Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,032 posts

All posts for September 2021

Diagnosis

Hi Everyone. I am in the early stages of dealing with this situation. I have had symptoms building gradually for around two months. My doctor did some blood...

Hi Everyone. I am in the early stages of dealing with this situation. I have had...

_Gromit_

•3 years ago

13 Replies

Could it bee..... a bee sting causing a flare

Hi all you helpful people, I just want to run this past you to see if anyone has experienced similar. Yesterday I did a 5 mile walk, not strenuous miles and...

Hi all you helpful people, I just want to run this past you to see if anyone has...

Laineydee

•3 years ago

14 Replies

For information: Shingrix vaccine on NHS

I was talking to the rheumatology nurse yesterday about various things including that my husband has shingles again and that I had been advised against the...

I was talking to the rheumatology nurse yesterday about various things including...

Cally55

•3 years ago

18 Replies

Want to take advantage of all our features? Just log in!

Gastrointestinal inflammation with PMR

Hi, I am getting rather worried as I have developed gastrointestinal inflammation. I have polymyalgia rheumatica & have been taking prednisolone since Aug...

Hi, I am getting rather worried as I have developed gastrointestinal inflammatio...

Hidden

•3 years ago

56 Replies

İ am New here

Hi i have myleofibrosis since 2016.i am 40 years old.and i am female with two kids.can anybody say this disaese uncueable please help me ?

Hi i have myleofibrosis since 2016.i am 40 years old.and i am female with two ki...

Blondegirl36

•3 years ago

4 Replies

Coping with Pred induced drowsiness when driving

A couple of points: First off I was interested to see a comment by Cranberryt yesterday that: “Oh and PMR is absolutely felt in the larger joints as well as...

A couple of points: First off I was interested to see a comment by Cranberryt ye...

Lauterbach

•3 years ago

14 Replies

Food for Thought

Something maybe all could share some ideas as some feel that certain diets are limiting and boring . Carricks the fishmongers always come to our Town Barnard...

Something maybe all could share some ideas as some feel that certain diets are l...

cycli

•3 years ago

109 Replies

Knit26 new to this

Hi I’m new to all this I had PMR for nearly two years they found it when I had a stroke and it affected my eye sight thankfully I made a full recovery. I...

Hi I’m new to all this I had PMR for nearly two years they found it when I had a...

Knit23

•3 years ago

6 Replies

Non-urgent blood tests can resume

From today’s Telegraph GPs will be able to carry out non-urgent blood tests again from today after the NHS lifted restrictions that were in place because of...

From today’s Telegraph GPs will be able to carry out non-urgent blood tests agai...

piglette

•3 years ago

1 Reply

Different reaction while tapering this time

Hi All, I've been slowly tapering and have reached 5mg. As happened the last time I reached this level, my neck started to become stiff and I have a bit of...

Hi All, I've been slowly tapering and have reached 5mg. As happened the last tim...

slopers

•3 years ago

6 Replies

Train wreck

In June and July I had 2 surgeries for colorectal polyps which left me in terrible pain, fatigue, weakened, etc. my whole pelvic area felt injured. Upped...

In June and July I had 2 surgeries for colorectal polyps which left me in terrib...

Twopies

•3 years ago

15 Replies

Slow reduction methods

Johnone1940

•3 years ago

13 Replies

Womans Weekly has an article on PMR & GCA

I buy Womans Weekly most weeks because Im a keen knitter and they have some lovely knitting patterns. Was quite surprised to read this weeks issue in bed last...

I buy Womans Weekly most weeks because Im a keen knitter and they have some love...

HappyDiamonds

•3 years ago

23 Replies

Cbd

I read a very interesting article on cbd interaction with pred can find please point me on right direction thanks

I read a very interesting article on cbd interaction with pred can find please p...

Uglow

•3 years ago

2 Replies

Zoledronate Infusion

Would like to hear from anyone who has had experience of this, please! I have had PMR for just over 3 years and am on 3.5mgs of Pred daily. I haven't been...

Would like to hear from anyone who has had experience of this, please! I have ha...

lonelysunrise

•3 years ago

10 Replies

Pain and stiffness again

See my last post. Been tapering slowly by half mgs. Stayed on 8.5mg but have had to go back up to 9mg but this doesn't seem enough as stiffness and pains in...

See my last post. Been tapering slowly by half mgs. Stayed on 8.5mg but have had...

choirsinger1986

•3 years ago

5 Replies

Acid reflux/ indigestion update

Two months ago I asked you all for advice on this problem. Thank you again for all the helpful replies. Happy to report (touch wood) that while not 100% gone,...

Two months ago I asked you all for advice on this problem. Thank you again for ...

bussell

•3 years ago

7 Replies

Should I increase my Prednisone dose prior to receiving booster Covid vaccine.

When I received my second Pfizer vaccine dose, I developed a PMR flare , from which it took weeks to recover. It's time for my booster (and annual flu...

