Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,230 posts

All posts for January 2023

Flare probably caused by bivalent jab, ongoing side effects. Others with same experience? How long? Up the pred again?

In previous post I described what was a flare and had conversation with Pro and others. The +5mg did not sort the stiffness so decided it was not from...

In previous post I described what was a flare and had conversation with Pro and ...

Ebiker

•2 years ago

8 Replies

Erosive Gastritis Anyone - Prednisolone

Hello! Wonder if my trusty friends can help? I have been suffering with intolerable wind, bloating and diarrhoea for well over a year, with my...

Hello! Wonder if my trusty friends can help? I have been suffering with into...

Songbird69

•2 years ago

25 Replies

Tapering going well so far with a few hiccups

I have been kept very busy the last year and a half with a move to a state 1000 miles away from our dream home of 16 years. Now we are having to start over...

I have been kept very busy the last year and a half with a move to a state 1000 ...

Dydee

•2 years ago

34 Replies

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Going up & down with Pred - Steroids or pain? - Help!

I've now been on this forum for aprox 2 yrs, having being diagnosed with PMR 6 months prior) & it's been very useful but I haven't really joined emotionally....

I've now been on this forum for aprox 2 yrs, having being diagnosed with PMR 6 m...

Purpleprimate

•2 years ago

40 Replies

Back pain on one side

My husband, who has pmr, is now down to 6mg of pred and the pain is reasonably well-controlled. However, he has low back pain in a particular area on one side...

My husband, who has pmr, is now down to 6mg of pred and the pain is reasonably ...

BlueMozart

•2 years ago

11 Replies

D- Mannose strength

Happy New Year to you all. I have been reading the posts about UTI ‘s and the recommendations that D-Mannose is a good supplement for this condition....

Happy New Year to you all. I have been reading the posts about UTI ‘s and the ...

Lacelady

•2 years ago

32 Replies

GCA now PMR advice please

GCA 23 months down to 2. 5 no GCA symptoms for months. Have never had PMR symptoms. R shoulder impingement flare for last few months; bony spur - this...

GCA 23 months down to 2. 5 no GCA symptoms for months. Have never had PMR symp...

Viveka

•2 years ago

4 Replies

Cataracts

I haven't written for a while, but thought I'd share my positive experience with my cataract treatment. I had an eye test back in the Spring 2022, where the...

I haven't written for a while, but thought I'd share my positive experience with...

Jooster

•2 years ago

15 Replies

Positive posts?

I'm new here and all I read is horror, long treatments with pred side effects, relapses and moreWhere are the the ones like me? I got diagnosed in July this...

I'm new here and all I read is horror, long treatments with pred side effects, r...

Hidden

•2 years ago

51 Replies

Weaning problem

So I started on 60 mg pred back in August 22 for PMR and GCA in the US. Been up and down for months ....I am taking the 6th Actemra inj on Monday.... My...

So I started on 60 mg pred back in August 22 for PMR and GCA in the US. Been up ...

Joseph14612

•2 years ago

17 Replies

Never mind the adrenals, what about vitamin D?

Following my last post about trying to coax the adrenals out of their deep slumber and trying to stop Celcoxib, I saw the endocrinologist last week. Good and...

Following my last post about trying to coax the adrenals out of their deep slumb...

Cyclo5

•2 years ago

11 Replies

is this what a flare feels like ?

Started on 40mg back in beg oct 2022 after typical PMR /GCA symptoms. Been tapering since then pending my follow up rheumatology appt in a week, currently...

Started on 40mg back in beg oct 2022 after typical PMR /GCA symptoms. Been taper...

Cfmad298601

•2 years ago

8 Replies

Which pain killer

Which pain killer is the best to use? Paracetamol doesn't seem to work very well. My hips have been hurting a fair bit. I'm tapping down and my body doesn't...

Which pain killer is the best to use? Paracetamol doesn't seem to work very well...

Caulkhead63

•2 years ago

27 Replies

Figured out what back/side issues are BUT nothing works...

Hi all....hope 2023 is starting out with less pain. So I have struggled to find a dose of pred that works for me. While I have several autoimmune conditions...

Hi all....hope 2023 is starting out with less pain. So I have struggled to find...

Wallysma

•2 years ago

12 Replies

Rheumy increased pred from 4 to 40 mgs

So a couple o3f weeks ago, after having been down to 4 mgs of pred (after 6 yrs of pred started 40 in Oct 2016) started to get what appeared to be some GCA...

So a couple o3f weeks ago, after having been down to 4 mgs of pred (after 6 yrs ...

arvine

•2 years ago

6 Replies

thin eye tissue

just had my second vitrectomy in 6 months. during the op I could hear the surgeon say the retina was so thin a few times. I’ve just read on the eye drops...

just had my second vitrectomy in 6 months. during the op I could hear the surge...

