rheumatoid question

[remission]

trying to get on the right site, but not having much luck.

Any suggestions for someone recently diagnosed with rhuematoid arthritis

[piglette]

Versus Arthritis have an on-line community that may be of interest. versusarthritis.org/get-hel...

[HeronNS]

This might be what you're looking for:

healthunlocked.com/nras

[DorsetLady PMRGCAuk volunteer]

Both options already suggested should give you info you need.

[Hidden]

My sister in-law has had RA for a number of years. She lives in Spain so has to pay for the drug called ARAVA (LEFLUNOMIDE) she has told me she'd never know she had RA from taking this tablet. Not sure if the NHS will prescribe it, or if you'd have to pay....worth asking.

[PMRpro Ambassador in reply to Hidden]

It is used by the NHS - and sometimes suggested as a steroid sparer for PMR with several people on the forum having tried it. It can have some unpleasant gut side effects!

[Hidden in reply to PMRpro]

Have the people that have tried it been successful at getting off Pred ? Shame all drugs have side effects. I'm back on 5mg and will stay on it for a while longer before attempting 4.5mg. Every mg drop I get nervous.

[PMRpro Ambassador in reply to Hidden]

It has been discussed quite a bit on the forum. It is the same as with methotrexate - it works well for the people it works for! The paper Dasgupta wrote about it seemed to suggest it worked for everyone with 21 out of 23 patients achieving remission. However, it can cause severe diarrhoea in some and also neuropathy and for others it makes no difference to pred dose so certainly not that good a success story anecdotally. There is a study ongoing in the Netherlands - Covid interrupted that for a bit.

[remission in reply to Hidden]

THANkyou for the infor,much appreciated

[PMRpro Ambassador]

On here it is NRAS

healthunlocked.com/nras