When I received my second Pfizer vaccine dose, I developed a PMR flare , from wh...

Purplecrow

•3 years ago

7 Replies

Meeting up

Please delete if not allowed. I live in Merton, London SW20 and wondered if there was anyone else living in this area that has PMR and might want to meet up...

Please delete if not allowed. I live in Merton, London SW20 and wondered if ther...

Hidden

•3 years ago

2 Replies

Feeling scared and low

Hello everyone. I am interested to know if anyone else feels like they are just existing and trying to get through each day. I was diagnosed 18months ago and...

Hello everyone. I am interested to know if anyone else feels like they are just ...

Pippz20

•3 years ago

43 Replies

If you shielded in the UK last year - an opportunity to join in research about your experiences

https://healthunlocked.com/lupusuk/posts/146839438/share-your-experiences-of-shielding-during-the-pandemic-in-this-new-research-study?utm_source=notification&ut

https://healthunlocked.com/lupusuk/posts/146839438/share-your-experiences-of-shi...

PMRpro

Ambassador•3 years ago

1 Reply

aching lower back

Hi dear friends. I wonder if anyone can advise me. I am waiting to see a Rheumatologist next month, but have already been diagnosed with PMR and taking...

Hi dear friends. I wonder if anyone can advise me. I am waiting to see a Rheuma...

sewingscissors

•3 years ago

10 Replies

Skin side effects

Since diagnosis with PMR 12 months ago and now on predosilone7mg pd, I have developed many skin eruptions.They begin small with an itch and become larger...

Since diagnosis with PMR 12 months ago and now on predosilone7mg pd, I have d...

jezzard

•3 years ago

14 Replies

Reducing from 7mg to 6.5mg.

I have been doing really well and feeling quite positive about how far I’ve managed to reduce, with the help of methotrexate. However, I began to experience...

I have been doing really well and feeling quite positive about how far I’ve mana...

Whatawonderfullife

•3 years ago

42 Replies

Fed up doesnt even cover it

HI fellow sufferers, Ive been on pred since March, reducing v slowly from 15, now down to 12. Under hospital care who want me to swap AA to risedronate. Im...

HI fellow sufferers, Ive been on pred since March, reducing v slowly from 15, n...

Hidden

•3 years ago

7 Replies

Lymphedema Compression Suit

Is this common in the UK? This is the suit the Lymphedema Therapy Department ordered for me. I wear this for an hour each day, every day, unless I have a...

Is this common in the UK? This is the suit the Lymphedema Therapy Department or...

Grammy80

•3 years ago

36 Replies

KEVZARA® (sarilumab)

Anybody have any experience with Kevzara for LVV/GCA/PMR? My rheumy is switching me to that because Actemra 1) doesn't interact well with my recently-diagnose...

Anybody have any experience with Kevzara for LVV/GCA/PMR? My rheumy is switchin...

winfong

•3 years ago

3 Replies

Thank you to whoever is responsible for the layout of this forum.

Hi all, Not a question but a commendation. I would like to applaud whoever is responsible for the layout of this forum. It is the most user friendly layout...

Hi all, Not a question but a commendation. I would like to applaud whoever is ...

pal-o-mine

•3 years ago

19 Replies

Update on Rheumatologist Appointment. I was diagnosed on 13th June with PMR and GCA

Since that date no interest was shown in an urgent consultation and I've been working well with my Dr. to handle this disease. I was eventually given an...

Since that date no interest was shown in an urgent consultation and I've been wo...

cycli

•3 years ago

21 Replies

Sickness

Hi.when you are reducing down on pred,from 4mg til 3mg,does it include sickness and not feeling hungry,because that's how I been feeling last week.an advice...

Hi.when you are reducing down on pred,from 4mg til 3mg,does it include sickness ...

Flosy

•3 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2021

Diagnosis

Could it bee..... a bee sting causing a flare

For information: Shingrix vaccine on NHS

Gastrointestinal inflammation with PMR

İ am New here

Coping with Pred induced drowsiness when driving

Food for Thought

Knit26 new to this

Non-urgent blood tests can resume

Different reaction while tapering this time

Train wreck

Slow reduction methods

Womans Weekly has an article on PMR & GCA

Cbd

Zoledronate Infusion

Pain and stiffness again

Acid reflux/ indigestion update

Should I increase my Prednisone dose prior to receiving booster Covid vaccine.

Meeting up

Feeling scared and low

If you shielded in the UK last year - an opportunity to join in research about your experiences

aching lower back

Skin side effects

Reducing from 7mg to 6.5mg.

Fed up doesnt even cover it

Lymphedema Compression Suit

KEVZARA® (sarilumab)

Thank you to whoever is responsible for the layout of this forum.

Update on Rheumatologist Appointment. I was diagnosed on 13th June with PMR and GCA

Sickness

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive