Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,922 members • 39,411 posts

All posts for December 2021

Accidental reduction?

Hi all😊 I’ve had a very busy and stressful few months so have stayed on 12.5mg prednisolone daily for a couple of months. Tried to reduce to 12 a few weeks...

Hi all😊 I’ve had a very busy and stressful few months so have stayed on 12.5mg ...

Nextoneplease

•3 years ago

30 Replies

Type 2 Diabetes?

Recently diagnosed with Type 2 Diabetes. Has anyone any advice on how to fit this in with PMR, Pacemaker and Kidney stone ? Spinal epidural last month failed...

Recently diagnosed with Type 2 Diabetes. Has anyone any advice on how to fit th...

merril

•3 years ago

8 Replies

Is the fluey feeling, with prickly skin that I get every afternoon from PMR or prednisone?

I flared following my first vaccine, so increased prednisone. I reacted to this and my doctor told me to decrease although my PMR was still flared. I react...

I flared following my first vaccine, so increased prednisone. I reacted to this...

Jane424

•3 years ago

15 Replies

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UPDATE AFTER MRA/MRI

My last post was about my rheumatologist thinking that I might now have GCA. Well the results of the MRA/MRI did not indicate GCA however it does indicate...

My last post was about my rheumatologist thinking that I might now have GCA. Wel...

Amkoffee

•3 years ago

11 Replies

On top of everything else, Now I have covid19!

What a misery this has been. All the places PMR strikes is three times worse with covid. I don't want to take anymore prednisone so am trying aleve and that is...

What a misery this has been. All the places PMR strikes is three times worse wit...

Linny3

•3 years ago

48 Replies

10 Years...journey over?

10 years PMR and GCA. Was on Actemra tapered to every 3 week injections. Well my Creatinine took a bump up and though rare, the only reason anyone could figure...

10 years PMR and GCA. Was on Actemra tapered to every 3 week injections. Well my...

PMR2011

•3 years ago

28 Replies

When to make the next taper?

I’ve been on 10mg since 12 Nov having spent the previous 10 days alternating between 11 & 10mgs, debating when to do my next taper and how I still get...

I’ve been on 10mg since 12 Nov having spent the previous 10 days alternating bet...

Billiebobdog

•3 years ago

14 Replies

Your sore hands

I was diagnosed just about 24 months ago to the week. My hands problem at the time, I thought was carpal tunnel, but together with my legs and shoulder...

I was diagnosed just about 24 months ago to the week. My hands problem at the t...

DelilahPMR

•3 years ago

13 Replies

5 mg

Well manged to get down to 3 mg pred.... then it started with bit pain here and there.... back up to 5 mg seems to be ok at moment .... Wounder if this will...

Well manged to get down to 3 mg pred.... then it started with bit pain here and...

Hageman

•3 years ago

30 Replies

How to close a post?

PMRpro, I feel my post "Feeling Guilty" should be closed down now, but I don't know how! We have had a good old "waffle" all day, which has cheered many of us...

PMRpro, I feel my post "Feeling Guilty" should be closed down now, but I don't k...

Constance13

•3 years ago

7 Replies

I share concerns, I'm sharing some good news!!

I'd been on 40 mg of prednisone and dropped 10mg in October and restarted Actemra. I sure didn't feel great but in early November, my rheumatologist thought...

I'd been on 40 mg of prednisone and dropped 10mg in October and restarted Actemr...

Grammy80

•3 years ago

29 Replies

CATCH UP & DEXA SCAN

Hello everyone, well my skinned shin eventually healed, it was infected and I had to take antibiotics, but after seeing the surgery nurse and it being covered...

Hello everyone, well my skinned shin eventually healed, it was infected and I ha...

jules1955

•3 years ago

16 Replies

Does anyone have inflammation of their hands and feet from PMR?

Inflammation of hands and feet

smoothilly

•3 years ago

27 Replies

Rib and shoulder blade pain

Good morning all . Has anyone else experienced rib pain for no reason . I do have osteoporosis as well as PMR and vertebral fractures . The last couple of...

Good morning all . Has anyone else experienced rib pain for no reason . I do ha...

Looby60

•3 years ago

54 Replies

Blood-shot eye

Has anyone experienced a sudden bloodshot eye? This happened yesterday with a little discomfort at first. I was driving home after a bowls match where I had...

Has anyone experienced a sudden bloodshot eye? This happened yesterday with a l...

KerryIreland

•3 years ago

21 Replies

Different type of pain at neck spine area

Hi all, I have been tapering slowly and am down to 4.5 and have been doing ok. A few days ago I started feeling pain at the base of my skull cervical spine...

Hi all, I have been tapering slowly and am down to 4.5 and have been doing ok. A...

slopers

•3 years ago

5 Replies

Feeling guilty

Icy cold, dull and windy. Am quite happy to stay snuggled up in a blanket BUT - I haven't been out of the house for 4 days. Anyone else "suffering" with...

Icy cold, dull and windy. Am quite happy to stay snuggled up in a blanket BUT -...

Constance13

•3 years ago

98 Replies

Help - Dexa scan results

T-2.4 T score femoral neck-1.3 T score total hip -0.1 Top one is worse, but are the others worse Previous-1.9 at AP spine T score at femeral neck and Total hip...

T-2.4 T score femoral neck-1.3 T score total hip -0.1 Top one is worse, but are ...

Suffererc

•3 years ago

11 Replies

Unusual eye problem

A month or so back I posted that I had been diagnosed with and unusual eye problem, Superior Limbic Keratoconjunctivitis. I was prescribed a very expensive...

A month or so back I posted that I had been diagnosed with and unusual eye probl...

