 5+ years in myself. Hope you stay off pred but glad to hear you are sticking around.

[Blackcat1M]

Brilliant news please take care and best wishes for the future