Gardening2811

•2 years ago

3 Replies

something to make you smile I hope

Yesterday I got up at my usual time and went downstairs for breakfast. Tried to reply to a message and found I could hardly see the keys on my phone. My sight...

Yesterday I got up at my usual time and went downstairs for breakfast. Tried to ...

MrsPractical

•2 years ago

18 Replies

To taper Actemra or not?

Just wondering whether to take the Rheumy’s orders or follow my own instincts. I am still on 3-weekly injections of tocilizumab and have managed to taper the...

Just wondering whether to take the Rheumy’s orders or follow my own instincts. ...

LemonZest11

•2 years ago

22 Replies

Adrenals? What now?

After slowly getting down to 6 mg at the end of November, I got Covid, then had a flare. My rheumy had me bump up to 20, which seemed to take care of things,...

After slowly getting down to 6 mg at the end of November, I got Covid, then had ...

winfong

•2 years ago

8 Replies

Paul Hello

Thank you for your post

okydocky

•2 years ago

5 Replies

Cortesal test

For my latest blood test I was disappointed that the in normal Adrenal range of 8.0 ug/dl to 2.5 mine was 4.9 ug/dl back in Oct 2019 it was 8.8. I have been...

For my latest blood test I was disappointed that the in normal Adrenal range of ...

Southmead

•2 years ago

1 Reply

Any advice welcome.

Started lefunomide today. 10mg daily so low dose. How do I know if it is having an effect. Still on 25mg pred. Next reduction supposed to be 22,5mg. Hip, back...

Started lefunomide today. 10mg daily so low dose. How do I know if it is having...

cycli

•2 years ago

27 Replies

DEXA Scan

Morning all, just for a change a sunny start to the day, changing with a vengeance tomorrow though apparently. Anyway. I had a DEXA scan two years ago and the...

Morning all, just for a change a sunny start to the day, changing with a vengean...

Bcol

•2 years ago

21 Replies

Pmr to psoriatic arthritis

So had pmr for many years started on pred 25mg. Down to 3 back up to 8.Always had Psoriasis. Then 6 months ago swollen middle finger , more pain in wrist...

So had pmr for many years started on pred 25mg. Down to 3 back up to 8.Always ha...

Hageman

•2 years ago

20 Replies

Dosage and skin damage

It would be really helpful if folk were able to put up the dosage that they are on when communicating, I try to assess what is happening with so many awful...

It would be really helpful if folk were able to put up the dosage that they are ...

Singingkit

•2 years ago

36 Replies

Still on Pred after 11 yrs

I have been treated with steroids for 11 yrs for PMR 20 mgs to start. since then I have gone up and down from 7 mgs to 2 . 5 mgs several time. Always...

I have been treated with steroids for 11 yrs for PMR 20 mgs to start. since the...

Avadip12

•2 years ago

51 Replies

prednisalone management

I take my Omeprazol, that is similar, just before breakfast. Then take prednisalone immediately after breakfast and this seems to keep my stomach problems...

I take my Omeprazol, that is similar, just before breakfast. Then take prednisal...

Diyfan

•2 years ago

3 Replies

Covid bonus!

Our grand children gave us a New Year present of Covid, husband first then 4 days later me. I battled through the NHS Test and Trace system to see if I needed...

Our grand children gave us a New Year present of Covid, husband first then 4 day...

oscarandchloe

•2 years ago

3 Replies

Redish,watery eyes in the morning?

just wondering if this is PMR/Gca related or not? History, started on 40mg prednisolone beg oct this year after GCA diag. Currently tapered down to 17.5...

just wondering if this is PMR/Gca related or not? History, started on 40mg pred...

Cfmad298601

•2 years ago

6 Replies

Leflunomide update

Since stopping leflunomide in November I have now regressed back to being in PMR pain as my blood work confirmed yesterday. Both ESR and CRP are climbing fast...

Since stopping leflunomide in November I have now regressed back to being in PMR...

Alebeau

•2 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2023

Flare probably caused by bivalent jab, ongoing side effects. Others with same experience? How long? Up the pred again?

Erosive Gastritis Anyone - Prednisolone

Tapering going well so far with a few hiccups

Going up & down with Pred - Steroids or pain? - Help!

Back pain on one side

D- Mannose strength

GCA now PMR advice please

Cataracts

Positive posts?

Weaning problem

Never mind the adrenals, what about vitamin D?

is this what a flare feels like ?

Which pain killer

Figured out what back/side issues are BUT nothing works...

Rheumy increased pred from 4 to 40 mgs

thin eye tissue

something to make you smile I hope

To taper Actemra or not?

Adrenals? What now?

Paul Hello

Cortesal test

Any advice welcome.

DEXA Scan

Pmr to psoriatic arthritis

Dosage and skin damage

Still on Pred after 11 yrs

prednisalone management

Covid bonus!

Redish,watery eyes in the morning?

Leflunomide update

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