Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2022

Pred,lansoprazole, adcal, bloating and constipation...feedback requested

Hi everyone. Not edifying I know...sorry! I'm on 17mg of pred....been thereabouts since diagnosis 2 months ago. I've cut carbs and expected my digestive...

Hi everyone. Not edifying I know...sorry! I'm on 17mg of pred....been therea...

Newplodder

•2 years ago

39 Replies

Rheumatology appointment at last!

After suffering a massive flare/reboot of PMR in April following a bout of Covid and two years after my initial diagnosis, having tapered from 15mg to 4mg I...

After suffering a massive flare/reboot of PMR in April following a bout of Covid...

marionofnorwich

•2 years ago

7 Replies

How long is it safe to stay on low Pred. dose?

I started with GCA in 2019 on 45mg Pred. got that down to 4mg in one year with no return of symptoms but meanwhile I was building up inflammation from PMR and...

I started with GCA in 2019 on 45mg Pred. got that down to 4mg in one year with n...

oscarandchloe

•2 years ago

13 Replies

Want to take advantage of all our features? Just log in!

My Post Has Vanished!

Grrrrr! Just a little frustrated as I was responding to another post and had written quite a long response when I inadvertently 'exited' the site. When I...

Grrrrr! Just a little frustrated as I was responding to another post and had w...

Kendrew

•2 years ago

41 Replies

The Polymyalgia Rheumatica Diet: The Ultimate Nutritional Guide To Reversing And Managing Polymyalgia Rheumatica And Giant Cell Arteritis

Has anyone read this book by Hunwick Debby? Did they find it useful? Generally does your diet help improve your condition?

Has anyone read this book by Hunwick Debby? Did they find it useful? Generally ...

Yorksman

•2 years ago

85 Replies

Help

Good morning folks I’m still suffering long Covid and all the pains and other things associated with it. Until now, I have been taking 1mg of prednisone but...

Good morning folks I’m still suffering long Covid and all the pains and other t...

YuliK

•2 years ago

5 Replies

Intrinsic Factor blood test - Vitamin B12 deficiency

Today I had a blood test for Intrinsic Factor. Some Autoimmune disease can cause Pernicious anemia. Watch this space for results 💉

Today I had a blood test for Intrinsic Factor. Some Autoimmune disease can caus...

jules1955

•2 years ago

1 Reply

extremely tender

hi everyone does anyone get really tender spots not spots places that when you touch are really tender! Not done anything. Thanks

hi everyone does anyone get really tender spots not spots places that when yo...

Uglow

•2 years ago

21 Replies

what can I expect from this condition at to day?

Hello to one and all, diagnosed at beginning of July ,on Prednisolone can anyone point me in the direction of info about what I can expect living with...

Hello to one and all, diagnosed at beginning of July ,on Prednisolone can a...

Purplecheeks

•2 years ago

27 Replies

An update on TCZ

Hello Everyone, I have been following the posts of others and have commented on some, but I thought now I’d add an update. I have just received my first...

Hello Everyone, I have been following the posts of others and have commented on ...

LemonZest11

•2 years ago

34 Replies

prednosolone + aspirin+ amoxicillin

ibe been having stomach and back pains for some time now .. used to be temporary first times lately have been frequent, so I went for check up did some test...

ibe been having stomach and back pains for some time now .. used to be tempora...

Ushern

•2 years ago

11 Replies

Skin Frailty

I am 78 years old and have had PMR for 4 years and have had 10 flare ups. Having joined earlier this year and having read the many posts on reducing dosage of...

I am 78 years old and have had PMR for 4 years and have had 10 flare ups. Havin...

Blacksley

•2 years ago

28 Replies

Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition. By Kate Gilbert

Have you all read the above book by Kate Gilbert? It’s a must if you are a sufferer of PMR or GCA. So much sound practical information and we all know that...

Have you all read the above book by Kate Gilbert? It’s a must if you are a suff...

SouthStrand

•2 years ago

6 Replies

Covid and Prednisolone

Hi I am recovering from Covid It got.me for my birthday!! One day up one day down but improving so that's good.I increased my pred by 5mg to 10mg.Dr said to...

Hi I am recovering from Covid It got.me for my birthday!! One day up one day do...

Raewynne

•2 years ago

11 Replies

RED CHEST AND PUFFY

Anyone had or know owt about it been like this for a few weeks now. Not sore

Anyone had or know owt about it been like this for a few weeks now. Not sore ...

Ronzy

•2 years ago

10 Replies

I just learned about osteoarcosis

So my right hip has been really hurting for the past month but an x-ray did not show any fracture so I was sent to an orthopedic doctor. Since I have severe...

So my right hip has been really hurting for the past month but an x-ray did no...

Amkoffee

•2 years ago

25 Replies

Studying

I would like to know if anybody has undertaken an ntensive course of study after having been diagnosed with polymyalgia and whether this has had a negative...

I would like to know if anybody has undertaken an ntensive course of study afte...

Hidden

•2 years ago

50 Replies

Kidney or bladder

A recent urinalysis shows protein and blood in urine. blood tests are showing BUN and creatinine are elevated. So, is this kidneys or bladder. I am...

A recent urinalysis shows protein and blood in urine. blood tests are showing ...

phebamom

•2 years ago

9 Replies

Are you on an immunosuppressant drug? Another study for patients to participate in

https://healthunlocked.com/lupusuk/posts/148314710/nottingham-university-researchers-undertaking-work-aiming-to-create-personalised-long-term-monitoring-plans-f

https://healthunlocked.com/lupusuk/posts/148314710/nottingham-university-researc...

PMRpro

Ambassador•2 years ago

19 Replies

Help Please

Hello All Advice please . Has anyone on here had cataract surgery while on steroids for PMR and did it all go ok ? Thanks

Hello All Advice please . Has anyone on here had cataract surgery while on ster...

Nanny71

•2 years ago

13 Replies

What should I do now please?

Hi all I am wondering if you would be able to help me please? I have been stabilised on 7mg of prednisolone since last month June 2022. Unfortunately...

Hi all I am wondering if you would be able to help me please? I have been st...

Elispeth

•2 years ago

45 Replies

immune system compromised

I am currently taking 10 mg of prednisolone, but I am getting stressed about catching any virus that may be circulating, including Covid which is the virus...

I am currently taking 10 mg of prednisolone, but I am getting stressed about ...

Washingup

•2 years ago

35 Replies

Access to test results on nhs app

i have just read in the newspaper that from November patients will be able to access test results and other information via the NHS app. NHS england will...

i have just read in the newspaper that from November patients will be able to a...

Nominem

•2 years ago

52 Replies

want to compare notes? I can disclose here because you don’t know me!

so I obviously have PMR - tapering for the 4th time and currently alternating between 7mg /8mg. Good news- within the last fortnight I have been awarded...

so I obviously have PMR - tapering for the 4th time and currently alternating be...

AnniesRyder5

•2 years ago

28 Replies

HOW CAN THINGS BE SO DIFFERENT FROM ONE DAY TO THE NEXT!

I really don't get this PMR malarkey sometimes! I've been off pred since the end of March, but all my PMR symptoms have been returning slowly (well they never...

I really don't get this PMR malarkey sometimes! I've been off pred since the end...

Groovykindoflove1992

•2 years ago

24 Replies

Moon Face!!!

I'm reading up as much as i can on PMR & was rather worried to read that a condition called moon face can occur where fat deposits go to the face making it...

I'm reading up as much as i can on PMR & was rather worried to read that a con...

rachelbell

•2 years ago

25 Replies

Fetlar 72

female age77 had polymialgia since Sept 21. On 4 mg Pred. Managing to taper 1mg every 5 weeks. Want to stop taking Alendronic acid having some dental...

female age77 had polymialgia since Sept 21. On 4 mg Pred. Managing to taper 1mg...

Fetlar73

•2 years ago

25 Replies

stinging lips and tong

any tips 😩 🍀🍀🍀🍀🍀🍀🍀

Ronzy

•2 years ago

13 Replies

Food grade Bicarbonate of Soda

I think that I may have responded to a tip on the forum, but I have no memory of what it was. Lately I have been troubled by heel pain and right side lower...

I think that I may have responded to a tip on the forum, but I have no memory of...

SheffieldJane

•2 years ago

63 Replies

PMR and Hayfever

Every year since a teen I have had this. In 1976 that awful summer I had serious trouble breathing at all. I have in recent years used Benadryl as a means of...

Every year since a teen I have had this. In 1976 that awful summer I had seriou...

cycli

•2 years ago

24 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2022

Pred,lansoprazole, adcal, bloating and constipation...feedback requested

Rheumatology appointment at last!

How long is it safe to stay on low Pred. dose?

My Post Has Vanished!

The Polymyalgia Rheumatica Diet: The Ultimate Nutritional Guide To Reversing And Managing Polymyalgia Rheumatica And Giant Cell Arteritis

Help

Intrinsic Factor blood test - Vitamin B12 deficiency

extremely tender

what can I expect from this condition at to day?

An update on TCZ

prednosolone + aspirin+ amoxicillin

Skin Frailty

Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition. By Kate Gilbert

Covid and Prednisolone

RED CHEST AND PUFFY

I just learned about osteoarcosis

Studying

Kidney or bladder

Are you on an immunosuppressant drug? Another study for patients to participate in

Help Please

What should I do now please?

immune system compromised

Access to test results on nhs app

want to compare notes? I can disclose here because you don’t know me!

HOW CAN THINGS BE SO DIFFERENT FROM ONE DAY TO THE NEXT!

Moon Face!!!

Fetlar 72

stinging lips and tong

Food grade Bicarbonate of Soda

PMR and Hayfever

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2022

﻿Pred,lansoprazole, adcal, bloating and constipation...feedback requested

Rheumatology appointment at last!

How long is it safe to stay on low Pred. dose?

﻿My Post Has Vanished!

The Polymyalgia Rheumatica Diet: The Ultimate Nutritional Guide To Reversing And Managing Polymyalgia Rheumatica And Giant Cell Arteritis

Help

Intrinsic Factor blood test - Vitamin B12 deficiency

extremely tender

﻿what can I expect from this condition at to day?

An update on TCZ

﻿prednosolone + aspirin+ amoxicillin

Skin Frailty

Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition. By Kate Gilbert

﻿Covid and Prednisolone

RED CHEST AND PUFFY

﻿I just learned about osteoarcosis

﻿Studying

Kidney or bladder

Are you on an immunosuppressant drug? Another study for patients to participate in

Help Please

﻿What should I do now please?

﻿immune system compromised

﻿Access to test results on nhs app

want to compare notes? I can disclose here because you don’t know me!

﻿HOW CAN THINGS BE SO DIFFERENT FROM ONE DAY TO THE NEXT!

﻿Moon Face!!!

Fetlar 72

stinging lips and tong

Food grade Bicarbonate of Soda

PMR and Hayfever

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Pred,lansoprazole, adcal, bloating and constipation...feedback requested

My Post Has Vanished!

what can I expect from this condition at to day?

prednosolone + aspirin+ amoxicillin

Covid and Prednisolone

I just learned about osteoarcosis

Studying

What should I do now please?

immune system compromised

Access to test results on nhs app

HOW CAN THINGS BE SO DIFFERENT FROM ONE DAY TO THE NEXT!

Moon Face!!!