Tapering having a go: Still battling with Thrush... - PMRGCAuk

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Tapering having a go

EdithWales profile image
33 Replies

Still battling with Thrush following 2 lots of antibiotics and having temporary increased my steroids I need to get stable again first .

However returning to the site has inspired me to have another go at getting down a bit lower.

I had a virtual consultation with an Endocrinologist at the end of last year at the request of my new Rheumatologist ( my third ) The former who was pretty charmless said I was unlikely to get off steroids ever but I could try to reduce. Years ago I got to 3mg but 5 seems to be my limit without flaring. He did say it was worth a try as even a small reduction helps. I then got Covid and other life events kicked in and on the, if it isn’t broken don’t try to fix it decided not to bother. Now, the experience of others have encouraged me to try and I have contacted Dr Charmless for a report of the consultation which I never received and then the battle with the the GP practice for some 2.5 mgms begins. Wish me luck

🥂

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EdithWales
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33 Replies
PMRpro profile image
PMRproAmbassador

Good luck!!!! Starting with Dr Charmless ...

EdithWales profile image
EdithWales in reply toPMRpro

Thank you. I find it really interesting, him in doors has better treatment than he ever had from his own Partners, this new lot can’t pamper him enough, he even has a Lymphoedema specialist fussing over him and giving him amazing stockings. I, on the other hand am treated like a troublesome old fool, begging for HRT like it was heroin.

He is so pleased I am back with my own kind, very bored with my trivial complaints

Dr Charmless may want to treat me to another virtual consultation, good for the bank balance 🥂

PMRpro profile image
PMRproAmbassador in reply toEdithWales

We had a GP a bit like that I suppose - should have been a pathologist, clever chap, couldn't relate to live humans though. But as soon as he saw OH and me in our white coats in the lunchtime lecture at the Uni. hospital - totally different. DIsgusting I say - but I did play it for all it was worth ;)

EdithWales profile image
EdithWales in reply toPMRpro

Birds of a Feather, I suppose

in reply toPMRpro

SOOOOO FUNNY!, I’m buying my own white coat and will wear it to the surgery when I go to beg fir an appointment, I might get a stethoscope as well 🤣

PMRpro profile image
PMRproAmbassador in reply to

An NHS ID badge comes in handy too! My daughter tries to arrange all clinic appointments for days she is working - very handy for the staff who don't know she is staff too ...

Francesbarbara profile image
Francesbarbara in reply toPMRpro

Yes, I've had more than one instance of seeing a totally different expression on someone's face when they realised that I spoke the same language. It is shocking behaviour and Medics seem particularly guilty of this.

PMRpro profile image
PMRproAmbassador in reply toFrancesbarbara

Hehe - my experience was either of relief they didn't have to speak English to me or embarrassment because they'd said something they shouldn't. assuming I wouldn't understand! Then there was the occasion I was the interpreter - we are supposed to have at least bilingual staff here (there is a third official language but that isn't compulsory) but many Italian staff don't cope with German and a nurse is there to interpret. The doctor had worked in the UK so we spoke English together - and I had to explain to the nurse what was going on :)

MrsNails profile image
MrsNails

Good to see you back - l’ve been ‘Off Duty’ recovering from Covid & then a week looking after the Grandchildren - 5xStopovers & 2xFull Days - it was a long week but they were very good - Theo just doesn’t sleep through so that was the hard bit !

I read you Previous Post so good news re Claire 🙏🏼

Good Luck with the Tapering 🍀

MrsN

We have a FAQ’s Section now - you may have some suggestions or ideas 😉

healthunlocked.com/pmrgcauk...

EdithWales profile image
EdithWales in reply toMrsNails

That’s brave of you, need a well deserved rest.

Thank you. I will read it x🥂

jinasc profile image
jinasc

You might like to read this read - as you have just had two lots of antibiotics.

healthunlocked.com/pmrgcauk...

EdithWales profile image
EdithWales in reply tojinasc

Thank you. I should have had it a couple of days ok. I sent him out to get it and came back with loads of different ( cheaper) ones all claiming they are probiotic I will get it myself 🥂

jinasc profile image
jinasc

If you want too you can buy VSL3 online vsl3.co.uk/ that is their official website.

EdithWales profile image
EdithWales in reply tojinasc

Thank you. Most grateful

EdithWales profile image
EdithWales in reply tojinasc

It’s down to £16.50 for 10 so I have sent for it. Hooray! Thank you so much 🥂

agingfeminist profile image
agingfeminist

Just wondering if you are getting good treatment for the thrush. You should be able to clear it within a couple of weeks with some sort of antifungal. The pred does make us v susceptible to fungal infections. Power on!!

EdithWales profile image
EdithWales in reply toagingfeminist

Thank you.

I have the fluconazole now, I couldn’t take it yesterday because I am on statins and it’s contraindicated. It’s improved today maybe bombarded by yoghurt has helped

Take care

agingfeminist profile image
agingfeminist in reply toEdithWales

I do hope this acts quickly. One less thing to endure.

Daffodilia profile image
Daffodilia

can you use a pill splitter to get 2.5 from 5 mg tablets?

EdithWales profile image
EdithWales in reply toDaffodilia

Thank you. I have not tried a pill splitter as I have the gastro enteric tablets but can try

Take care

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toEdithWales

You cannot cut GR tablets….but if you want to try reducing ask for 1mg. Although sometimes they aren’t always very easy to obtain….

Daffodilia profile image
Daffodilia in reply toEdithWales

not sure it will work on those

Flivoless profile image
Flivoless in reply toDaffodilia

I use a Stanley knife to do this, but a pill cutter would, of course, be better.

EdithWales profile image
EdithWales in reply toFlivoless

Thank you. I will get a pill cutter, would probably to damage with a Stanley Knife

PMRpro profile image
PMRproAmbassador in reply toEdithWales

Not to be used for GR tablets - it exposes the pred so makes the GR part pointless. They come as 2.5 and 1mg doses.

EdithWales profile image
EdithWales in reply toPMRpro

Thank you. That makes sense 🥂

Gossiplady profile image
Gossiplady in reply toDaffodilia

yes I always use one. Simple.

Daffodilia profile image
Daffodilia

canesten for thrush?

Broseley profile image
Broseley

Canesten stopped working for me ( I used to get persistent thrush in my 20s and 30s), only fluconazole worked. Though live yogurt helped too, put on a tampon.

EdithWales profile image
EdithWales in reply toBroseley

Thank you. I have the fluconazole. It’s improved today, I couldn’t take it yesterday because I am on statins and it’s contra indicated.

in reply toBroseley

brilliant idea!

Theadmiral profile image
Theadmiral

did you know that antibiotics can cause thrush?

EdithWales profile image
EdithWales

Sadly yes. I have suffered all my life

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