Eczema breakout : Hi, Im in my 3rd year of PMR and... - PMRGCAuk

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Eczema breakout

Daisy246 profile image
37 Replies

Hi,

Im in my 3rd year of PMR and have now just developed eczema all over my body, has anyone else had this?

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Daisy246 profile image
Daisy246
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37 Replies
SnazzyD profile image
SnazzyD

Hello there, I don’t know what dose you’re on but anecdotally it seems that it is at low doses that some people complain of allergy symptoms, even when they weren’t allergic before. I had the same and it wore off gradually over months. I took a regular antihistamine. However, it is worth thinking about anything that may have changed like washing power/liquid, new foods etc. Are you sure it’s actually eczema? Have you seen a doc about it? Irritated skin isn’t pleasant is it!

Daisy246 profile image
Daisy246 in reply to SnazzyD

Hi, I’ve just got to 2mg.

I have seen the doctor when it was only one patch, he wasn’t sure because it wasn’t in the usual places however it is now, he gave me steroid cream but it hasn’t worked.

That’s interesting about the low dose though.

I think I’ll take your advice and take antihistamines.

Thank you

Koalajane profile image
Koalajane

I don’t know if it is due to prednisolone but I have developed eczema on my left ear

581955 profile image
581955 in reply to Koalajane

Hi are you taking D3 if not worth getting levels checked as theres a link to eczema or Omega 3 also a link

Daisy246 profile image
Daisy246 in reply to 581955

Hi, I haven’t been as my Rheumatologist said not to as my bone density was good. I take Omega 3 everyday though maybe I need to start taking the D3

Thank you

Daisy246 profile image
Daisy246 in reply to Koalajane

It’s strange isn’t, it only started as one little patch and now it’s spreading 😩

SnazzyD profile image
SnazzyD in reply to Daisy246

Where did start and where is it going? One sided? Same both sides? What does it look like?

Koalajane profile image
Koalajane

Thanks, yes I take d3 and was before PMR diagnosis as my vitamin d levels were low. Doctor says d3 for life!. I also take omega 3

Daisy246 profile image
Daisy246 in reply to Koalajane

I will start taking the D3, thank you!

Kra59 profile image
Kra59

Am following this with interest. To be honest I did have eczema as a child and do have dry skin. Have been on prednisolone for about 6 months and have a small rough patch of skin on my wrist. I have wondered if it is a bit if eczema or sun damage or maybe skin infection but now am wondering about the prednisolone - have a phone appt next week so will ask. Hydrocortisone cream has not worked so far.

Daisy246 profile image
Daisy246 in reply to Kra59

Hi, that’s strange as I have small patches on both my wrists too! I’m going to pop into see the pharmacist this morning and see if they can tell me, I will let you know later what they say

Kra59 profile image
Kra59 in reply to Daisy246

Is yours itchy? Mine isn't which makes me question eczema. It's just a little red/pink rough patch - not spreading or more appearing yet. I'm tending towards sun damage or maybe some kind of infection. I do feel that my skin and eyes are drier at the moment though so maybe the Pred. Let me know what pharmacist says.

PMRpro profile image
PMRproAmbassador in reply to Kra59

Could they be keratoses?

mayoclinic.org/diseases-con...

The image in that is a bit OTT - they can be a lot less obvious.

Kra59 profile image
Kra59 in reply to PMRpro

It's one of the possibilities I'd thought about but yes mine is not that dramatic- just a small (5p piece) area of sandpapery skin.

PMRpro profile image
PMRproAmbassador in reply to Kra59

That was my point - that image is of a severe one. They start and often remain much less obvious - I have them but nothing within a mile of that.

Kra59 profile image
Kra59 in reply to PMRpro

Thanks yeah- had already looked at the images of actinic keratoses so know they come in quite a variety - had sort of self-diagnosed myself already- there is one image I've seen which does look very similar. Thanks for your help.

Daisy246 profile image
Daisy246 in reply to PMRpro

Mine doesn’t look like that, it’s strange as it just started will one itchy spot, almost a bite. It’s just taken over now!

PMRpro profile image
PMRproAmbassador in reply to Daisy246

What does the doctor say?

Daisy246 profile image
Daisy246 in reply to PMRpro

When I first went, there were only a couple of patches.He’s a bit of an alternative GP so seems to thing my skin is screaming instead of myself! 😬

He said Calendula cream and add lavender oil and tea tree oil.

Since I’ve seen him though it’s spread

PMRpro profile image
PMRproAmbassador in reply to Daisy246

Alternative is fine if it works but it doesn't sound as if it is - you need to know the cause.

Daisy246 profile image
Daisy246 in reply to PMRpro

I know, think another trip to the gp I think!

Thank you

PMRpro profile image
PMRproAmbassador in reply to Daisy246

Is there an alternative to the alternative chap??? :)

Daisy246 profile image
Daisy246 in reply to PMRpro

Yes, just seen one Dr is a dermatologist! A visit to her I think

PMRpro profile image
PMRproAmbassador in reply to Daisy246

Now THAT sounds more like it ...

Meggsy profile image
Meggsy in reply to PMRpro

😂

Daisy246 profile image
Daisy246 in reply to Kra59

Yes, can be very itchy. I’ve bought some Calendula cream to see if it stops it!

2013mayo profile image
2013mayo

Hi, I too had patches of eczema ( well it looked like eczema )quite out of the blue, never had this before, it actually started just before being diagnosed with GCA, the rheumatologist thought it could be connected with the disease, it seems to have calmed down now.

Hopefully yours will settle down soon. Good luck and hope it gets better soon.

Xx

Daisy246 profile image
Daisy246 in reply to 2013mayo

There seems to be some connection, I’m going to pop in and see if the pharmacist has any ideas.

Hopefully it will settle down soon, at the moment it seems to be spreading!

X

581955 profile image
581955

My rhumy sent a letter saying to take d3 as I was taking predisolone

Daisy246 profile image
Daisy246 in reply to 581955

That’s helpful, thank you

alangg profile image
alangg

I had a few itchy patches during my PMR which the doctor couldn't really fathom out. But she prescribed Dermol Cream (also available over the counter) and advised me to use it instead of any soap products. It worked for me and I am still using it although I am no longer on pred and currently have no PMR symptoms.

Daisy246 profile image
Daisy246 in reply to alangg

Thank you, I’ll give it ago

cycli profile image
cycli in reply to Daisy246

I had itchy red patches on legs , forearms and wrists before pred. all gone now.

Daisy246 profile image
Daisy246 in reply to cycli

See I would think that would be the case as you are prescribed steroids for skin infections

cycli profile image
cycli in reply to Daisy246

no . . Sorry misunderstood your point. I wasn't prescribed anything for this. They ignored the itchy skin along with every other symptom. It only cleared after taking pred. which was a blessing, but the itchy skin was the least of my problems by that time. So your point about low doses may possibly well relate to Adrenal function starting up in some way and trying to recode what was decoded. Highly speculative and unscientific and probably gobbledygook. Just a thought.

Meggsy profile image
Meggsy

Daily flaxseed oil helps my eczema. It has a good proportion of omega 3. Noticed you said it started with what looked like a bite and wondered if you have been taking turmeric. About 5 years ago I began mixing turmeric powder in warm milk with a little coconut oil and black pepper. After a short while what appeared to be a bite appeared on my leg. It was itchy and inflammation began to spread around it. I thought I must have scratched it and infected it. However the itchy rash spread to the rest of my limbs and across my chest. Scattered through it were what looked like flea bites. Eventually I wondered whether the cause might be the turmeric. I googled ‘turmeric allergy’ and found heaps of people describing the same rash. I stopped the turmeric and the rash disappeared. Just thought I’d mention it.

Daisy246 profile image
Daisy246 in reply to Meggsy

That’s interesting, I had taken it last year but stopped because it didn’t seem to make any difference but maybe it is an allergy to something else, I suppose eliminating is the only way to find out.

I take Nothing Fishy oils everyday and have now got some VitD coming today.

You’ve given me something to think about, thank you!

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