Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for November 2022

South Tyneside Rheumatology

Has anyone had any experience of the Rheumatology dept at South Tyneside Hospital? I've been referred there by my local GP although I don't yet have an...

Has anyone had any experience of the Rheumatology dept at South Tyneside Hospita...

Hidden

•2 years ago

30 Replies

Cough cough cough - Methotrexate?

I have PMR/GCA/LVV – all currently under control on 5mg Pred and 25mg MTX. However… I’ve had a terrible cough for three weeks now. Thank the Lord for Tena...

I have PMR/GCA/LVV – all currently under control on 5mg Pred and 25mg MTX. Howe...

JanetRosslyn

•2 years ago

14 Replies

Too late for Sick Day Rules?

My partner (PMR for 2 years) started what we thought was a cold on 3rd Nov. We were due to go abroad for 5 days in the sunshine, which we thought would do him...

My partner (PMR for 2 years) started what we thought was a cold on 3rd Nov. We w...

PMRZ

•2 years ago

9 Replies

Want to take advantage of all our features? Just log in!

New PMR diagnosed today.

I m 84.After months of increasing pain starting in earlySept or before, I was diagnosed with PMR. Today. Stared on a prednisilone 15mg per day. The pain...

I m 84.After months of increasing pain starting in earlySept or before, I was...

Freya32

•2 years ago

68 Replies

It's not going well and I am feeling low.

As I have posted previously, on 21/08 at the behest of my Dr I started Hydrocortisone and reduced my Pred down to 7mg. (I note from my original post back...

As I have posted previously, on 21/08 at the behest of my Dr I started Hydrocort...

IdasMum

•2 years ago

9 Replies

HELP MY LOVELY FRIENDS

Hi all, just had bloods done last week,and my gp wants me back in a month,receptionist said was about my bloods,I takeit my CPR and E SP are up, so iam...

Hi all, just had bloods done last week,and my gp wants me back in a month,recept...

Harrywogan

•2 years ago

12 Replies

Mastectomy tomorrow!

I have been worked in a bit earlier (tomorrow!) than I expected for my mastectomy. I had a request in to speak to my rheumatologist but she was out all last...

I have been worked in a bit earlier (tomorrow!) than I expected for my mastectom...

Babysingstheblues

•2 years ago

74 Replies

MEthylprendnisolone tapering?

Hello all, I was put on methylprendnisolone after a recent blood test showed that my inflammation wasn't being controlled with regular prednisone (10 mg) and...

Hello all, I was put on methylprendnisolone after a recent blood test showed t...

ifeelold

•2 years ago

12 Replies

Tapering

If you start on 15mg when do you;start tapering and to what dose? Thank you

maureenburton

•2 years ago

19 Replies

Missed my dose of prednisone and the midnight dose of antibiotic!

I did get up and set a spoon out thinking I'll be back out to take the meds and have the yogurt. I have an alarm set for 12am but I didn't even hear it go off...

I did get up and set a spoon out thinking I'll be back out to take the meds and ...

catdance

•2 years ago

12 Replies

Balancing prednisolone/methotrexate/osteopenia/pmr and myasthenia gravis

Diagnosed with pmr in 2009 and misdiagnosed with GCA in 2014 which was rediagnosed as myasthenia gravis in 2018. I’ve had 3 yearly Dexa scans which have been...

Diagnosed with pmr in 2009 and misdiagnosed with GCA in 2014 which was rediagnos...

Rancho

•2 years ago

8 Replies

Prednisone or prednisolone

I have been on prednisolone all the time, as this is what is described here n DK. Now I have bought tablets online to make sure that I have some in case my...

I have been on prednisolone all the time, as this is what is described here n DK...

krillemy

•2 years ago

1 Reply

Temporil Biopsy

Good morning all. I had my biopsy on the 7th November and due to feeling a little anxious forgot to ask how long it takes takes to get results, can anyone...

Good morning all. I had my biopsy on the 7th November and due to feeling a litt...

Lynlea

•2 years ago

8 Replies

Shingles vaccination when on Prednisone

Is I’d OK to have a Shingles jab if I am 76 and have PMR and on 8mg Prednisone per day?

Is I’d OK to have a Shingles jab if I am 76 and have PMR and on 8mg Prednisone p...

Greengarth

•2 years ago

8 Replies

Tapering having a go

Still battling with Thrush following 2 lots of antibiotics and having temporary increased my steroids I need to get stable again first . However returning...

Still battling with Thrush following 2 lots of antibiotics and having temporar...

EdithWales

•2 years ago

32 Replies

Talk on taking steroids on BBC 2 now 12.40 gmt

Jeremy Vine show is shortly talking about side effects of taking steroids - maybe worth a listen

Jeremy Vine show is shortly talking about side effects of taking steroids - mayb...

PMRfacebook

•2 years ago

9 Replies

GCA and PMR

a friend of mine has GCA. She is on 9mg of pred and also leflunomide, She told me today that she aches all over and it is bilateral. Is she likely to have to...

a friend of mine has GCA. She is on 9mg of pred and also leflunomide, She told ...

Koalajane

•2 years ago

11 Replies

Pmr v arthritis

I have been on Presdone since September 21. Started on 15mg and tapered down to 1mg. I have severe arthritis in hip and am awaiting hip replacement. Anyway...

