The strangest thing...: Strangest thing ever. Two... - PMRGCAuk

PMRGCAuk

20,342 members38,113 posts

The strangest thing...

PuttyPenguin profile image
4 Replies

Strangest thing ever. Two weeks I had a bout of shingles. I’ve been prone to this since I was 24. Just a small patch, about the size of a £1 coin, on the back of my leg. Last week I got a big patch. About 3 inches long and, boy, did I feel bad. A sweating mass of human flesh for two days. And then and then...my concrete jumpsuit left me. It must have dissolved in the heat. No more chronic fatigue. Gone! It’s as though my body has just reset itself. I feel tired at times, probably because I’m doing more, but that heaviness has gone! My muscles are weak, and that’s now far more obvious, but I’m generally on the go from the minute I get up. I still like to slow things down in the afternoon with a bit of sketching or reading. Last week went to the theatre to see Jasper Carrot (remember him? A comic without tourrets!) and then, after a lengthy journey home because of road closures due to storms, we sat and watched Bill Bailey on tv and didn’t get to bed until nearly 1.00am. Up at 8.00am the next day and I was ready to go.

Not so long ago I spoke to a chap, on one of the forums, and he told me that after an operation all his symptoms went.

I can see why it would happen, the autoimmune system had to get into gear and ‘forgot’ it was fighting itself. Now please, I don’t expect everyone to go out and get an infection, but I am wondering if that’s happened to anyone else?

Oh, I so hope this continues – we never know, do we – but it’s a great feeling.

Written by
PuttyPenguin profile image
PuttyPenguin
To view profiles and participate in discussions please or .
4 Replies
PMRpro profile image
PMRproAmbassador

Fingers crossed that the jump start persists!!! I have heard people say their PMR disappeared after something that kicked the immune system.

Just keep on reducing the pred SLOWLY - let the adrenals wake up in a civilised manner ;)

PuttyPenguin profile image
PuttyPenguin in reply to PMRpro

Thanks Ms Ambassador! Yep, I'm following Rod Hughes suggestions of going slowly.

powerwalk profile image
powerwalk

Sounds amazing!!! Oh to be free of this deathly fatigue!! Hope it keeps good for you. Enjoy.

PuttyPenguin profile image
PuttyPenguin in reply to powerwalk

Thanks Powerwalk but it does show this can happen to any of us! wishing you wellx

You may also like...

I feel a few good things~!

...as he said, and I agree, it is just more medicine and more side effects. So...'let us go slowly...

Another frightening thing is happening to me.

doctor but don’t exactly know what to say. I’m getting so I dread going to sleep because I know...

Feeling weak first thing in the morning.

the last week or so I’ve been feeling weak when I get up in the morning. It doesn’t last...10...

Licorice...no such thing as a daft question?

increase the pred itself. I'm really asking has anyone else ever tried it, or have any concrete...

Things are looking up

thing, and I don' t think it can hurt. I still am getting my blood checked every 2 weeks. I have...