Department of Health Rare Diseases Action Plan

[Baner]

Saw this yesterday, don’t know if it will impact anyone with PMR but thought quite interesting read

gov.uk/government/news/engl...

[PMRpro Ambassador]

It should concern GCA patients which is a rare disease overall - but the most common vasculitis in the elderly. But somehow ...

[DorsetLady PMRGCAuk volunteer in reply to PMRpro]

Looks good on paper, but as we know the proof is in the implementation in practice.

[Baner in reply to DorsetLady]

My thoughts too, don’t know who these things get distributed to and how many would then read it thoroughly

[DorsetLady PMRGCAuk volunteer in reply to Baner]

Yes I think that’s the problem..and with the NHS under so much stress at present, there must be a lot of papers/recommendations that don’t get the attention they should.

No blame on individual staff, but there’s only so much information one person can take on board, and they are people, not machines.