Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2023

Farewell to prednisolone?

Diagnosed with PMR 6 years ago (though I'd already had it for 8 months), I've been tapering my prednisolone VERY slowly through the lower doses over the...

Diagnosed with PMR 6 years ago (though I'd already had it for 8 months), I've ...

skylark22

•1 year ago

53 Replies

Letterbox.

I do find this condition puzzling, you think you are getting a handle on it and then it jumps on you from another angle. Most of my difficulties with...

I do find this condition puzzling, you think you are getting a handle on it and ...

AncientMariner

•1 year ago

3 Replies

My first flare

Hi everyone Looking for some advice. I was diagnosed with PMR in December 2021 and started on 20mg Pred. By now I had tapered very successfully to 8mg and...

Hi everyone Looking for some advice. I was diagnosed with PMR in December 2021 ...

Booklist

•1 year ago

10 Replies

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methotrexate via injection

we’ll finally saw a rheumatologist to be told I have PMR and Osteoarthritis and Rheumatoid arthritis. I’m currently on 13 mg of pred and have now been given...

we’ll finally saw a rheumatologist to be told I have PMR and Osteoarthritis and ...

Shaza123

•1 year ago

19 Replies

Numbness in both feet

Numbness in both feet for the last 7 months....started prednisone about a year ago, Actemra weekly injection 13 weeks...are the numb feet due to prednisone or...

Numbness in both feet for the last 7 months....started prednisone about a year a...

Joseph14612

•1 year ago

16 Replies

Blurred vision

Hi all, I've been on pred for 9 months, currently stuck at 12mg, after big flare going from 11 down to 10mg.I experienced the foggy head at 15mg, but on...

Hi all, I've been on pred for 9 months, currently stuck at 12mg, after big fla...

Cromboy

•1 year ago

8 Replies

Doctors with borders

I have been trying to get an appt with an endocrinologist and didn’t realize it would be so dang hard. Finally my Rheumatologist wrote a referral and today I...

I have been trying to get an appt with an endocrinologist and didn’t realize it ...

Adoldfart

•1 year ago

7 Replies

GCA-Prednisolone withdrawal

I've posted recently about my PMR and GCA. Now I am going to run out of my prednisolone. Because my GP wanted me to reduce I did for about 10 days and then...

I've posted recently about my PMR and GCA. Now I am going to run out of my pred...

pomeranion

•1 year ago

17 Replies

Tender spot same place near top of head 4 days.

Hi me again. I have had a tenderness in one place near top of the head left side. I’m taking 20mg that my rheumatologist advised 2 weeks ago. Had my eyes all...

Hi me again. I have had a tenderness in one place near top of the head left side...

lennysmummy

•1 year ago

8 Replies

Immune System

You might enjoy this video about the immune system, and it's great to share with children as well. It's about 11 minutes long. If the link doesn't work, look...

You might enjoy this video about the immune system, and it's great to share with...

HeronNS

•1 year ago

9 Replies

please can someone advise is it a flare or withdrawal 🥴

good evening i think I have the same as you. I reduced down to 3.5mg from 4mg on the slow reduction,and six weeks in I got pain in my back on right hand side...

good evening i think I have the same as you. I reduced down to 3.5mg from 4mg on...

Maggie1313

•1 year ago

22 Replies

A tale of PMR, pred and DMARDs (azathioprine, methotrexate and leflunomide)

Lorna Neill is a leading member of the Scottish charity, taking her turn on their Helpline, and heavily involved in research in PMR and GCA alongside Prof...

Lorna Neill is a leading member of the Scottish charity, taking her turn on thei...

PMRpro

Ambassador•1 year ago

45 Replies

Is it posture? Cold? A flare? Or something else?

Hi lovely people 😊 I am sitting here feeling very weak and emotional, I think due to my recent and ongoing drop to 7.5mg. I’m in week 2 of a three week taper...

Hi lovely people 😊 I am sitting here feeling very weak and emotional, I think ...

Nextoneplease

•1 year ago

20 Replies

Steroid injection relief wearing off

Hey everyone, The relief I’ve felt over the last six weeks since I had a steroid injection is starting to wear off. I’ve had about a 50% reduction in...

Hey everyone, The relief I’ve felt over the last six weeks since I had a steroi...

Bramble2000

•1 year ago

23 Replies

muscle recovery

Can anyone point me in the direction of any studies done on muscle recovery after PMR? I have been off pred now since October, but am suffering terribly with...

Can anyone point me in the direction of any studies done on muscle recovery afte...

artisam

•1 year ago

62 Replies

don't understand,

Ive had PMR for 3 years, got down to 3mg steriod for ages, then had problems, so had to go up to 5mg, which i was on for once again ages, Doctor said time to...

Ive had PMR for 3 years, got down to 3mg steriod for ages, then had problems, ...

Harrigan

•1 year ago

7 Replies

non live shingles vaccine

I will be having my shingles vaccine soon (70 in May) - should I ask for non live vaccine - Shingrax? I take 6 mg of prednisolone a day - GP says live vaccine...

I will be having my shingles vaccine soon (70 in May) - should I ask for non liv...

Daffodilia

•1 year ago

23 Replies

Chicken Pox Exposure

I’m on 3.1 mg of Prednisolone for PMR. My son has just asked us to babysit our 18 month old granddaughter, who was vaccinated against Chicken Pox ( live...

I’m on 3.1 mg of Prednisolone for PMR. My son has just asked us to babysit ou...

Prahran

•1 year ago

4 Replies

Lasix is a new friend

Hi. This is for those who have had issues with swollen ankles and calves.... My ankles have been huge since I first started feeling bad. Not much relieved the...

Hi. This is for those who have had issues with swollen ankles and calves.... My ...

Wallysma

•1 year ago

2 Replies

PMR diagnosis 17 months ago

I have been diagnosed with PMR and wish to learn as much as possible on the journey to ' wellness '.

I have been diagnosed with PMR and wish to learn as much as possible on the jour...

ParoaPrimary

•1 year ago

6 Replies

Can’t walk. X-ray OK.

Good morning to my lifelines. To add to my saga of a 7 year struggle dealing with PMR 4 weeks ago I got out of bed and couldn’t bear weight on my left leg. The...

Good morning to my lifelines. To add to my saga of a 7 year struggle dealing wit...

Nightingales

•1 year ago

15 Replies

Blood Test Results

I am approaching my first anniversary with PMR and have read lots of interesting and helpful information on this Forum in the past twelve months. I have got...

I am approaching my first anniversary with PMR and have read lots of interesting...

Golf-1

•1 year ago

15 Replies

Update on Life, tooth infection, antibiotics and tapering.

Hi All! Sorry it's been a while. Life has been kind of crazy. I haven't been on here much due to working out some grief issues amongst a few things. My...

Hi All! Sorry it's been a while. Life has been kind of crazy. I haven't been on ...

catdance

•1 year ago

7 Replies

Drug trial for GCA

Curious - I hadn’t heard of IL-17 and it’s role as treatment for GCA. I am currently on Actemra which is an IL-6 inhibitor. Luckily, it seems like there is an...

Curious - I hadn’t heard of IL-17 and it’s role as treatment for GCA. I am curre...

Jumpe

•1 year ago

4 Replies

PMR pain after 10 years

I’ve still on 5 mg Pred after 10 years. Doctor has asked to see me as she says unusual to last this long. Taken me 2 years to drop to 7 as too much pain....

I’ve still on 5 mg Pred after 10 years. Doctor has asked to see me as she says ...

cassie1208

•1 year ago

13 Replies

adcal d3

Hi. Is there anyone that could help me. I have been trying the Adcal d3 for a couple of weeks. I make sure I only take with water. Mid pm so as not to upset...

Hi. Is there anyone that could help me. I have been trying the Adcal d3 for a co...

lennysmummy

•1 year ago

39 Replies

Flare again. Think I have not gone up enough. Stupid really. Should I up again now?

From previous posts you will see that I either flared or, as discussed on forum, that the bivalent jab reactivated my pmr in Dec. I had to up from 6.5mg to...

From previous posts you will see that I either flared or, as discussed on forum,...

Ebiker

•1 year ago

21 Replies

Welcome to our new members March 2023

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to ...

Fran_Benson

Partner•1 year ago

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FDA Approves Kevzara

For those of you that have been asking about Kevzara and have access to Medscape. https://www.medscape.com/viewarticle/988936

For those of you that have been asking about Kevzara and have access to Medscape...

rocketman42

•1 year ago

6 Replies

Long term effects of Pred on immune system

I have previously been a member of this community under another user name, but can no longer get into the account I have held since 2009! In summary, I was...

I have previously been a member of this community under another user name, but c...

AngelRain

•1 year ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2023

Farewell to prednisolone?

Letterbox.

My first flare

methotrexate via injection

Numbness in both feet

Blurred vision

Doctors with borders

GCA-Prednisolone withdrawal

Tender spot same place near top of head 4 days.

Immune System

please can someone advise is it a flare or withdrawal 🥴

A tale of PMR, pred and DMARDs (azathioprine, methotrexate and leflunomide)

Is it posture? Cold? A flare? Or something else?

Steroid injection relief wearing off

muscle recovery

don't understand,

non live shingles vaccine

Chicken Pox Exposure

Lasix is a new friend

PMR diagnosis 17 months ago

Can’t walk. X-ray OK.

Blood Test Results

Update on Life, tooth infection, antibiotics and tapering.

Drug trial for GCA

PMR pain after 10 years

adcal d3

Flare again. Think I have not gone up enough. Stupid really. Should I up again now?

Welcome to our new members March 2023

FDA Approves Kevzara

Long term effects of Pred on immune system

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