Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,643 members • 38,794 posts

All posts for July 2021

Adrenals

I have dropped down from 5mg to 3mg in halves really easily.. No pain or side effects. But I feel very tired. I know it's the adrenals getting to work again...

I have dropped down from 5mg to 3mg in halves really easily.. No pain or side ef...

diana1998

•3 years ago

25 Replies

I can't complete my profile. Following the statement that I have pmr I'm asked for 'Associated Treatments'. What does that mean?

Every time I enter 'Prednisolone' in answer to the question 'Associated Treatments' for pmr, it is rejected. I must be misunderstanding what 'Associated...

Every time I enter 'Prednisolone' in answer to the question 'Associated Treatme...

Purple-Owl

•3 years ago

7 Replies

Update on rheumy appt

Had a very satisfying appt on Monday with rheumy which was arranged by specialist nurse after having what she and GP were concerned was a pmr flare, (hip/leg...

Had a very satisfying appt on Monday with rheumy which was arranged by specialis...

Topcar

•3 years ago

11 Replies

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Bruises

Hi keep getting a lump of fluid and then it-gets bruised does anyone else get this ? Is it the prednisolone?

Hi keep getting a lump of fluid and then it-gets bruised does anyone else get th...

Rottsuzi

•3 years ago

8 Replies

PMR Life changing in so many ways

In early December 2020 I was suddenly immobilized by chronic left/right shoulder,hips and hands pain.My hands felt swollen and hot the rest of me felt like...

In early December 2020 I was suddenly immobilized by chronic left/right shoulder...

Hidden

•3 years ago

9 Replies

Forgot tablets

Uh oh! Spent weeks getting flare under control and nearly there, feeling considerably better and then I forgot to take my tablets yesterday! First time ever,...

Uh oh! Spent weeks getting flare under control and nearly there, feeling conside...

Abbey17

•3 years ago

7 Replies

Concerns that taking daily prednisolone reduces the efficacy of the Covid vaccine

Hi, I’m new here and pleased to join the forum. I was diagnosed with polymyalgia in April this year, three weeks after having my first Covid jab and my first...

Hi, I’m new here and pleased to join the forum. I was diagnosed with polymyalgia...

Laineydee

•3 years ago

5 Replies

Does anyone have worse symptoms with different brands of Prednisolone?

I have been trying to decrease my dosage from 40mg since last September. Managed to get to 20mg by Xmas then had a flare in January. I'm now down to 15mg and...

I have been trying to decrease my dosage from 40mg since last September. Managed...

cisy

•3 years ago

13 Replies

Stress related issues

Beethovenite here. I am interested that people think stress is a cause of temporal arteritis. I am baffled as to why I got it - more than a year ago now. I...

Beethovenite here. I am interested that people think stress is a cause of tempo...

beethovenite

•3 years ago

15 Replies

Can anyone read this bloodwork request? Please see photo and translate if you can. Thanks in advance.👍

I'm confident it starts with FBC profile then ESR then I lose it!!

MiloCollie

•3 years ago

10 Replies

I feel a bit left to my own devices but I'm not worried

Started pred 15mg on 23rd April, stayed on this for 6 weeks (a bit longer than I was advised by GP but I had a fall) then went to 12.5mg for about 6 weeks, now...

Started pred 15mg on 23rd April, stayed on this for 6 weeks (a bit longer than I...

MiloCollie

•3 years ago

9 Replies

Dropping down to 10mg

Hi you lovely people 😊 After little bit of advice as feel bit stuck with what I should or shouldn't do. I started on 15mg Pred on 8th April. Cut down to...

Hi you lovely people 😊 After little bit of advice as feel bit stuck with what I...

Shiba64

•3 years ago

23 Replies

Uncertainty over A&E advice

had a viral Covid vector vaccine recently & six days in, I started with unrelenting head pain & temporary vision loss, so I contacted my GP & he flagged GCA. I...

had a viral Covid vector vaccine recently & six days in, I started with unrelent...

RubbleTum

•3 years ago

20 Replies

Still on steroids

Hi I have had all the tests and they are sure i don’t have gca, although I’m kept on steroids 2.5mg till I have the results of a synacthen test and sort out my...

Hi I have had all the tests and they are sure i don’t have gca, although I’m kep...

Bauldy

•3 years ago

24 Replies

Rheumatologist consultation since my original post

Today I have, finally, received a copy of a letter from my Rheumatologist, sent to my GP, following my consultation on the 1st July. Under “Diagnosis” she has...

Today I have, finally, received a copy of a letter from my Rheumatologist, sent ...

Flivoless

•3 years ago

12 Replies

Confused

Hi all, just had my weekly appointment with gp and due to covid not able to have face to face appointment with rheumatologist at the moment, so they have...

Hi all, just had my weekly appointment with gp and due to covid not able to hav...

Hidden

•3 years ago

21 Replies

For those who may have completed the original prescription charges consultation they have added an extra question.

https://dhsc-mail.co.uk/campaign/Sx1iaZDJ/J9PBY5hh9/f4f750d1472f9109c912de3e79058cac?wp-linkindex=0&utm_campaign=Consultation_on_prescription_charges-_missing_q

https://dhsc-mail.co.uk/campaign/Sx1iaZDJ/J9PBY5hh9/f4f750d1472f9109c912de3e7905...

Bcol

•3 years ago

1 Reply

Sleep

Morning, my sleep pattern over the last week or so has been hr on hr off then wake up with headache and feeling sick headache doesn't last long but sick...

Morning, my sleep pattern over the last week or so has been hr on hr off then wa...

Hidden

•3 years ago

4 Replies

Hi newby here.

Hi everyone, bit upset to say the least, had my first dexascan yesterday and the technician said that my 'numbers' were showing that i am at risk of...

Hi everyone, bit upset to say the least, had my first dexascan yesterday and the...

Hidden

•3 years ago

63 Replies

Down to 10mg Pred instantly!

Hello again, Just seen a rheumatologist for the first time, having been diagnosed with PMR in early January this year. Went from 15mg pred to 12.5mg by March....

Hello again, Just seen a rheumatologist for the first time, having been diagnose...

Silver-Babe

•3 years ago

20 Replies

Covid precautions that matter

Since it is to be handed over to the general public to use common sense, and because I didn't see much of that on view amongst the general public at the...

Since it is to be handed over to the general public to use common sense, and be...

PMRpro

Ambassador•3 years ago

12 Replies

Fybromyalgia

Worth a read https://www.drugs.com/comments/prednisone/for-fibromyalgia.html

Uglow

•3 years ago

1 Reply

Methexotrate withdrawal

Hi all, my rheumy put me on 15mg Methotrexate on 1 st March to help me gradually reduce Prednisolone. I had tapered down to 5.5mg, using Dead Slow Nearly Stop...

Hi all, my rheumy put me on 15mg Methotrexate on 1 st March to help me gradually...

Magster54

•3 years ago

13 Replies

Fybromyalgia

Do you get steroids for fybromyalgia I thought it was for poly and giant cell !!

Do you get steroids for fybromyalgia I thought it was for poly and giant cell !!...

Uglow

•3 years ago

12 Replies

Too big a taper of prednisolone? What are the symptoms?

I have experienced the worst fatigue and weakness ever. I really scared myself. I tried to taper way too fast. My shoulder pain returned over a period of...

I have experienced the worst fatigue and weakness ever. I really scared myself....

pomeranion

•3 years ago

14 Replies

Wasp stings and PMR?

Well I’ll be everyone’s guinea pig with regards to wasp stings. This afternoon accidentally disturbed a hidden yellow jacket’s nest. Got stung 7 times before...

Well I’ll be everyone’s guinea pig with regards to wasp stings. This afternoon a...

Boss302Fan

•3 years ago

10 Replies

Tapering pred dose.

I live in South Africa and the smallest prednisone tablets available here are 5mg. I am now down to 10mg from 20mg a day following DL plan and have tapered by...

I live in South Africa and the smallest prednisone tablets available here are 5m...

Hankb

•3 years ago

13 Replies

Erratic heart caused by adrenals?

Hi all. Odd one. I got put on bisoprolol, small dose, Feb 2018 as I was getting erratic heart beats. No probs since until 3 weeks ago. Doc doubled bisop. No...

Hi all. Odd one. I got put on bisoprolol, small dose, Feb 2018 as I was getting ...

Nagswoman

•3 years ago

6 Replies

Is it back?

I stopped taking prednisone last November after a two year taper from 50 mg. Compared some of you, it was a pretty uneventful taper and my blood work was good...

I stopped taking prednisone last November after a two year taper from 50 mg. Com...

Logic

•3 years ago

2 Replies

Do side effects to methotrexate change over time?

Just started taking methotrexate today 15mg, feel tired and a bit more achy in shoulders than normal. Do the side effects just continue or do you become more...

Just started taking methotrexate today 15mg, feel tired and a bit more achy in s...

Susan1705

•3 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2021

Adrenals

I can't complete my profile. Following the statement that I have pmr I'm asked for 'Associated Treatments'. What does that mean?

Update on rheumy appt

Bruises

PMR Life changing in so many ways

Forgot tablets

Concerns that taking daily prednisolone reduces the efficacy of the Covid vaccine

Does anyone have worse symptoms with different brands of Prednisolone?

Stress related issues

Can anyone read this bloodwork request? Please see photo and translate if you can. Thanks in advance.👍

I feel a bit left to my own devices but I'm not worried

Dropping down to 10mg

Uncertainty over A&E advice

Still on steroids

Rheumatologist consultation since my original post

Confused

For those who may have completed the original prescription charges consultation they have added an extra question.

Sleep

Hi newby here.

Down to 10mg Pred instantly!

Covid precautions that matter

Fybromyalgia

Methexotrate withdrawal

Fybromyalgia

Too big a taper of prednisolone? What are the symptoms?

Wasp stings and PMR?

Tapering pred dose.

Erratic heart caused by adrenals?

Is it back?

Do side effects to methotrexate change over time?

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