Hello everyone. I am interested to know if anyone else feels like they are just existing and trying to get through each day. I was diagnosed 18months ago and was tapering the pred until I had a massive flare up in March and was off work for over 3 months. I am 52 and the head of a food department in a secondary school. I realised that I wouldn’t be able to return to work full time and have reduced to 4 days a week, two weeks in however and I am really struggling to cope. Because I look ok, school are treating me as a normal teacher, the only concessions I have are a lift key and no break or bus duties, other than that I have a full timetable and the department to run. I still have a (older) child at home and a mortgage to pay so have to work but am scared that I might not be able to continue, the only option I can see is reducing my days further.
By the time I get home all I want to do is cry, I am so tired and achy as I cannot sit down for any period of time during the day and I know this is making it worse. I am isolated from my friends as I can’t go shopping, for nights out etc. I am also isolated from my friends at school as I just have to stay in my classroom and rest whenever I can. I am however very lucky to have an amazing husband so shouldn’t moan.
Sorry for the long post any advise or benefits of wisdom greatly appreciated.