Fybromyalgia

[Uglow]

Do you get steroids for fybromyalgia I thought it was for poly and giant cell !!

[MrsNails]

Steroids will not help will Fibromyalgia unfortunately.

[PMRpro Ambassador]

Pred doesn't work in fibro - it isn't an inflammatory disorder. I don't care what some doctors clai - if pred works it isn't fibro.

[PMRpro Ambassador]

This article is relevant here too:

medicalnewstoday.com/articl...

[Canarylady]

Thank you so much ladies for saying steroids don’t work for fibromyalgia.I have pmr and everyone keeps saying I have fibromyalgia!

[PMRpro Ambassador in reply to Canarylady]

As long as your doctor knows the difference - but even they get it wrong. And don't always know the differnce between arthritis and arteritis ... And don't get me started on some nurses when it comes to that!

[Bcol in reply to PMRpro]

Interestingly my OH's FM specialist told her that as she had FM she couldn't have/get PMR, so not sure what planet she is on.

[Uglow in reply to Canarylady]

May I ask how old you are coz the consultant said my daughter in law is too you g to have polymyalgia. I know it’s usually older people she is 42

[PMRpro Ambassador in reply to Uglow]

She isn't too young - the youngest reported case in the medical literature was 24 I think. It isn't that you CAN'T have it, it is just very rare. But that doesn't mean it doesn't happen. Same with GCA - a 37 year old man in South Wales died of a stroke due to GCA - proven at post mortem, The pathologist knows it all - just too late ...

[HeronNS in reply to Canarylady]

The first thing I say when people ask is I have Polymyalgia. The second thing I say, after they open their mouth and I know what they are going to say, is it's not the same as fibromyalgia. (I have always guessed right, that they were going to say something about fibro.)

[Canarylady]

Hi uglow,I started having problems with my spine and shoulders when I was in my late 30 s.

It’s a terrible feeling when no one believes you ie doctors etc…

My old doctor saw it straight away and put me on pred,within a day I was so much better.

But it’s been a hard and long journey,I m still on pred from 60mg down to 9 mg!

I still get pain and discomfort everyday,I m so tired.

No one understands what we go through,I ve had no support from anyone family included!

I do hope your daughter gets more help and understanding than a lot of us on here.

Best wishes

[Uglow in reply to Canarylady]

What was wrong with your spine I have a fractured vertebrae never felt pain. Like it.

[Canarylady]

Sorry it’s late answering you back,I didn’t finish until late.I ve had my coccyx removed,and had a spinal fusion,I also have degenerative disc disease,facet joint arthritis at the lumbar spine.

Mild canal stenosis of my lumbar spine.

Diffuse disc bulge,then moderately severe canal stenosis at L4/L5and another minor diffuse disc bulge at L5/S1the list goes on!

So I m in discomfort most of the time I m moving around and working,now that does become very painful I have strong painkillers.

How are you now with your pain?

Hope your well.

Ruth