Flivoless

•3 years ago

16 Replies

WARNING Long moaning post. Please scroll by if you're feeling frail....

Apologies for this post but I am so frustrated and don’t really know what to do. I was diagnosed back in September by GP with PMR. ESR 49. Prescribed 15 mg...

Apologies for this post but I am so frustrated and don’t really know what to do....

Doorstep

•3 years ago

26 Replies

The drug Cortef

Has anyone taken the drug Cortef as a replacement for Prednisone?? Do you know anything about it?

Has anyone taken the drug Cortef as a replacement for Prednisone?? Do you know...

Chris0808

•3 years ago

13 Replies

Colonostomy

Colonostomy while on predisolone. Have taken the laxative the day before the procedure and am feeling quite sick. Anybody had this?

Colonostomy while on predisolone. Have taken the laxative the day before the pr...

Bedwell

•3 years ago

45 Replies

Cataract surgery and Fuchs Endothelial Dystrophy

Has anyone with Fuchs had cataract surgery? How good was your vision after surhery?

Has anyone with Fuchs had cataract surgery? How good was your vision after surhe...

Dossy

•3 years ago

15 Replies

Impact of insufficient sleep on dysregulated blood glucose control under standardised meal conditions

Thought some of you may be interested in this from ZOE https://link.springer.com/article/10.1007/s00125-021-05608-y?mc_cid=1cbc9a9898&mc_eid=8102855a81

Thought some of you may be interested in this from ZOE https://link.springer.com...

Bcol

•3 years ago

3 Replies

taking preds at 2am, reason for doing this question

Somewhere, sometime ago I read in this group that it can be helpful to take preds at 2am - something about cyto shedding at 4am? I would like ot understand...

Somewhere, sometime ago I read in this group that it can be helpful to take pred...

Bennijax

•3 years ago

21 Replies

Shingle vaccine

Had my shingles vaccine yesterday and was told I will have to have another one in four weeks.

Had my shingles vaccine yesterday and was told I will have to have another one i...

Blackcat1M

•3 years ago

14 Replies

New Diagnosis

Hello all, this is my first post and I’m hoping for some comments on where people think I am with this condition and what I need to do as its all pretty scary...

Hello all, this is my first post and I’m hoping for some comments on where peopl...

PactPmb

•3 years ago

43 Replies

Microbiome Community in overdrive! Read on if you're a fan of Tim Specter and Mary Berry!! And be warned......

I dutifully log in to the Zoe Covid app and have become a fan of Tim Specter with his other hat on - that of Gut Health. From advice on here I've done ,well,...

I dutifully log in to the Zoe Covid app and have become a fan of Tim Specter wit...

MamaBeagle

•3 years ago

63 Replies

Cuts from pred foil packets

Just wondered... am I the only one who keeps cutting their fingertips on the foil blister packs that pred comes in? Mine seem quite sharp compared with the...

Just wondered... am I the only one who keeps cutting their fingertips on the foi...

Broseley

•3 years ago

38 Replies

Any bladder effects with enteric pred?

I have had to increase from 6mg to 15mg for GCA flare. Minor stomach grumbles have now increased into some pain. I have some enteric pred to try. I believe it...

I have had to increase from 6mg to 15mg for GCA flare. Minor stomach grumbles ha...

Viveka

•3 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2021

Accidental reduction?

Type 2 Diabetes?

Is the fluey feeling, with prickly skin that I get every afternoon from PMR or prednisone?

UPDATE AFTER MRA/MRI

On top of everything else, Now I have covid19!

10 Years...journey over?

When to make the next taper?

Your sore hands

5 mg

How to close a post?

I share concerns, I'm sharing some good news!!

CATCH UP & DEXA SCAN

Does anyone have inflammation of their hands and feet from PMR?

Rib and shoulder blade pain

Blood-shot eye

Different type of pain at neck spine area

Feeling guilty

Help - Dexa scan results

Unusual eye problem

WARNING Long moaning post. Please scroll by if you're feeling frail....

The drug Cortef

Colonostomy

Cataract surgery and Fuchs Endothelial Dystrophy

Impact of insufficient sleep on dysregulated blood glucose control under standardised meal conditions

taking preds at 2am, reason for doing this question

Shingle vaccine

New Diagnosis

Microbiome Community in overdrive! Read on if you're a fan of Tim Specter and Mary Berry!! And be warned......

Cuts from pred foil packets

Any bladder effects with enteric pred?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2021

Accidental reduction?

Type 2 Diabetes?

Is the fluey feeling, with prickly skin that I get every afternoon from PMR or prednisone?

UPDATE AFTER MRA/MRI

On top of everything else, Now I have covid19!

10 Years...journey over?

When to make the next taper?

Your sore hands

5 mg

How to close a post?

I share concerns, I'm sharing some good news!!

CATCH UP & DEXA SCAN

Does anyone have inflammation of their hands and feet from PMR?

Rib and shoulder blade pain

Blood-shot eye

Different type of pain at neck spine area

Feeling guilty

Help - Dexa scan results

Unusual eye problem

*WARNING* Long moaning post. Please scroll by if you're feeling frail....

The drug Cortef

Colonostomy

Cataract surgery and Fuchs Endothelial Dystrophy

Impact of insufficient sleep on dysregulated blood glucose control under standardised meal conditions

taking preds at 2am, reason for doing this question

Shingle vaccine

New Diagnosis

Microbiome Community in overdrive! Read on if you're a fan of Tim Specter and Mary Berry!! And be warned......

Cuts from pred foil packets

Any bladder effects with enteric pred?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

WARNING Long moaning post. Please scroll by if you're feeling frail....