I have been on Presdone since September 21. Started on 15mg and tapered down to...

Holycow2

•2 years ago

3 Replies

Advice welcome PMR

After bing diagnosed with PMR in September 2021 I was started on Presdone 15mg. Tapered down slowly to 1mg. Then I started to get terrible pain in my thighs...

After bing diagnosed with PMR in September 2021 I was started on Presdone 15mg. ...

Holycow2

•2 years ago

21 Replies

Prep for adding methotrexate or any other DMARD and experience with adjusting pred dose down

Hi all. Since I am having trouble getting below 20 mg of pred after 7 months (I have been on roller coaster not straight 20 that whole time. 23, 20, 15, 10,...

Hi all. Since I am having trouble getting below 20 mg of pred after 7 months (I...

Wallysma

•2 years ago

42 Replies

Question about Prednisone tapering - 5 weeks with hPMR

Hi everyone! I’d appreciate your comments on the results of my Pred tapering so far, after just 5 weeks after PMR diagnosis. My original symptoms were - hip...

Hi everyone! I’d appreciate your comments on the results of my Pred tapering so...

canadacando

•2 years ago

31 Replies

Taking steroids at night….

Thanks to all of you that have made contact regarding taking steroids at night. Have tried a few nights but don’t think this is for me. Am back to daytime...

Thanks to all of you that have made contact regarding taking steroids at night. ...

Ancestry1234

•2 years ago

23 Replies

Weight loss due to adrenal insufficiency?

I have been steadily losing weight since a pulmonary embolism in early January. I dropped from 59 kilos to 55/54 kilos in 3 months but it levelled off. That...

I have been steadily losing weight since a pulmonary embolism in early January. ...

Ebiker

•2 years ago

14 Replies

Blood pressure while on ACTEMRA

Hello, I had my infusion on Wednesday. I was exposed to someone with Covid the Sunday before and thought I may have covid because of the pretty bad headache I...

Hello, I had my infusion on Wednesday. I was exposed to someone with Covid the S...

Plains

•2 years ago

16 Replies

When to have the jab.

Three weeks ago I had a mild heart attack. I also had pneumonia. Will I be able to have the flu jab this year & how long after my heart attack? Also would...

Three weeks ago I had a mild heart attack. I also had pneumonia. Will I be abl...

caroli123

•2 years ago

2 Replies

Joints if you pardon the pun

Sorry I haven't posted before. Not good with this tinternet thingy. Hope this isn't a touchy subject. Anyway I smoke a couple of small joints in the evening....

Sorry I haven't posted before. Not good with this tinternet thingy. Hope this is...

Dog-11

•2 years ago

3 Replies

Hi Everyone. Woozy and fatigued at 6mg...stick or increase?

Managed to reach 6mg on DSNS , tapering by 0.5 mg over 5-6 weeks. However, have been feeling woozy and fatigued. Possibly family stress...should I go back up...

Managed to reach 6mg on DSNS , tapering by 0.5 mg over 5-6 weeks. However, have ...

Temoral

•2 years ago

10 Replies

Alternative to Adcal-D3?

Hi, can anyone recommend an alternative to Adcal D3 tablets on prescription? I really find them revolting and far too sweet! Thank you for your help 😊

Hi, can anyone recommend an alternative to Adcal D3 tablets on prescription? I ...

JoLou12

•2 years ago

83 Replies

New to PMR and Preds ... how much food to take with Preds

Morning allI've just got diagnosed a few days ago and started Pred on Thursday 20g My symptoms have improved ... however I have a quick question regarding how...

Morning allI've just got diagnosed a few days ago and started Pred on Thursday 2...

SPURS73

•2 years ago

44 Replies

Diet, fibre, probiotics - and your mind ...

There have been several posts and questions about diet and probiotics recently. This ZOE podcast was brought up on another forum and I thought others would be...

There have been several posts and questions about diet and probiotics recently. ...

PMRpro

Ambassador•2 years ago

116 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2022

South Tyneside Rheumatology

Cough cough cough - Methotrexate?

Too late for Sick Day Rules?

New PMR diagnosed today.

It's not going well and I am feeling low.

HELP MY LOVELY FRIENDS

Mastectomy tomorrow!

MEthylprendnisolone tapering?

Tapering

Missed my dose of prednisone and the midnight dose of antibiotic!

Balancing prednisolone/methotrexate/osteopenia/pmr and myasthenia gravis

Prednisone or prednisolone

Temporil Biopsy

Shingles vaccination when on Prednisone

Tapering having a go

Talk on taking steroids on BBC 2 now 12.40 gmt

GCA and PMR

Pmr v arthritis

Advice welcome PMR

Prep for adding methotrexate or any other DMARD and experience with adjusting pred dose down

Question about Prednisone tapering - 5 weeks with hPMR

Taking steroids at night….

Weight loss due to adrenal insufficiency?

Blood pressure while on ACTEMRA

When to have the jab.

Joints if you pardon the pun

Hi Everyone. Woozy and fatigued at 6mg...stick or increase?

Alternative to Adcal-D3?

New to PMR and Preds ... how much food to take with Preds

Diet, fibre, probiotics - and your mind ...

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive