Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2022

Tapering on Tocilizumab (Altrema)

Hi again everyone, a lot has happened since I last asked a question. a new rheumatologist came to the city where I live in Texas so I was able to get an...

Hi again everyone, a lot has happened since I last asked a question. a new rheum...

Charkha

•2 years ago

15 Replies

Am I ''better''?

As I mentioned in a previous post, Storm Eunice badly damaged part of my roof on 18th February. I was homeless for 5 weeks and 5 days, returning last...

As I mentioned in a previous post, Storm Eunice badly damaged part of my roof on...

Marijo1951

•2 years ago

11 Replies

reducing oral steroids

I'm new on this site. I was looking for advice and other people's comments on reducing oral steroids. Not getting much help from GP due to being unable to...

I'm new on this site. I was looking for advice and other people's comments on r...

Nosirrok

•2 years ago

4 Replies

Want to take advantage of all our features? Just log in!

arthritis appearing at low dose pred

For about a month or more I have been sore and stiff in a number of places, and I haven't been sure if it was because of gardening too hard, PMR flare or,...

For about a month or more I have been sore and stiff in a number of places, and ...

Tiredcat

•2 years ago

20 Replies

Bowen Technique

Hello everyone. It’s me again! I’ve had lower back pain for quite a while (on one side only & just above my hip bone). I’ve put it down to sitting on a...

Hello everyone. It’s me again! I’ve had lower back pain for quite a while (on on...

Doraflora

•2 years ago

25 Replies

Flare?

Hi, I'm after some advice please! I have searched 'flare' and looked at previous posts but just want to check...I have been on pred for almost 3 years and am...

Hi, I'm after some advice please! I have searched 'flare' and looked at previous...

Booboos171

•2 years ago

13 Replies

PMR Flare

Been on the site almost 2 months and this is my first post. Was diagnosed Feb 8 after months of symptoms. My symptoms came on gradually and became acute in...

Been on the site almost 2 months and this is my first post. Was diagnosed Feb ...

Hidden

•2 years ago

11 Replies

It's back what supplements are ok?

Hi all, Budge up everyone, I need a place at the PMR table again. My last Pred was taken in December 2016 or so I thought. My osteo arthiritis flared a...

Hi all, Budge up everyone, I need a place at the PMR table again. My last Pred ...

BirmLiz

•2 years ago

14 Replies

Methotrexate

Has any one had blood tests twice a week for the first 6 weeks when starting Methotrexate

Has any one had blood tests twice a week for the first 6 weeks when starting Met...

Phed

•2 years ago

35 Replies

How long should I take Alendronate

Ive been on prednisone almost 3 years and am currently at 4mg. How long do I need to take Alendronate? I understand that its not good long term.

Ive been on prednisone almost 3 years and am currently at 4mg. How long do I nee...

Paperroses

•2 years ago

10 Replies

Are you on cardiac or BP drugs? Take note of this if you develop Covid and are offered the antiviral medication Paxlovid

The details of the drugs which should not be taken alongside Paxlovid are given in the article. I would hope that anyone making the phone calls triaging the...

The details of the drugs which should not be taken alongside Paxlovid are given ...

PMRpro

Ambassador•2 years ago

95 Replies

Advice needed

Hi everyone Just a quick question. I am now at the end of 3 weeks on 12.5mg prednisolone and my GP wants me to reduce now to 10mg. Is this a normal reduction?...

Hi everyone Just a quick question. I am now at the end of 3 weeks on 12.5mg pre...

Middleton22

•2 years ago

11 Replies

Link about prevent Autoimmune diseases interesting read

Hi everyone! Interesting information about preventing Autoimmune Diseases......

patrickd

•2 years ago

6 Replies

Steroids for ever?

Being diagnosed with PMR and GCA. I am reducing steroids. Will I have to be on steroids forever with GCA? I am due to see rheumatologist in June but was...

Being diagnosed with PMR and GCA. I am reducing steroids. Will I have to be on s...

Richmond162

•2 years ago

4 Replies

Reading material

just a suggestion, there seems to be a lot of people reading up on alternative ways of treating this somewhat devious condition, a good friend of mine has...

just a suggestion, there seems to be a lot of people reading up on alternative w...

Burnley1959

•2 years ago

6 Replies

Methotrexate ?

My wife suffering from gca from last 9 months , started 60 mg prednisone tapering dose , at present on 10 mg , she got 2 time flare ,when try to move 9 mg . So...

My wife suffering from gca from last 9 months , started 60 mg prednisone taperin...

Rajuguide

•2 years ago

5 Replies

pred timing

Recently had to double my pred (to 10 mg) because of elevated blood markers. I noticed that I am now waking fairly early - either 4:00 or 5:00. That's...

