stinging lips and tong : any tips... - PMRGCAuk

PMRGCAuk

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stinging lips and tong

Ronzy profile image
Ronzy
β€’13 Replies

any tips 😩

πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€πŸ€

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Ronzy profile image
Ronzy
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13 Replies
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Koalajane profile image
Koalajane

Do you know why your lips and tongue are stinging?

Ronzy profile image
Ronzyβ€’ in reply toKoalajane

Maybe because of GCA 30 pred

jinasc profile image
jinascβ€’ in reply toRonzy

One person I know had this problem,

On and off he lost nearly all of his taste and then sometimes tingling. He was a Pharmacist and he thought it might be his taste buds. When it occurred he made of note of what he had eaten. Being a Pharmacist he noted the food that he had eaten when it occurred and eliminated them for a while. He found that as he reduced his pred the problem went away.

Now I am not saying this has happened to you - but just a thought I would pass it on.

Two items I remember were problematic were tomatoes and ginger.

That man was a pharmacist.

Ronzy profile image
Ronzyβ€’ in reply tojinasc

Thanks πŸ‘πŸ€πŸ€πŸ€πŸ€πŸ€

Daffodilia profile image
Daffodilia

Do you need to take pred with more water?

Ronzy profile image
Ronzy

I usually drink a full glass with it thanks Could try more

Sharitone profile image
Sharitone

Is it all the time?Two things occur to me. It could be an allergy, as Jinasc said, or you could be right about the GCA. My face was stinging from the eyebrows down to my lips for some time with GCA and still does a bit. Dr Mukhtyar, who did the Zoom talk a few weeks ago, confirmed that a stinging face can be a symptom of GCA.

PMRpro profile image
PMRproAmbassadorβ€’ in reply toSharitone

I heard him say that - I wonder if he has ever put it in writing, because that would be VERY useful for the sceptics who say "oh no, not typical ..."

choirsinger1986 profile image
choirsinger1986

Do u have mouth sores too ?

Ronzy profile image
Ronzyβ€’ in reply tochoirsinger1986

Toung and lips manly. Much better today. I have a sneaky feeling it the Magnesium I take for cramps taken less today. I’ll monitor it

choirsinger1986 profile image
choirsinger1986β€’ in reply toRonzy

Hope it works for you

Amkoffee profile image
Amkoffee

There is a disorder called burning mouth syndrome. The people I've spoken to about this report that they get some relief while eating but it returns as soon as they stop eating. This is an important distinction that is not seen with some other mouth ailments.

Ronzy profile image
Ronzy

Feeling much better today no idea why tho πŸ€·β€β™‚οΈMaybe magnesium.

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