Swollen ankles and a bit of good news!: I’ve had a... - PMRGCAuk

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Swollen ankles and a bit of good news!

madhouse1 profile image
21 Replies

I’ve had a phone all from a doctor from my surgery asking how I was!

Well he got the lot, he listened and agreed that what I’d said was what the Rheumy had put in his letter.

The upshot of it was he’s writing to the consultant to get me another appointment and telling him how I am.

I’m not holding my breathe but got a lot off my chest amd gave him something to think about.

I said I need someone who understands and can work with me to give me the best quality of life possible and up to now only a locum, Dr Khan, has done that and nee what was what. I feel like I’m on an island and abandoned by you all. That’s when he said he’d write to the consultant.

Thank you for your continued support folk.

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21 Replies
SheffieldJane profile image
SheffieldJane

Well done! It sounds like he heard you. Let’s see what happens next.Are you on blood pressure meds? Swollen ankles seem to appear as a side effect with them.

madhouse1 profile image
madhouse1 in reply toSheffieldJane

I just 10mgs Omeprazole to protect my tim with taking pred. Stopped AA. Good multivitamin with calcium and extra Vit D. Ankles have been ok the last couple of days although it’s warmer today and I’m sat in the garden and they’re starting to balloon. I’ll have a word next time Doc does a surprise phone call. It was the one who rung a month ago and was so grumpy. He must have listened then as he kept saying you said that when I spoke to you. Well, his ears were definitely ringing yesterday. I’ll keep you posted but that’s the first positive thing for months. 👌

SheffieldJane profile image
SheffieldJane in reply tomadhouse1

All achieved by you speaking out! 👏👏👏👏

madhouse1 profile image
madhouse1 in reply toSheffieldJane

Yes with a GP who listened unlike the GP I was given when joining the practice. There is hope! 😉

123-go profile image
123-go

You must feel a great sense of relief to have someone listen to you and respond professionally to your concerns. I'm sure we'd all greatly appreciate it if our GP rang once in a while to ask how we are.I hope things continue to go well for you,

borednow profile image
borednow in reply to123-go

If my GP rang to see how I was, I wouldn't need him again.

123-go profile image
123-go in reply toborednow

😢

madhouse1 profile image
madhouse1 in reply toborednow

😂😂😂

madhouse1 profile image
madhouse1 in reply to123-go

It’s was totally out of the blue, I was stunned but thought I’d better maximise this opportunity as it might never happen again. I still can’t believe they actually rang to see how I was. He’s perhaps not such a bad stick after all. Far less qualified than my named, GP whose been seeing g me since last year when she will, but hasn’t a clue about PMR.

123-go profile image
123-go in reply tomadhouse1

Maybe your named GP will allow you to educate her on PMR!😉

madhouse1 profile image
madhouse1 in reply to123-go

I’ve tried, believe me. She dictates, talks across me, asks a question and then talks across me as I answer going onto her next point then stands up and ushers me out of the door in face to face consultations. Phone consultations constantly cuts across anything I say then hangs up. 😌

123-go profile image
123-go in reply tomadhouse1

That's awful!There's nothing worse than not being listened to. From her attitude I would be inclined to suggest that she knows little about your condition. Any chance of finding another rheumatologist? If you tell us which are you're in someone may be able to recommend.

sewingscissors profile image
sewingscissors in reply tomadhouse1

Lots of interesting posts and relevant to me. My GP doesn’t seem to know much about PMR. I havnt had blood tests since I was diagnosed at the hospital Nine months ago and I havnt seen her face to face for 16 months. I find the telephone consultations very difficult and have now asked the powers that be if there is another GP who has knowledge of this horrid condition as I feel abandoned . But so grateful to all you lovely folk and Kate Gilbert’s wonderful book.

madhouse1 profile image
madhouse1 in reply tosewingscissors

You’re in good company here with a GP who doesn’t understand the condition and Rheumy consultants who don’t either. More help in here than they give us.

Please don’t feel abandoned we’re all here. I know what you mean as I felt exactly the same last week xxx

sewingscissors profile image
sewingscissors in reply tomadhouse1

Thank you so much for your reply. It’s great I can have this wonderful Forum to go to for help. I feel happier now. xx

madhouse1 profile image
madhouse1 in reply tosewingscissors

Just message on here xx

madhouse1 profile image
madhouse1 in reply to123-go

Karen it’s never happened before and the GP (a she) I have been given who has rattled myMeds down to the day so I can’t adjust if pain worsens hasn’t a clue about this illness. Yes I was thrilled he listened.

Highlandtiger profile image
Highlandtiger in reply tomadhouse1

Can’t you just stick with him in future? Although I have a named GP I have never actually seen him and have no idea who he is or what he looks like! I happened to be given an urgent appointment with one of the GPs on my return from holiday when I’d been hospitalised abroad and I liked the way he dealt with me then and have just booked appointments with him ever since. Bonus is that he’s open to learning about PMR and says I’ve educated him along the way...

madhouse1 profile image
madhouse1 in reply toHighlandtiger

Wow you’re so lucky! I was given a GP when I joined the practice last year and ended up with someone who ‘knows it all about PMR’ but knows nothing. This chap rang me with some test results and was awful. Then he rang me yesterday to see how I was out of the blue, listened and writing to the Rheumy to get me an earlier app. It’s hard to believe it was the same chap. Yes I’ll stay with him if at all possible

MaritimeMags profile image
MaritimeMags

Going back to the swollen ankles bit, I have for some years been wearing Boots Support Socks - They are really good for helping to prevent swollen ankles, even in hot weather.It’s like wearing knee high tights. For those of you reading this abroad, Boots is a well know High Street pharmacy in the UK. 🙂

madhouse1 profile image
madhouse1 in reply toMaritimeMags

Thanks I’ll have a look

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