Recently had to double my pred (to 10 mg) because of elevated blood markers. I ...

winfong

•2 years ago

8 Replies

Still in pain

In my last post I was getting stressed about having a flare whilst trying to reduce from 7 to 6.5 mg simply because I am due to go into Hospital at the end of...

In my last post I was getting stressed about having a flare whilst trying to red...

jaycee444

•2 years ago

7 Replies

GCA, now mononucleosis, bump in prednisone

Diagnosed with GCA & PMR 3 years ago. Have tapered down to a 1.5 mg prednisone dose. Mononucleosis (wow am I lucky) just evolved and I have upped the...

Diagnosed with GCA & PMR 3 years ago. Have tapered down to a 1.5 mg prednisone...

Lucy2013

•2 years ago

10 Replies

Exercise when on Pred for GCA

For the last 3 years I have been increasing fitness through running and in Dec 2021 ran my first ever marathon at age 59 after months of training 😊🤷‍♀️ Then...

For the last 3 years I have been increasing fitness through running and in Dec ...

susieb627

•2 years ago

18 Replies

My PMR Update

Good morning everyone. I thought I’d give you an update on where I am on my PMR journey. I stopped taking Prednisolone in Nov and am currently still at 0 mg....

Good morning everyone. I thought I’d give you an update on where I am on my PMR...

Liby57

•2 years ago

47 Replies

Finished taking pred

Hi all, how is everyone? Been few wks cause got myself locked out somehow. My gp has now diagnosed with fibromyalgia not polymalgia so started meds for...

Hi all, how is everyone? Been few wks cause got myself locked out somehow. My gp...

Karenwelshx

•2 years ago

17 Replies

Article about dyes and hair - for information after a recent question on the forum

I thought people might be interested in this article from a reliable source. Something I forgot to mention at the time was that often people on pred find that...

I thought people might be interested in this article from a reliable source. So...

PMRpro

Ambassador•2 years ago

13 Replies

New anti viral treatment offer

I have had an NHS email letter and unsolicited testing kit sent to me, advising I should test for covid if symptoms appear and submit the result for release of...

I have had an NHS email letter and unsolicited testing kit sent to me, advising ...

DevonMichael

•2 years ago

56 Replies

Headache after coming off prednisolone

I’m new here, apart from browsing and learning a lot, thank you. I am female age 67, in UK. I am asking humbly for your thoughts, realising that I am much...

I’m new here, apart from browsing and learning a lot, thank you. I am female ag...

Ubeaut

•2 years ago

25 Replies

Throat and nostrils

The latest lateral flow tests received from local pharmacy and NHS have reverted to having to swab throat and nostrils and then wait 30 mins for result...

The latest lateral flow tests received from local pharmacy and NHS have revert...

Maryis80

•2 years ago

13 Replies

Disability benefits

Hi everyone, I am in the process of applying for PIP, just wondered if anyone has previously applied for this benefit when diagnosed with PMR ? How did you get...

Hi everyone, I am in the process of applying for PIP, just wondered if anyone ha...

paddy67

•2 years ago

26 Replies

Reducing prednisone from 5mg

Hi Everyone I’ve been on pred 5mg for approx 14 years! I’m now reducing by 1 mg for 3 months and stepping down a mg every 3 months, well I can honestly say the...

Hi Everyone I’ve been on pred 5mg for approx 14 years! I’m now reducing by 1 mg ...

Eternity6

•2 years ago

96 Replies

K2 dosage

Hi Everyone. Sorry to be asking yet another question but my rheumy is dismissive of K2, but I know there will be answers on here. What dosage is advisable...

Hi Everyone. Sorry to be asking yet another question but my rheumy is dismissiv...

Temoral

•2 years ago

22 Replies

Dental work on prednisone

hi folks. Still waiting on rheumy appt next month as my Neuro ophthalmologist thinking possible GCA with negative biopsy. ( retinal specialist appt Tuesday...

hi folks. Still waiting on rheumy appt next month as my Neuro ophthalmologist th...

Cobalt2sister

•2 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2022

Tapering on Tocilizumab (Altrema)

Am I ''better''?

reducing oral steroids

arthritis appearing at low dose pred

Bowen Technique

Flare?

PMR Flare

It's back what supplements are ok?

Methotrexate

How long should I take Alendronate

Are you on cardiac or BP drugs? Take note of this if you develop Covid and are offered the antiviral medication Paxlovid

Advice needed

Link about prevent Autoimmune diseases interesting read

Steroids for ever?

Reading material

Methotrexate ?

pred timing

Still in pain

GCA, now mononucleosis, bump in prednisone

Exercise when on Pred for GCA

My PMR Update

Finished taking pred

Article about dyes and hair - for information after a recent question on the forum

New anti viral treatment offer

Headache after coming off prednisolone

Throat and nostrils

Disability benefits

Reducing prednisone from 5mg

K2 dosage

Dental work on prednisone

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive