Recordings of webinars from PMRGCAuk Week

[Fran_Benson]

If you didn't have chance to watch the webinars last week: Living with GCA and Life Beyond Steroids, you can catch up on our website: pmrgca.org.uk/pmrgcauk-week...

The aim of PMRGCAuk Week is to raise awareness, raise funds and gain members. Do consider donating or joining if you haven't already done so. (You can do both through the website )

Thank you.

Fran

[MrsNails]

I watched the PMR One Fran & it was Excellent - the Consultant raised some very interesting points.

[Maisie1958]

I’ll second that. Very good. I’m going to watch the recording of the GCA one shortly. Thank you Fran

[benhemp]

Thanks for sharing this link, Fran! I missed the PMR one because, being in the U.S., I didn't realize that the UK was on their equivalent of our Daylight Savings Time. Just caught the last 5 minutes as a result. Glad to be able to start at the beginning and hear the whole thing.

[Uke1]

I watched the Life Beyond Steroids webinar and I thought it was very informative. I had never thought of the cumulative dose of prednisolone depending on how long you are taking it and the possible negative effects of this. Also the fact that, should you be taking it for longer than 2-3 years, you are unlikely ever to be completely off it as the adrenal glands will not 100% kick back in. You will more than likely always be on a very low dose. I have reached 6.5mg after one year so am of course hoping that I can continue reducing by half a mg every 5 weeks on the slow taper. Fingers crossed!

[PMRpro Ambassador in reply to Uke1]

Most people I know who were on pred for 4-5 years were also able to get off entirely by tapering VERY slowly.

[Uke1 in reply to PMRpro]

Oh that is encouraging!

[Rugger]

Thank you Fran, from all of us who don't Zoom!

[Kaaswinkel72]

Great webinar. I am one of those people that always felt I have a combination of several “ things”....great to find out that that could indeed be the case

[PMRpro Ambassador in reply to Kaaswinkel72]

I now know 4 very good rheumies who all think the same.

[Rache]

Thanks for this, Fran. Didn’t manage to see it on the day.

[readingbooks]

I am a member of the charity now although I don't live in the UK. I wasn't aware of the Webinars at the time. Have I just missed the information ? Did Pred brain kick in ? Many thanks for this post as I can now catch up.

[Fran_Benson Partner in reply to readingbooks]

Hi readingbooks, I'll message you to see if we can sort this out.

Fran

[Zebedee44]

Well worth watching this very informative no nonsense webinar, good to get some answers and some understanding of our complex condition. Many thanks for posting the link Fran and good job Candy.