I have PRM since July 2021 but it started after 2nd Moderna shot. My first symptoms after 2 weeks from the shot began overnight. Terrible back muscle stiffness and screaming muscles. I used Tiger balm 4 times a day, heat, got new pillow. Gradually over maybe 1-2 months other symptoms settled in too. Shoulder pain (both) so I couldn't reach to a cabinet to get a dish, or turn over in bed (hips and shoulders and elbows and wrist pain; could not pull coves over me. Could not get up from a chair without help. It was a galloping situation. Finally say a rheumatologist. Sed rate then about 50. It has been as high os 100 since them. Several long naps a day! Went on 10 mg prednisone and overnight was at least 85 percent better. So, July to maybe nd of September on 10 mg steroid pretty decent. Got diverticulitis end of Sept and was in hospital for a week with IV antibiotics...there was an beginning perforation/abscess. It resolved on 22 days IV antibiotics. On October 19 i got the quadravant flu shot or older people. 2 das later fevers, chills and night sweats began. Still on 10 mg prednisone. Fever up to 100.8 for 2 weeks. Hospital again for a week. Elevated white count to 15000 with 91% polys. More IV anatibiotics incase an brewing diverticular infection. White count came down. Diagnosis, probabe delayed immune reaction to flu shot.
Began taper and got to 7 mg from 10. Flare up of back pain severely. Back to 8, then to 10 mg. Im still there. TERRIBLE back and side under arms muscle distress. Taking Ativan along with steroid as of today...to help with muscle issues. REally quite terrible and constant. I want OFF these steroids as they have escalated by diabetes severely...now on 3 different insulins, upped by BP so I am on double the drugs I was on to control it. i have stage 3 b renal insufficiency from a prior chemo 6 years ago. Creatinine now 1 and K is 5.5. My oncologist who is a great diagnostician says we have to get me off the steroids and use something else...mention IVIG or something like that. I am 77 and can't take chemo type drugs again.
Sorry so long but maybe someone will see something we have not thought of. I hit a despair and hopeless wall this past week NOT my MO EVER. Very positive and strong woman. Probably combo of steroids and pain so constant and sooo limited in activity. Can't do much of anything...Make breakfast, I do teach a bit online and enjoy that as I can sit!
Has anyone used Ativan for a period of time for the muscle distress? I am trying it starting last night maybe 3 times a day at 0.5 mg. I have been prescribed Flexeril and will get it today and see if that helps.
Had accupuncture and electrical stim and chinese massage yesterday with a woman I trust and saw for 2 years when I had pancreatic cancer 6 years ago. It was hard to ay flat on my belly to receive it. Screaming muscles. But, I will try this as I am beyond miserable.
okay, again thank you for being here and for all the great tips.
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