Stuffed but working on it.

[ignatz]

I do find this alternative website very difficult t use but...a gem perhaps?

I am on the no1 and no2 best treatments- by any other name.

Polymyalgia Rheumatica Treatments

MOST EFFECTIVE

#1

Panafcort (Brand names: Panafcort)

Prednisone

Drug | 1332 reports

#2

Prednisolone (Category: drug)

Drug | 524 reports

#3

Methotrexate injection

Methotrexate

Drug | 236 reports

#4

Physiotherapy

Physical therapy | 113 reports.......

...........

#49

Exercise (Unspecified)

Physical activity | 11 reports

#50

Azithromycin

Drug | 1 reports

How is effectiveness calculated?

+

And am now avoiding....

MOST DETRIMENTAL

#1

Methotrexate injection

Methotrexate

Drug | 280 reports13%

stuffthatworks.health/polym...

[HeronNS]

The Stuff that Works website? I find it really peculiar.

[HalleysComet in reply to HeronNS]

Me too. I really don’t understand what it is all about.

[PMRpro Ambassador]

I did have a brief look once. And filed it ...

[DorsetLady PMRGCAuk volunteer]

Can’t be doing with it….

[Kendrew]

Hmm! 🤔 No comment.

[HeronNS]

I have to say at first I used to check in and offer comments, but somehow it never quite grew on me. I don't know on what basis they decided these were the best treatments - other than how many people said they'd tried something. Can't remember if they really collect accurate info regarding efficacy of a specific medication or treatment. Think it's probably mostly if not completely done by computer.

[PMRpro Ambassador in reply to HeronNS]

I got the impression it matched a story OH used to tell from uni. The lecturer got someone up from the group to do a mathematical proof on the board. At the end he asked for votes as to whether it was correct or not. The group voted it was correct - it wasn't. And the lecturer then said "Gentlemen - it goes to show democracy doesn't work in maths ..."

Just because people post votes that something worked, doesn't mean it really did ...

[HeronNS in reply to PMRpro]

I seem to remember when you sign up they ask you what treatments you tried, and that could include a lot of stuff which doesn't work but neverthless it gets recorded.

[Bcol]

Like the others I looked at it, decided it wasn't for me and binned it. Some very strange suggestions which seemed to have very little to back them up.

[icu2]

it is data collecting…and offering no medical/ scientific support…only user comments.

[DorsetLady PMRGCAuk volunteer in reply to icu2]

Precisely!..but then I am a sceptical Brit….😉

[HeronNS in reply to icu2]

It's quite clear about that - says the more info from more people the more accurate the AI becomes....

[Nightingales]

I looked into it and discovered it was described as a for profit company so stayed well away.

[HeronNS in reply to Nightingales]

I don't know how they could make money off it. Unless my adblock prevents me from seeing how.

[Highlandtiger in reply to HeronNS]

Same here. I couldn’t work out what the business model was.

[PMRpro Ambassador in reply to Highlandtiger]

You can make a lot of money out of the advertising. And they possibly sell the information they gather.

[Highlandtiger in reply to PMRpro]

That’s the thing - there weren’t any adverts. But yes, I guess they were selling the info to someone…🤷🏻‍♀️

[PMRpro Ambassador in reply to Highlandtiger]

Were there links to products?

[Highlandtiger in reply to PMRpro]

No. That’s what puzzled me.

What they say is…

“StuffThatWorks helps people learn which treatments work best for their condition using smart, AI-based crowdsourcing.”

[Irishfurbaby]

Hi

I tried anything natural when I was diagnosed with PMR. Turmic is wonderful for me I still take it. I have weekly massages and did yoga or pilates. I bought an electric blan ket that really helped me at night to sleep. Mainly kept moving.

Good luck

[HeronNS]

stuffthatworks.health/

[ignatz]

Good to read that it is not just me who finds that website a bit strange and useless.