Knit26 new to this : Hi I’m new to all this I had... - PMRGCAuk

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Knit26 new to this

Knit23 profile image
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Hi I’m new to all this I had PMR for nearly two years they found it when I had a stroke and it affected my eye sight thankfully I made a full recovery. I started on 30mg of ped and have managed to get down to 5/4 I also on methotrexate 20mg which I hate got to say it’s makes me have no energy whatsoever and I swapped from tablets to injection which still not really helped but what I’m looking for is any help with the side effect of the ped it’s give me sweats day and night which make me feel funny any help on how to control this would be grateful

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Knit23
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DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

This recent post may help - healthunlocked.com/pmrgcauk...

PMRpro profile image
PMRproAmbassador

Hi and welcome.

Did you have the sweats at higher doses of pred? It is part of PMR and also a recognised adverse effect of pred. A return of sweats is a sure sign for me I'm starting to flare.

One of the things methotrexate can do is make pred-related adverse effects worse - that happened to me, I didn't get recognised mtx adverse effects, they were all like pred ones that I had never had before!! Or since.

Pixix profile image
Pixix

I’ve huge problems with the sweats! All written down many times previously& now in an FAQ, or previous post! Do try the link Dorset Lady has provided & you will get lots of info! Good luck, S x

Seacat30 profile image
Seacat30

I sweat most at 4am in the morning. It is very precise like an alarm clock. (Also when I am feeling particularly anxious.)

PMRpro profile image
PMRproAmbassador in reply toSeacat30

That is often the sign that the daily batch of inflammatory substances is being shed in the body - I had exactly same sort of experience.

Seacat30 profile image
Seacat30 in reply toPMRpro

That is what I suspected.

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