Still on steroids

[Bauldy]

Hi

I have had all the tests and they are sure i don’t have gca, although I’m kept on steroids 2.5mg till I have the results of a synacthen test and sort out my tiredness. Mean time they have picked up a aneurysm 4 mm in the brain between the arteries, the neurosurgeon has left it up to me as to having a op, live with it or have the op and away it goes ?

[PMRpro Ambassador]

Just been watching the insertion of a stent for a tiny cerebral aneurysm - I love interventional radiology!!!! Is that what the neurosurgeon is offering?

[Bauldy in reply to PMRpro]

That or clipping, depending on me deciding to have it done or live with it? I really wanted him to make the choice.

[PMRpro Ambassador in reply to Bauldy]

I can understand why!!!!

[Bauldy in reply to PMRpro]

That’s why I’ve posted on here really want someone else to tell me what to do.

[PMRpro Ambassador in reply to Bauldy]

But we can't really can we? Even if it were for me, not without knowing more about the potential risk of leaving it. The case I was watching was told it wasn't even 50/50 it would be OK for another month. That's a big factor.

[Bauldy in reply to PMRpro]

The clipping is more permanent apparently (according to my wife who is google medical trained), I’ll always have it with a risk and if it burst we all know how bad that can be or I have it done with a calculated risk and it’s done and dusted.

[MrsNails in reply to Bauldy]

I love your comment that your Wife is Google Medical Trained! Brilliant! My colleague Sue & l always told the Trainee Doctors that we did Our Training at Holby City & they always looked puzzled, Bless ‘Em! For non TV Watchers or International Members ‘Holby City’ was a TV Medical Drama but of course l’ve now moved on to Greys Anatomy 😉 via Dr Greg House! Joking aside wishing you all the luck with your decision 🍀

MrsN

[Bauldy in reply to PMRpro]

And by the way talking helps so thanks for that.

[PMRpro Ambassador in reply to Bauldy]

Someone here will always listen - it's why we're here

[Bauldy in reply to PMRpro]

Thank you, best therapy and cheaper.

[123-go in reply to Bauldy]

Oh, we're not cheap! Your bill will be in the post 😀. Seriously, once your decision is made - and I feel you have decided now- you will feel better about things. I wish you all the best. If you promise to let us know how you get on, you won't be charged 😉.

[SheffieldJane]

Good luck Bauldy. There are some good explanatory articles when you Google your exact dilemma. I tried to attach them ( Mayo Clinic etc) in spite of patient help from Mrs Nails I can’t seem to do it on my new iPad.

[PMRpro Ambassador in reply to SheffieldJane]

If you can be bothered to type out the titles someone will do it for you I'm sure. Long live computers I say

[Telian]

I’m sure you’ll reach a decision shortly. Wishing you all the best Baiuldy.

[Bauldy]

Thanks all x

I have decided to have it clipped going to speak to my gp today and ask her to contact the neurosurgeon.

I have spoke to both my sons my wife my siblings all say the same why wait ?get it fixed.

Thanks for listening I’ll keep you informed

[SheffieldJane in reply to Bauldy]

That’s what I would have done too. I’ve been thinking about you a lot. Wishing you a completely successful procedure and no more frights. 🌻

[123-go in reply to Bauldy]

Good for you, Bauldy!

[Flosy in reply to Bauldy]

Good luck with that.all the best.

[Hacey in reply to Bauldy]

Well done! That's what I would do. Good luck.

[Pr0jection]

I have a 3mm brain aneurism which was found by chance about 6 years ago. I had annual MRI's until the radiologist told me that he loved taking my money but I was wasting it as it was doubtful that the aneurism would grow anymore after all that time. This was also confirmed by the surgeon. However, I wasn't given the option of having an operation. To be honest I'm not sure what my decision would have been if I had been given the option. All I can say is that I haven't had any problems to date, I keep my BP as low as possible but I'm not on medication, I'm on 7.5mg of prednisolone (don't know if this helps or not), I've cut outugary foods, have low carbs and full fats, i.e. I eat healthily, exercise regularly etc etc. I'm 78 and feel fine. All the best to you.....

[Loyd]

Good decision. If it were me I would just go for it and make you sure get a top person to do it. All the best. 🤞🤞🤞🤞❤️

[Bauldy]

If I hadn’t been given the option I would have dealt with it, but I was so I made the right decision. I have high blood pressure, af, heart issues, arthritis, have family history of aneurysms.

[Bauldy]

Hi all

What a productive few days, today I have received 2 phone calls , the first from the neurologist telling me my synacthen test was good and I can now come off my steroids the second was from the neurologist nurse putting me on the list for the aneurysm to be clipped, she said although invasive the clipping is a quicker recovery and if all goes well I could be discharged within 6 months.

Thursday I spoke to my gp and she seemed to think my lethargic/ tiredness seemed to be more down to my mental health, I being more unqualified believed it was something to do with steroids, I now believe that’s 1 - 0 to my gp.

Overall I fell happy with the last few days and plus the sun is shining .

Thanks and stay safe .

[PMRpro Ambassador in reply to Bauldy]

Your synacthen test tells you only that your adrenal glands are capable of producing cortisol when prodded - it doesn't mean that the whole of the rest of the feedback set-up is working perfectly and it is probably a tad rusty! So you could all be right - but it will be a while until the system is functioning perfectly